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When Illness Goes Public: Celebrity Patients and How We Look at Medicine
 
 
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When Illness Goes Public: Celebrity Patients and How We Look at Medicine [Hardcover]

Barron H. Lerner (Author)
4.8 out of 5 stars  See all reviews (6 customer reviews)

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Book Description

0801884624 978-0801884627 November 20, 2006 1

Steve McQueen had cancer and was keeping it secret. Then the media found out, and soon all of America knew. McQueen’s high profile changed forever the way the public perceived a dreaded disease.

In When Illness Goes Public, Barron H. Lerner describes the evolution of celebrities' illnesses from private matters to stories of great public interest. Famous people who have become symbols of illness include Lou Gehrig, the first "celebrity patient"; Rita Hayworth, whose Alzheimer disease went undiagnosed for years; and Arthur Ashe, who courageously went public with his AIDS diagnosis before the media could reveal his secret. And then there are private citizens like Barney Clark, the first recipient of a permanent artificial heart, and Lorenzo Odone, whose neurological disorder became the subject of a Hollywood film.

While celebrity illnesses have helped to inform patients about treatment options, ethical controversies, and scientific proof, the stories surrounding these illnesses have also assumed mythical characteristics that may be misleading. Marrying great storytelling to an exploration of the intersection of science, journalism, fame, and legend, this book is a groundbreaking contribution to our understanding of health and illness.

(2007)
--This text refers to the Paperback edition.

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Customers buy this book with Medicine's Moving Pictures: Medicine, Health, and Bodies in American Film and Television (Rochester Studies in Medical History) $34.95

When Illness Goes Public: Celebrity Patients and How We Look at Medicine + Medicine's Moving Pictures: Medicine, Health, and Bodies in American Film and Television (Rochester Studies in Medical History)


Editorial Reviews

From Booklist

Today it's commonplace for Carnie Wilson to chat about her gastric bypass surgery on talk shows or Sally Field to hype a drug by talking about her osteoporosis. Celebrities yapping about what ails them wasn't always common, however, and Lerner believes that its prevalence now indicates cultural changes worth noting. Celebs have come to receive groundbreaking interventions previously -unknown to the general public, whether those consist of antibiotics, as in the case of Franklin Roosevelt Jr., or technological inventions, such as Barney Clark's artificial heart, and to introduce them to the general public, causing thousands to then seek the new treatment. They also create connections to fellow sufferers who identify with and may be inspired by how a celebrity handles the same affliction. Benefits aside, Lerner cautions that there can be considerable drawbacks. After actor Steve McQueen chose alternative cancer treatments in Mexico, thousands flocked over the border seeking similar therapies and encountered similar failure. Others whose stories Lerner retells for his insightful analysis include athletes Jim Piersall and Arthur Ashe. Donna Chavez
Copyright © American Library Association. All rights reserved

Review

In dissecting the illnesses of these famous people, Dr. Lerner brilliantly separates science from the mythologized, bravely battling celebrity. Riveting reading.

(Lynn Redgrave and Annabel Clark, authors of Journal: A Mother and Daughter's Recovery from Breast Cancer 2007)

It's odd: When a celebrity falls ill, the illness becomes a celebrity, and public life democratized is made generally useful. Barron Lerner has created a fascinating book of this original observation.

(Roger Rosenblatt 2007)

Celebrities yapping about what ails them wasn't always common, however, and Lerner believes that its prevalence now indicates cultural changes worth noting... Insightful analysis.

(Booklist 2007)

A readable and thoroughly researched book. (Rated four stars: Excellent)

(British Medical Journal 2007)

Lerner has created a powerful prism through his thoughtful exploration of celebrity illness, highlighting societal and cultural forces that widely affect public and private health care decisions... Lerner's skills are superbly demonstrated in detailing complicated stories... fascinating analysis.

(JAMA 2008)

Lerner offers a superb volume rich with thorough and entertaining recollections and other information not previously in the public domain... A clear, concise, and captivating treatise that holds the interest of lay readers and yet illuminates for medical professionals issues that are important to the individual patient as well as the scientific community.

(Journal of Clinical Investigation 2007)

Lerner has done a beautiful job of tracing the degree to which celebrity patients have reflected and shaped the modern American understanding of doctors, patients, and illness. This book is a pleasure to read because of its compelling storytelling and analysis.

(New England Journal of Medicine 2007)

Physician and associate professor Lerner is blessed with the ability to research widely and write lucidly... Well documented and indexed, this highly readable book deserves a broad audience.

(Choice 2008)

Interesting book, and the writing is sprightly.

(Roxanna Stein RALPH: Review of Arts, Literature, Philosophy, and the Humanities 2008)

Engaging and intriguing... Can be enjoyed by a broad public interested in the modern intertwining of the concerns of celebrity and health.

(Steven Epstein Isis 2008)

When Illness Goes Public says much about the development of ideas of illness in American culture.

(Jasmine Gartner Social History of Medicine 2009)

Compelling... We can learn quite a bit about our society, culture, and values from the way celebrities' illnesses are publicly portrayed. As Lerner perceptively demonstrates, descriptions of illness and death ultimately have as much to do with how people want to imagine these experiences as with actual events... Lerner is at his best when he uses his considerable narrative skills to place these stories into their broader historical, cultural and ethical contexts.

(Michael J. Green American Journal of Bioethics 2011)

In Lerner’s capable hands, these dozen stories in their retelling are both colorfully dramatic narratives, ripped from the headlines (as the saying now goes) and also probing samples of historically specific contingencies and shifting attitudes.

(Chris Feudtner Bulletin of the History of Medicine )

These 12 stories... delight and instruct readers about our own health and eventual mortality, and these are important things to know.

(John C. Bailar, III Perspectives in Biology and Medicine )

Well-written, professionally documented.

(Robert S. Robins Journal of American History )

A major contribution to our understanding of health and illness.

(Abstracts of Public Administration, Development and Environment )

When Illness Goes Public: Celebrity Patients and How We Look at Medicine includes a great many references and keeps the reader engaged and entertained. This easily readable book will satisfy any reader's desire to learn more about famous people who have made a difference in how medicine and disease is handled in the U.S.... A great read.

(Fahmida Hussain Journal of Health Care for the Poor and Underserved )

Product Details

  • Reading level: Ages 18 and up
  • Hardcover: 352 pages
  • Publisher: The Johns Hopkins University Press; 1 edition (November 20, 2006)
  • Language: English
  • ISBN-10: 0801884624
  • ISBN-13: 978-0801884627
  • Product Dimensions: 9.1 x 6.2 x 1.2 inches
  • Shipping Weight: 1.3 pounds (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (6 customer reviews)
  • Amazon Best Sellers Rank: #619,754 in Books (See Top 100 in Books)

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Customer Reviews

6 Reviews
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Average Customer Review
4.8 out of 5 stars (6 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

5 of 5 people found the following review helpful:
5.0 out of 5 stars Lerner Writes Another Winner, November 22, 2006
By 
Lewis P. Rowland MD (New York, NY United States) - See all my reviews
(REAL NAME)   
This review is from: When Illness Goes Public: Celebrity Patients and How We Look at Medicine (Hardcover)
Barron Lerner uses 12 case histories to tell how public attitudes affected medicine. When Lou Gehrig developed the lethal ALS, his doctors "protected" him by never telling him the diagnosis or what was going to happen to him. 20 years later the renowned LIFE photographer was diagnosed with Parkinson disease but did not know for 2 years because the information was witheld from her. As the years went by, however, celebrity patients became advocates for research and patient care on behalf of other people with the disease. Some, like Gehrig and Bourke-White were already celebrities when they became ill. Other's became celebrities by virtue of the illness, including Lorenzo Odone (of the film "Lorenzo's Oil"). By pulicizing the long hours of hospital call for sleep-deprived doctors-in-training, the case of Libby Zion changed residency training throough the US. Lerner is a master story teller, and shows how the cases changed the public from subservience to independence and activism.
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4 of 4 people found the following review helpful:
5.0 out of 5 stars Diseases of the rich and famous, December 9, 2006
By 
This review is from: When Illness Goes Public: Celebrity Patients and How We Look at Medicine (Hardcover)
In a culture where movie stars and politicians post their drug rehabilitation schedules online, we have almost completely forgotten that until a short while ago many diseases were not discussed in public, even by the most celebrated citizens. Barron Lerner's new book reminds us that the tell--all habits of the rich and famous are a recent development, and we learn how the process started to open up more than sixty-five years ago with baseball star Lou Gehrig. It took an announcement that the Gerhig had a rare disease to explain how his legendary streak of consecutive games was broken. Now many people who never went to a baseball game know "Lou Gerhig's disease" because of Yankee Iron Man's willingness to go public. Lerner is unusual, since he was trained as a both an historian and a physican, and that makes this book even more rare: an extremely readable piece of medical history written clearly enough to be of interest--not just to doctors and academics, but to just about anyone who has an interest in Lerner's cast of characters and the maladies they endured.

One of my favorites in the book is Jimmy Pearsall, another man who became a baseball legend, less for his athletic performances than his bizarre antics between plays and off the field. Lerner explains how bipolar disorder was Pearsall's demon. Another completely new story involves the experimental treatment for Parkinson's disease the famous photographer Margaret Bourke White pursued. Arthur Ashe's AIDS, Steve McQueen's cancer and Rita Hayworth's Alzheimers all take up chapters in this book, which is like all of Lerner's work, painstakingly researched and engagingly written. The celebrities in this book are fortunate to have someone of Lerner's skill and compassion tell the stories of their illness.
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2 of 2 people found the following review helpful:
5.0 out of 5 stars Powerful, Riveting Stories About Celebrity Illnesses, January 11, 2007
This review is from: When Illness Goes Public: Celebrity Patients and How We Look at Medicine (Hardcover)
Dr. Lerner's book grabbed my attention right from the first pages about Lou Gehrig and lasted till the very last chapter. This is definitely not a book that should have a limited audience. I am not in the medical profession and was completely taken by Dr. Lerner's accounts of the histories of these public figures and their respective and varied illnesses. Although the book is written by a doctor, Dr. Lerner presents the facts in a completely unbiased manner, calling into question the conduct of all of the players in these stores - the doctors, the patients, their families, the press, the public, and more. Credit and criticism are given out as appropriate. The book reads seamlessly providing the reader with an incredible insight into the evolution of modern medicine and increased public access to the lives of the famous over the decades. Dr. Lerner is a brilliant writer and I highly recommend this book to anyone with an interest in history, medicine, media, pop culture or sports. I read the book on vacation and my 12 year old son and 15 year old daughter took turns reading portions of the book as well.
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