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The Uncharted Path: My Journey with Late-Diagnosed Autism [Print] [Paperback]

Rachel B. Cohen-Rottenberg
4.9 out of 5 stars  See all reviews (15 customer reviews)


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Book Description

2010
Writer and artist Rachel Cohen-Rottenberg tells a powerful story of life, love, struggle, and joy as she discovers her place on the autism spectrum at the age of 50.

The author received her bachelor's and master's degrees in English from the University of California at Berkeley. After many busy years as a technical writer and a homeschooling mother, she now lives a quiet life in rural Vermont, where she writes and publishes the blogs Journeys with Autism (journeyswithautism.com), Sojourning in the Visual World (sojournerartist.com), and Autism and Empathy (autismandempathy.com).



Product Details

  • Paperback: 267 pages
  • Publisher: Rachel B. Cohen-Rottenberg; 1ST edition (2010)
  • Language: English
  • ISBN-10: 0984138803
  • ISBN-13: 978-0984138807
  • Product Dimensions: 8.9 x 6 x 0.8 inches
  • Shipping Weight: 1.2 pounds
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (15 customer reviews)
  • Amazon Best Sellers Rank: #1,542,248 in Books (See Top 100 in Books)

Customer Reviews

4.9 out of 5 stars
(15)
4.9 out of 5 stars
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Most Helpful Customer Reviews
7 of 7 people found the following review helpful
It is a pleasure to read Rachel's autobiography for what it is, a sensitive disclosure of her life and personal experiences, viewed through her unique lense as an individual. I believe that it is always tempting for those who are neurotypical to grasp at a kind of "branding" or seek to reinforce sweeping stereotypes in an attempt to understand the autistic mind. Unfortunately, some fictional film characterizations of autism have reflected this tendency to create caricatures that include every "symptom" and possible quirk listed in the woefully deficient DSM-IV, all rolled into one person. So, I really appreciate and rely upon the publication of frank, honest memoirs of autistic individuals to tell their own stories as individuals. As an autistic woman, this is especially important. But what is so wonderful about Rachel's book is that it never gives in to that American NT need for a cult of identity. She is able to speak for herself and others with autism by merely sharing the many parts of herself so generously.

Rachel's life story and developing sense of self-understanding is viewed through the lense of post-diagnostic reflection, but without bearing heavily upon her process of telling that story. That is the point. This is who she is, these are the events of her life, and this is her experience. Autism is who she is, and knowing that does not change what she has lived and experienced, but can offer a clear way of explaining where she is coming from to those who are not. She does so beautifully.

Her stories of her childhood, her family, marriages and career path are both moving and distressing. We can appreciate her viewpoint as an educated woman, a mother and a Jew. Her childhood memory of breaking her piggybank to try to "bribe" her mother to prevent physical abuse was heart-wrenching. It brought me to tears, no mean feat. As an autistic women, I was able to identify with many of her experiences such as sensory sensitivities, the spock-like analysis of human interactions, bullies and a preference for communicating through writing. But I was especially struck by the commonality of the experience of shunning, following the misunderstandings and projections of others.

Her book is filled with all of the color and wonder that make our detail-oriented lives such a blessing, and she is able to convey this in such a warm and positive way, recognizing the small joys life has to offer. Now part of a welcoming community and an active influence in autism self-advocacy efforts, she continues to express herself in ways that foster her creativity. The courage of her active disclosure is a tremendous benefit to those of us in the workforce who are still on the fence. My hope is that her book will help inform others in relationships or at work, to create a broader level of acceptance for neurodiversity. Rachel and her work have had a major impact upon my life, and I am truly grateful for her presence.
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5 of 5 people found the following review helpful
5.0 out of 5 stars An Autism Biography Focused upon Self-Acceptance. June 17, 2010
The uncharted path is an autism biography like none I've ever read. Unlike similar books, Rachel's main journey takes place during adulthood. The book certainly covers Rachel's childhood but it's clear that the main changes occurred much later in her life. This allows for much more mature reasoning processes and as a result, the decisions she makes carry greater significance.

More than any other book I've read, "The Uncharted Path" takes the reader out of their comfortable world and puts them right behind the eyeballs of a woman awakening to her place on the autism spectrum.

The book fleshes out many of the less obvious aspects of the female side of autism. In one section, there are somewhat ambiguous quotes from Professor Tony Attwood alongside real-world examples from Rachel's life. Rachel's examples make it easy to make sense of the more complicated and less documented aspects of autism.

In other sections, we see through Rachel's eyes as she goes about her day-to-day activities. We see the impact that autism has on each of these and the immense pressure on her to conform to neurotypical social norms. The uncharted path however is not about conformity; it's not even about wanting to conform.

Instead, Rachel opens her arms to the entire autism spectrum and embraces it in a way I've not seen before. It's common for people on the spectrum to embrace some of the high-functioning aspects while complaining about the worst of the side-effects. The uncharted path doesn't avoid these obstacles however, it meets them head on. It accepts them as part of the tapestry of autism. Even the side-effects have a part to play.

Following on from Rachel's acceptance are amazing stories of how she has been able to lessen the negative impact and reclaim her life without compromising her individuality. It's a very different type of reclamation that I'm used to hearing about. It's much more common for people on the spectrum to hide their differences and pretend to be normal in order to find social acceptance.

Rachel has already been there. In fact, she spent nearly fifty years pretending to be someone else. Her thoughts and resources explaining how this near-perfect camouflage broke down are astounding - and frightening. They've certainly led me to reconsider my own precarious existence. This leads us of course, directly back to "the uncharted path". Ultimately, it's the path of self-discovery.

I'd recommend "The Uncharted Path" to anyone on the spectrum, to anyone who has friends or relatives on the spectrum and to anyone who cares for people on the spectrum. Unlike authors of many "aspergers" books, Rachel covers the wider spectrum. Her writing is clear, concise and interesting and provides many astounding insights. Best of all, it's a book written straight from the heart.
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2 of 2 people found the following review helpful
5.0 out of 5 stars A Must For Late-Diagnosees January 31, 2011
Amazon Verified Purchase
When my own Asperger's diagnosis at age 34 sent me searching for others like me, I found Rachel's inspiring, moving and often funny blog. While I am still searching for the words to explain what it feels like to suddenly discover as an adult that I am Autistic, Rachel has found those words and shared them in this very personal book. Rachel provides an inside look at redefining the way we communicate with the neurotypical world and learning to self-advocate. If you're recently diagnosed, or know someone who is, or suspect you are or do -- read this book instead of (or in addition to) the clinical analysis written by the "experts" who have studied Autism rather than living with it.
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Most Recent Customer Reviews
5.0 out of 5 stars An Insightful Gem
Rachel's book is an insightful gem that gives us glimpses into her life from early childhood to adulthood showing decades of struggles before she is diagnosed. Read more
Published on March 7, 2011 by D. S. Walker
5.0 out of 5 stars Autism Like I Had Never Understood Before
I first started to read Rachel Cohen-Rottenberg's writings because I am an old friend of hers and after many years of not seeing each other, I found out through Facebook that she... Read more
Published on November 21, 2010 by Isabel Espinal
4.0 out of 5 stars An informative look at High Functioning Autism diagnosed late in life
"The Uncharted Spectrum" was a book I couldn't wait to read and it didn't disappoint. I read it all at one sitting voraciously. Read more
Published on November 1, 2010 by E. Stockdale Wolfe
5.0 out of 5 stars A Beautiful and Important Book
In her beautifully written book, The Uncharted Path, Rachel Cohen-Rottenberg gives us insight into what life is like living on the Autistic Spectrum. Read more
Published on October 12, 2010 by Joseph Mazur
5.0 out of 5 stars Such an important read!
I have read several books about Asperger's Disorder and they were very clinical and factual. Rachel's book has gone beyond that and helped me see the personal side of the story -... Read more
Published on September 20, 2010 by C. Belliveau
5.0 out of 5 stars A Compelling Memoir
The book is more than the simple retelling of a woman's life. Rachel artfully takes the reader back in time and re-examines her life with the new found knowledge that she has... Read more
Published on September 2, 2010 by Laura
5.0 out of 5 stars Insightful & positive!
I recently read this book as part of my ongoing exploration into autism and, I have to say, it was a refreshing read. Read more
Published on August 29, 2010 by Jayneth
5.0 out of 5 stars an insider's look into the world of a late-diagnosed autistic woman
A thoughtful and touching insider's view into autism. Rachel writes with courage and candor about her experiences in an effort to keep other people with autism from feeling alone,... Read more
Published on August 9, 2010 by Ben Stansfield
5.0 out of 5 stars A Remarkable Journey
Rachel Cohen-Rottenberg has written a moving and informative autobiography about life with late diagnosed autism. Read more
Published on July 23, 2010 by Evan Lowenthal
5.0 out of 5 stars the uncharted path
there are so many deeply familiar moments in this book. if you're on the spectrum---if you love someone on the spectrum---i'd definitely recommend you read this. Read more
Published on July 21, 2010 by bluedancer
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