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''As a mother of a child with special needs, I know the feeling of being alone and lost. Uncommon Beauty offers readers a helping hand while navigating through times of uncertainty.''--Alysia Hanson, RN
''Margaret Meder provides guidance and information to help parents cope and move forward, making the best decisions possible to care for their medically fragile children, their families, and themselves. . . . Uncommon Beauty touches the soul and nourishes the spirit.''--Deborah Segersten, MSN, RN clinical nurse manager, Trauma and Trauma/Surgical IMC, UWHC Madison WI
''While advocating for her child and maneuvering through complex healthcare systems, Margaret Meder learned many lessons. She shares them here and provides concrete suggestions to help other parents cope with the emotional, psychosocial, and financial challenges of caring for a child with special healthcare needs, providing insights that only a parent who has walked that path could offer.''--Barbara J. Byrne, DNP, RN, PNP-BC, director of Pediatric Nursing and Clinical Services, American Family Children's Hospital
''This wise and beautifully written book provides a practical roadmap for parents navigating the first few years of 'crisis parenting' with a medically fragile child. I recommend Uncommon Beauty to parents, caregivers, healthcare professionals, and anyone interested in a story of courage, strength, and amazing resilience.'' -- --Erica Serlin, PhD, Family Therapy Center of Madison, Adjunct Clinical Faculty-Department of Psychiatry and Psychology, University of Wisconsin Madison
Discovering a void in practical resources on how to survive as a parent of a medically fragile child, Margaret combined her education skills, her love of writing, and her own experiences to create this resource. Her mission is to create accessible resources that provide information, understanding, and inspiration for all parents who find themselves in similar situations. While raising her two children, Margaret pursues the joys in her life: writing, gardening, singing, playing the piano, and--most of all--spending time with her family and friends.
Helpful advice for parents suddenly ambushed by the medical and health challenges of a newborn with disabilities of any kind. Practical and down-to-earth survival tips.Published 3 months ago by KEN SMITH
I know the author and she is a fantastic, talented and special person. Be sure to read this book. It will move you!Published 11 months ago by Crispy
This book had me smiling and crying, sometimes on the same page. The strength she imparts to other parents is amazing. Read morePublished on May 22, 2013 by Mom of 5 kids
I so wish thia book would have been available when my daughter was born. The information in this book is invaluable to help navigate the system...
a must read.
Definitely a tearjerker, but in a good way. This reminds me that some amazing people do live in this world and in their struggle beauty just naturally develops. A great read!Published on October 30, 2012 by Iheartcycling
What a great book.I found the content very interesting both as a parent and as a health care provider(Chiropractor). Read morePublished on October 29, 2012 by James L. Carey