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Uncommon Beauty - Crisis Parenting from Day One Paperback


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Product Details

  • Paperback: 190 pages
  • Publisher: Beaver's Pond Press; 1 edition (August 1, 2012)
  • Language: English
  • ISBN-10: 1592984878
  • ISBN-13: 978-1592984879
  • Product Dimensions: 8.4 x 5.4 x 0.5 inches
  • Shipping Weight: 6.4 ounces (View shipping rates and policies)
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (12 customer reviews)
  • Amazon Best Sellers Rank: #384,110 in Books (See Top 100 in Books)

Editorial Reviews

Review

''I planned to read a chapter at bedtime but simply could not stop until I had finished Uncommon Beauty. All readers will learn how to lead more joyful, meaningful lives through Meder's wise and insightful words. Her courageous and caring book is a treasure.''--Joan Laffey, author of Saving Grace

''As a mother of a child with special needs, I know the feeling of being alone and lost. Uncommon Beauty offers readers a helping hand while navigating through times of uncertainty.''--Alysia Hanson, RN

''Margaret Meder provides guidance and information to help parents cope and move forward, making the best decisions possible to care for their medically fragile children, their families, and themselves. . . . Uncommon Beauty touches the soul and nourishes the spirit.''--Deborah Segersten, MSN, RN clinical nurse manager, Trauma and Trauma/Surgical IMC, UWHC Madison WI

''While advocating for her child and maneuvering through complex healthcare systems, Margaret Meder learned many lessons. She shares them here and provides concrete suggestions to help other parents cope with the emotional, psychosocial, and financial challenges of caring for a child with special healthcare needs, providing insights that only a parent who has walked that path could offer.''--Barbara J. Byrne, DNP, RN, PNP-BC, director of Pediatric Nursing and Clinical Services, American Family Children's Hospital

''This wise and beautifully written book provides a practical roadmap for parents navigating the first few years of 'crisis parenting' with a medically fragile child. I recommend Uncommon Beauty to parents, caregivers, healthcare professionals, and anyone interested in a story of courage, strength, and amazing resilience.'' -- --Erica Serlin, PhD, Family Therapy Center of Madison, Adjunct Clinical Faculty-Department of Psychiatry and Psychology, University of Wisconsin Madison

About the Author

Margaret Meder grew up in Madison, Wisconsin. She attended the University of Wisconsin-Madison, earning a bachelor of music degree in 1990. She spent the next sixteen years teaching general and vocal music in the public schools and private lessons. During this time she worked with young children, teenagers, and individuals with special needs. Expanding on these experiences as an educator and musician, Margaret served three years as development director for a nonprofit fine arts organization.

Discovering a void in practical resources on how to survive as a parent of a medically fragile child, Margaret combined her education skills, her love of writing, and her own experiences to create this resource. Her mission is to create accessible resources that provide information, understanding, and inspiration for all parents who find themselves in similar situations. While raising her two children, Margaret pursues the joys in her life: writing, gardening, singing, playing the piano, and--most of all--spending time with her family and friends.


More About the Author

Margaret grew up in Madison, WI. She attended the University of Wisconsin-Madison, earning a bachelor of music degree in 1990. She spent the next sixteen years teaching general and vocal music in the public schools and teaching lessons privately. During this time she worked with young children, teen-agers, and individuals with special needs. Expanding on her skills as an educator and musician, Margaret then served three years as development director for a non-profit fine arts organization.

Discovering a void in practical resources on how to survive as a parent of a medically fragile child, she has combined her education skills, her love of writing, and her own experiences to create the book Uncommon Beauty - Crisis Parenting From Day One. Taking time now to raise her two young children, Margaret pursues the joy in her life: writing, advocating for families caring for children with special healthcare needs, gardening, singing, playing the piano, and -most of all - spending time with family and friends.

Customer Reviews

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Definitely a tearjerker, but in a good way.
Reader
This book is a must-read not only for parents of special needs children, but for anyone who knows and loves a child who faces unique challenges in life.
Catherine
Margaret's honesty and practical advice are so helpful.
Nick

Most Helpful Customer Reviews

2 of 2 people found the following review helpful By Nancy on August 20, 2012
Format: Paperback
Uncommon Beauty Crisis Parenting from Day One is a must read for any parent. The advice in this book not only speaks to parents with a medically fragile child but it could also speak to anyone in a crisis situation. Maybe you are a parent whose child has been involved in a serious accident or someone in your family becomes suddenly ill with a serious medical issue. This book is for you too.

Margaret speaks of how to navigate through the medical and insurance system, how to care for your loved one and the rest of your family; all while still not forgetting to take care of yourself.

The book is easy to read and is truly a story of courage and strength that anyone can learn from.
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By Mom of 5 kids on May 22, 2013
Format: Paperback
This book had me smiling and crying, sometimes on the same page. The strength she imparts to other parents is amazing. The story is even more poignant now that her precious son has earned his angel wings from complications after a facial surgery. Fly High Evan and many thanks to your mom for letting us learn from your beautiful journey.
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By Marta Stumbras on January 13, 2013
Format: Paperback
I was emotionally bound to this beautifully written book outlining the journey that began with the birth of Evan, a truly extraordinary child. Margaret Meder has enlightened all of us, including those of us working with children who have special needs, of the crises confronted by parents following the birth of a medically fragile child. She offers information and advice on how to cope with the emotional challenges and decision making through heartfelt personal experience. This book will not only help parents in similar situations, but is also an eye opener for family, friends and caregivers.
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Format: Paperback
I wish that I had had copies of this book to hand out to the parents of all our patients decades ago when I was working in a NICU. Although it was written for those living the crisis-prone life of parenting a medically fragile child, everyone can learn something they can use in times of crisis in their own lives from reading this story of courage, strength and resilience. After reading this book, my husband (who had had a difficult time in the hospital after surgery a few years ago) remarked, "This will really help me to do a much better job of communicating with my doctors and nurses when I am in the hospital!"
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By Nick on December 22, 2012
Format: Paperback
Margaret Meder has a way with words. She grabs you from the beginning. Her stories are so heartfelt I found myself both laughing and crying throughout this book. Margaret's honesty and practical advice are so helpful. You will feel like you have a sister or best friend guiding you along. This book is a wonderful gift for any parent, doctor, teacher, grandparent.....anyone who works with children. It is an enjoyable read whether you digest it just a chapter at a time or all in one sitting. Highly recommended!
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Format: Paperback
I so wish thia book would have been available when my daughter was born. The information in this book is invaluable to help navigate the system...
a must read.
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