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What's the Deal with Caregiving? Paperback – October 14, 2015
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Top Customer Reviews
A good book that fills a gap in the current caregiving literature. Good common sense and voice of experience, not bogged down with the details of personal physical caregiving. A perspective that is difficult to acquire while one is "doing it."
What legal protections you and the Caree (a word I hate, but haven’t come up with a better one except “patient”-- which certain folks in the caregiving community dislike) require, what kinds of support you both will need and how to go about finding the resources that will be required.
The tone is conversational, like that of a kindly uncle who has been through it, advising a friend or relative who is now in a caregiving role—usually without notice, without training, without wishing to be. How this person will have to function as a coordinator of care among all disciplines--a communications link to all concerned. Written in a clear and direct style based on the author’s personal experience. Practical advice, much of which is focused on creating the attitude which will be of most use to the caregiver, where self-care is vital, with a good list of resources.
What’s the Deal with Caregiving? by Chris MacLellan is a guide to helping you get through it. He writes, “Often you have to give up things you love in order to care for the one you love.”
Full disclosure: Chris is a friend of mine. I know him to be a man of great empathy and compassion, and I know his mission is to relieve suffering for others who find themselves in this situation. He writes from both a professional and a personal knowledge. Chris lightens the burden of care-taking by making lists of things to know and to do. For example, he lists “the activities of daily living” that help you decide when independence is no longer possible and that insurers will use to determine when additional services will be paid for.
Chris encourages you to have a discussion with the “caree” about the most crucial questions as health worsens such as resuscitation, mechanical ventilation, feeding tubes and antibiotics. He lets you know that having the discussion is more vital than the list of questions so that when you become the decision-maker you will know what’s most important to your loved one.
One of the most important parts of this book is Chris’s emphasis on creating a team. Chris suggests that you make a list of the caree’s needs and another of the resources available to meet those needs.Read more ›
Important information about the legal standing of the partner, and the intricacies of planning well in advance of the loss of the person.
Ok, now to my slightly longer review. In a word - AMAZING!! This book is a resource encyclopedia, a checklist, a how to and a hands on guide all in one.
Most of all - this is a book is inspiring!! It is obvious after the first few pages that this book was written by someone who truly, truly cared for his partner with Cancer. You can literally see the author's blood, sweat and tears on each page. It is a primer for anyone who is caring for a loved one.
The book is not a how to be a caregiver kind of book. It is much more. It takes you through each and every step of the caring process - telling you want you need to do, what to avoid and covers topics that if you do not do them right the first time - you can never go back - like a POA and a Will
There are many really great book for caregivers out there - you can read my reviews of the other books if you want. My point is that What's the Deal With Caregiving is a must read! It complements the other great books out there and it covers material and topics that the other great books do not.
I highly recommend this book - it is a MUST READ for any caregiver .
Most Recent Customer Reviews
Well done! Being a caregiver for my parents and In laws I had to deal with a lot of issues you addressed. I recommend your book to every caregiver out there. Keep up the good work. Read morePublished 1 month ago by Gae Faraone
I work in Aftercare for families who have recently lost a family member. Often, there is a remaining elderly spouse who is also being cared for, and the families are struggling... Read morePublished 1 month ago by Amazon Customer
Chris MacLellan has done a superb job of capturing the heart and soul of a caregiver. He has lived and breathed it. So have I, so I know how sage his advice is. Read morePublished 2 months ago by Strategic Communicator
Chris MacClellan has written an informative yet warmly caring book on the subject. He has covered the emotional and the medical concisely and carefully. Read morePublished 6 months ago by Harriet Goodstone
Invaluable, entertaining, informative. A book for all who think about taking care of a loved one. We never think about being a caregiver but most of us will end up as a caregiver... Read morePublished 6 months ago by Tom H.
When someone you love becomes sick with a terminal illness it’s shocking, scary and disorienting. If and when you become a caregiver for that person it can become terrifying. Why? Read morePublished 6 months ago by IJ Woods
Chris..First of all I would like to thank you for writing this wonderful book..I am a caregiver,And while reading it ,It was like reading about my own life.. Read morePublished 7 months ago by Mike