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The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book) Paperback – May 22, 2014

ISBN-13: 978-1421409849 ISBN-10: 1421409844 Edition: 1st
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Editorial Reviews

Review

A wealth of detail on the many ways lupus affects the human body, the various related treatment options, a range of patient resources for support, and more... a caring, comprehensive guide to understanding and coping with lupus.

(Library Journal)

The Lupus Encyclopedia is [a] carefully-researched, easily-understood and comprehensive book. It is, as it claims, an ENCYCLOPEDIA... If you [could have] only one book in your library about lupus, The Lupus Encyclopedia might well be it.

(The Lupus Guru)

There is great depth and much to learn from reading and referring to this important book... This book should stand the test of time as one of the great books about this complex auto-immune disease.

(Lupus, the Adventure Between the Lines)

I highly recommend The Lupus Encyclopedia. It's an amazing source of information, and I feel empowered by the fact that I have a reliable resource to turn to whenever I need it. No matter what your symptoms are or the level of severity, you owe it to yourself to get this book.

(Lupine Life)

The Lupus Encyclopedia is a book that that every lupus patient should have in their home library. It's the most comprehensive lupus book out there, and is a valuable resource for anyone searching for a detailed and in-depth explanation of this complicated and mysterious disease.

(Sara Gorman Despite Lupus)

This is a highly readable medical text... This encyclopedia would be useful for public libraries, medical libraries, or academic libraries.

(Amy B. Parsons American Reference Books Annual)

People who have lupus and their primary care doctors will find in this book all the information they need.

(from the Foreword by George C. Tsokos, M.D., Harvard Medical School)

Finally, an expert clinician who can explain a complicated medical condition using simple conversational English without glossing over important details or talking down to the reader. The information will be clear to anyone with a high school education and will also be helpful for medical professionals. I will be recommending this book to my patients with lupus and to anyone who wants to understand this illness better.

(Joan T. Merrill, M.D., Head, Clinical Pharmacology Research Program, Oklahoma Medical Research Foundation, and Medical Director, Lupus Foundation of America)

An extremely thorough and readable volume reflecting enormous amounts of time, effort, and research.

(Daniel J. Wallace MD FACP, FACR, Cedars-Sinai Medical Center, author of The Lupus Book: A Guide for Patients and Their Families)

About the Author

Donald E. Thomas, Jr., M.D., FACP, FACR, is an assistant professor of medicine at the Uniformed Services University of the Health Sciences and teaches rheumatology at the Walter Reed National Military Medical Center. He is a practicing physician and currently serves as a member of the Medical-Scientific Advisory Council of the Lupus Foundation, DC/MD/VA chapter.

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Product Details

  • Series: A Johns Hopkins Press Health Book
  • Paperback: 912 pages
  • Publisher: Johns Hopkins University Press; 1 edition (May 22, 2014)
  • Language: English
  • ISBN-10: 1421409844
  • ISBN-13: 978-1421409849
  • Product Dimensions: 7 x 1.5 x 10 inches
  • Shipping Weight: 3.4 pounds (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (64 customer reviews)
  • Amazon Best Sellers Rank: #35,092 in Books (See Top 100 in Books)

More About the Author

Donald E. Thomas, Jr. was born in Sidney, Ohio in 1961 and was raised in St. Marys, Ohio . He grew up in a hard working blue-collar family, wanting to become a doctor at a young age after witnessing first hand the struggles of illness in his family. Entering the U.S. Army allowed him to be the first person in his immediate family the opportunity to attend college. While in medical school at Baylor College of Medicine and during residency at Brooke Army Medical Center, he was sympathetic and drawn to the struggles of young people battling a mysterious disease called systemic lupus erythematosus. He witnessed their plight first hand and decided that was his calling. He entered the field of rheumatology and now dedicates his life to helping people afflicted with rheumatologic disorders, especially having a special interest in lupus. He has a busy clinical practice (www.arthritispainpg.com) and enjoys teaching patients, medical students, and other doctors about rheumatologic diseases and their treatments. He is active as an Assistant Professor of Medicine at the Uniformed Services University of the Health Sciences in Bethesda, MD and is currently Chair of the Medical Scientific and Advisory Committee of the Lupus Foundation of America DC/MD/VA chapter. The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families represents his desire to provide patients and their families one source that provides complete guidance in dealing with their illness and triumphing over it. His teaching style has always been to try to make things easy to understand and practical to his students, and this work is the final result of his many years of doing so in the field of lupus. HE INVITES EVERYONE AND ANYONE TO FOLLOW HIM AT www.facebook.com/LupusEncyclopedia WHERE HE WILL POST REGULAR FACTS/TIPS/INFORMATION ABOUT SLE AND ENCOURAGES ACTIVE COMMENTS, SUGGESTIONS, ADVICE AMONG FACEBOOK FOLLOWERS IN ORDER TO LEARN MORE ABOUT LUPUS AND TO SUPPORT EACH OTHER.

Customer Reviews

4.9 out of 5 stars
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Most Helpful Customer Reviews

17 of 17 people found the following review helpful By Julie D. Lillis on August 15, 2014
Format: Kindle Edition Verified Purchase
I have read just about every Lupus book out there--from memoir to treatise, from books aimed at neophytes to those targeted at the experienced patient. At this point I could probably write one of my own. But I keep reading rather compulsively, hoping to learn something new that will prove helpful. Usually this task proves rather Sisyphean.

But I struck gold when I read this book, far and away the most lucid treatment of the disease I have ever read. Anyone who has Lupus should read it, highlighting it as I did on my Kindle. Anyone who cares for, lives with, or loves someone with Lupus should read it. And (unlike other Lupus books) anyone who treats Lupus patients--as a physician or nurse--should also read it. It is jam-packed with tons and tons of very helpful advice and medical information.

However, if you do not have any biology background (as I do) you may find certain portions of the book a bit hard to understand. Just skip them. They are not important anyway. The advice sections, which are extensive beyond belief, do not require any knowledge of science and are very clearly written. I do like that Dr. Thomas has not watered down his book as other physicians do, and that he assumes that Lupus patients can choose to read those sections or not.

I hope he realizes that by writing this volume, he will empower the Lupus community (which is huge). Armed with an extraordinary amount of his medical advice--some of it granular and some, not--patients can go to their physicians to ask for critical lab tests and game changing medications. Many Lupus patients are not fortunate enough to have access to quality medical care, for one reason or another. This book may further propel them to be their own medical advocates, and substantially improve their health. It is a must-read.
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13 of 13 people found the following review helpful By Robyn Alt on July 13, 2014
Format: Paperback
Finally - a KNOWLEDGABLE, FACT filled book - in ordinary, everyday language !!
For anyone & everyone that may have an Auto-Immune Disease or Lupus (or knows someone that does) .
Dr. Donald Thomas explains things, so either a patient, family member, or any Medical Professional can learn & understand!!
THANK YOU Dr. T & God Bless!!! You are indeed a special, caring, knowledgable Doctor!!
Wish my 'Specialist' Doctor would read this... and learn... and pass it on to his patients!!
While the reader must engage in some 'bouncing around' the many chapters - all you need to do, is follow Dr. T's recommended 'usage' directions!
I would strongly advise anyone with this complicated disease, to buy this "Bible", to find your way through!!!!!
I have 'learned' more with this book - than over 5 years of lab tests & dozens of doctors visits!!
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11 of 11 people found the following review helpful By LupusAdventurer on June 20, 2014
Format: Hardcover
Lupus Book Review
By Lupus Adventurer

The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book) by Donald E. Thomas, Jr., M.D., FACP, FACR, was recently released. Within the astounding 43 chapters is an in-depth and exhaustive discussion of the many facets of lupus. This book is for lupus patients, but is not a quick read, but between two covers holds a broad library of balanced lupus topics that are worthy of investing some time and study.

There is so much in this book, but where should you start? Begin in the Preface, where Dr. Thomas sets forth seven specific steps a lupus patient may use right away to get the greatest benefits from his book:

1. Go to the 3 page Lupus Secrets Checklist in Chapter 44
2. Read the listed specific chapters Dr. Thomas recommends reading next
3. Get a copy of your medical records, notes, labs, x-rays, etc.
4. Skim interesting chapters to find and go back to spend more time on ones that apply most to you
5. Consult the Patient Resources at the end of the book
6. Visit Dr. Thomas' Facebook page and follow him on Twitter for current lupus news
7. Consider sending an email to Dr. Thomas with suggestions for future editions

After ferreting out reliable lupus information for more than twenty years since receiving a diagnosis in the early 1990s, it really seemed there were few sources of fresh information about Lupus, without going to books and references written for the medical community. This book provides an understandable reference resource appropriate for patients. Happily, there is great depth and much to learn from reading and referring to this important book!

Dr.
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8 of 8 people found the following review helpful By Stacey on July 9, 2014
Format: Paperback Verified Purchase
AWESOME, AWESOME BOOK!!! My husband and I each have our own bookmarks init as he reads anything that I put in front of him that has to do with my illnesses, medicines and treatments...I am straddling @ 35 meds/day and 10 auto-immune disorders. I also just ordered this book today for my Parents. EVERYONE with Lupus or any of the other many associated auto immune diseases / disorders should have to read and use as a reference. I brought into my Rheumatologist's when I went in for my Rituxan treatment. They LOVED it and were going to order 1 or 2 to have onsite for patients to use / read while they where there getting any of their numerous treatments. Also, this book is VERY inexpensive for being a 900 page book...unbelievable! I pre-ordered mine in February 2014 and finally received in June 2014...WELL WORTH THE WAIT!!!!!
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