What If It's Not Alzheimer's?: A Caregiver's Guide to Dementia (Updated & Revised) [Paperback]

Lisa Radin (Editor), Gary Radin (Editor), John Q., M.D. Trojanowski (Foreword)

Book Description

Publication Date: March 27, 2008

This book includes vital information on Frontotemporal Dementia (FTD). Foreword is given by John Q Trojanowski, MD, PhD, Director, Alzheimer's Disease Center, University of Pennsylvania Hospital. Although the public most often associates dementia with Alzheimer's disease, the medical profession now distinguishes various types of 'other' dementias. This book is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialisation, adapting the home environment, and behavioural issues. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private resources and legal options. This newly revised edition follows recent world-wide collaboration in research and provides the most current medical information available, a better understanding of the different classifications of FTD, and more clarity regarding the role of genetics. A completely new chapter 5 enlightens the reader about the various drugs that are now being used with FTD patients and also delves into a number of non-medical options. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal dementia.

Editorial Reviews

Review

"...an updated handbook packed from cover to cover with tips and information for caregivers and sufferers alike." -- Bookwatch, March 2004 --This text refers to an alternate Paperback edition.

About the Author

Lisa Radin (Blackwood, NJ) and her son, Gary Radin (Philadelphia, PA), provided complete in-home care for husband and father Neil Radin over a four-year period. In 1998, they established the Neil L. Radin Caregivers Relief Foundation. They are both support-group facilitators and have been involved in planning and coordinating FTD caregiver conferences, most recently in June 2007.

Product Details

• Paperback: 360 pages
• Publisher: Prometheus Books; Revised edition (March 27, 2008)
• Language: English
• ISBN-10: 1591025842
• ISBN-13: 978-1591025849
• Product Dimensions: 8.9 x 6.3 x 0.8 inches
• Shipping Weight: 1 pounds (View shipping rates and policies)
• Average Customer Review: 4.7 out of 5 stars  See all reviews (15 customer reviews)
• Amazon Best Sellers Rank: #68,296 in Books (See Top 100 in Books)
  • #48 in Books > Health, Fitness & Dieting > Disorders & Diseases > Nervous System

Customer Reviews

Most Helpful Customer Reviews

59 of 60 people found the following review helpful:

5.0 out of 5 stars A Caregiver's Dream!, October 21, 2003

By A Customer

This review is from: What If It's Not Alzheimer's: A Caregiver's Guide to Dementia (Paperback)

After a long struggle to find information on frontotemporal dementia-FTD and Pick's disease, I can finally get answers to my questions and the specific information we have always needed. It takes so much time to care for someone, never mind taking time to search for helpful facts. Its appears that this book has covered it all. The expansive contents makes it very simple to find a subject without reading the entire book. There is a lot of great information, well organized by topics that allows you to read what is important in a fairly quick way. There are several idea lists and tables that privide solutions to problems or detailed info to help with daily activities. There are also good explanations of the different types of dementia, which can be very confusing. Also, there are some chapters that tell you what to think about and where to go for financial and legal matters. At the end of the book is a list of resources for different things one needs in daily caregiving. It seems that the many different writers of this book have excellent experience and knowledge of the subject. I highly recommend this book for people who are caregivers, but also to doctors and health professionals who still have so much to learn.

31 of 31 people found the following review helpful:

5.0 out of 5 stars Dementia other than Alzheimer's, March 24, 2007

By 

Steven Clair Barker "LearnLearnLearn" (San Diego, CA. USA) - See all my reviews
(REAL NAME)   

This review is from: What If It's Not Alzheimer's: A Caregiver's Guide to Dementia (Paperback)

I wish I had found this book over a year ago. Statistically the largest portion of people diagnosed with dementia are diagnosed with Alzheimer's Disease. The sad truth is that many people diagnosed as having Alzheimer's are mis-diagnosed and don't have Alzheimer's but some other form of dementia. Dementia is not a disease itself but a symptom of something else going on. Just like pain is not a disease but caused by other things. Many things can and do cause dementia: brain tumors, metabolic conditons, trauma, fluid on the brain, nutritional issues, alzheimer's, frontotemporal lobe, lewy bodies and on.

This book talks about other causes of dementia besides Alzheimer's. It focuses more heavily on Frontotemporal Dementia or FTD. There is growing evidence that a large percentage of people diagnosed with Alzheimer's actually have had or do have FTD. This was the case with my mother. So what's the big deal? Both kinds of dementia are debilitating and have no cure right? Well the big deal is when someone has Alzheimer's they can give them medicine that helps maintain memory for about 12-18 longer than without the meds. With FTD if you give that person the Alzheimer's meds because of a mis-diagonosis it can cause severe behavior problems. There is nothing you can give for FTD. I personally witnessed this problem with my mother after being put on an anti-Alzheimer's med. She had to be taken off of it since it caused some severe psychotic behavior. Had I or the doctor at the time know more about FTD there would not have been a false diagnosis of Alzheimer's. Why? It really is not that hard to make a proper diagnosis of FTD if you know and the doctor know what to look for. FTD begins with behavior issues and then comes memory impairment where Alheimer's begins with memory impairment. Plus Alzheimer's tend to affect the Parietal and Temporal lobes of the brain first and FTD starts with the frontal and temporal lobes first. Over time however it is not easy to tell the difference. The best thing when in doubt is knowing the patients background and detailed history, neuropsych testing and a CT or MRI scan to look for where the shrinkage is taking place in the brain first.

Again this book is a great resource and help to anyone wanting more info on dementia and specifically if you wonder is it really Alzheimer's. It is the only book like it out there and it is not just fluff. It is also highly recommended by the Association of Frontotemporal Dementia out of the University of Pennsylvania in Philadelphia. All thumbs up on this one.

19 of 20 people found the following review helpful:

5.0 out of 5 stars One of my "Must" readings for caregivers, April 15, 2006

By 

Robert Tell (Farmington Hills, Michigan) - See all my reviews
(REAL NAME)   

This review is from: What If It's Not Alzheimer's: A Caregiver's Guide to Dementia (Paperback)

"What If It's Not Alzheimer's" will help all caregivers to cope with the loss of their loved ones as cognitively sound individuals. Whether Alzheimer's, multi-infarct, Parkinson's, FTD, or any of the dozens of other dementias, the perpetual grief and mourning felt by the caregivers will be the same. Dementia is a disease that knows no boundaries. It is blind to the categories in which we usually place our fellow human beings. It can occur at the age of 55 or 85. It can happen to Blacks, Whites, Hispanics, Asians, Jews, Christians, Muslims, males and females, rich and poor. It has not spared ex-presidents. Tears are shed by husbands and wives, sons and daughters, brothers and sisters-in fact anyone responsible for the care of a loved one with dementia. I speak from personal experience. Dementia did not spare my mother whose 15 year journey into the opaque fog of multi-infarct dementia is told in my own recently published memoir. I recommend "What If It's Not Alzheimer's" to anyone whose loved one is experiencing this terrible disease.

Robert Tell, Author of "DEMENTIA DIARY, A Care Giver's Journal"