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Wide Awake and Dreaming: A Memoir of Narcolepsy Paperback – December 15, 2012

4.7 out of 5 stars 295 customer reviews

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Editorial Reviews

Review

Julie's memoir describes with eloquence the transformation of a life by narcolepsy, from dreams to nightmares. --Emmanuel Mignot, M.D. Ph.D. Director, Stanford University Center for Sleep Sciences

If you want to find out what it is like to have narcolepsy, you must read Wide Awake and Dreaming. Julie s memoir is so well written with such interesting and entertaining detail, honesty and openness. Julie describes her story so clearly as her story and yet, many people will recognize their own story in here. A wonderful recommended must read for everyone! Julie is a natural story teller. --Eveline Honig, M.D., M.P.H. Executive Director, Narcolepsy Network, Inc.

Julie shares her story brilliantly. She relates the details in such a way, that it is an easy read with snippets of humor added. This, I believe, makes her an ideal spokesperson for narcolepsy. Julie is all about helping others to empower themselves; to make their journey into the unknown a little less scary than it was for her. She uses her own life s experiences to teach us how to find humor, and hope, in our own health circumstances. Whether you have narcolepsy, or another condition, this is a must read book. --Michelle King Robson, Founder and Chairperson, EmpowHER

About the Author

Julie Flygare received her B.A. from Brown University and her J.D. from Boston College Law School. Her first book, Wide Awake and Dreaming describes her experiences with narcolepsy, from collapsing to the ground to running the Boston Marathon. It won the San Francisco Book Festival Award for Biography/Autobiography.  Diagnosed with narcolepsy in 2007, Julie has become a national narcolepsy spokesperson and advocate. Her dreams are studied in Harvard Medical School s curriculum. Her story has been featured by Marie Claire Magazine, ABC News, NBC News, Sirius XM Radio and Psychology Today.
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Product Details

  • Paperback: 213 pages
  • Publisher: Mill Pond Swan Publishing (December 15, 2012)
  • Language: English
  • ISBN-10: 0988314908
  • ISBN-13: 978-0988314900
  • Product Dimensions: 6 x 0.5 x 9 inches
  • Shipping Weight: 13.6 ounces (View shipping rates and policies)
  • Average Customer Review: 4.7 out of 5 stars  See all reviews (295 customer reviews)
  • Amazon Best Sellers Rank: #180,215 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

Format: Paperback
Julie's journey into the world of narcolepsy may be familiar to those with the condition, but her revelations about love and loss in the face of this challenging condition are a reminder that life can go on despite seemingly to have lost everything one aspired for. This book is honest and reflective, which helps to keep the reader engaged and Julie's detailed narration can keep the reader laughing or crying. Her story is the story of battling sleep and is familiar to PWN and their doctors and caregivers. Her story of picking up the peices of her shattered dreams of being a lawyer and not letting the narcolepsy beat her down is inspiring. She empowers herself with narcolepsy, which is a powerful lesson for those living with the condition.

I highly recommend this book.
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Format: Kindle Edition Verified Purchase
I, like so many people, didn't know anything about narcolepsy other than the casual references made tongue-in-cheek. I read the book on a whim because it was a free download on the Kindle. I am so glad I did! It truly opened my eyes to this life altering condition. It is an engaging story that will not only educate, but will inspire. Definitely recommend!
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I was able to follow Julie Flygare's book a lot better than medical journals about Narcolepsy. It has gone a long way to help educate relatives about the strange things they see. I sent out a group FB message. I hope they read it. I could not put it down. One of my triggers is reading. It must have been funny watching me on my tablet reading a few pages, sleeping, reading, sleeping........ Thank you Julie.
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Julie has a way of writing that is both engaging and informative. As I delved into the story, I realized that my perception of narcolepsy was totally incorrect. As a science teacher who is interested in medicine, I found the details of the symptoms, diagnosis, and treatment to be fascinating. As I read Julie's story, she impressed me with her determination to succeed and live a normal life in spite of tremendous difficulty. I enjoyed the first half of the book the most, as it taught me a lot about narcolepsy, but the second half, which details how she managed to train for and complete the Boston marathon was also inspiring. Julie's ambition is now to be a writer, and she is certainly successful with this book. Surprisingly, the book turned out to be personally helpful as well. When I told a dear friend (who lives many miles from me, so we rarely see each other) about this book, she informed me that she also has narcolepsy (but without cataplexy). Now I'm able to offer her support (though long distance). I was surpised at how many people actually have narcolepsy in some form, so this could turn out to be personally helpful to you also. This book is well worth reading.
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Julie Flygare has let us into her life to experience with her how narcolepsy can turn your organized planned life into chaos. She did an excellent job of describing some of the symptoms of narcolepsy that the general public know nothing of like hallucinations, cataplexy and sleep paralysis. The media portrays narcolepsy so often as a funny sleeping disorder where you fall asleep in your food. Julie was able to show you how narcolepsy is anything but funny and although very often invisible to others can be extremely disabling with no cure as of yet. Julie fought a great battle with her narcolepsy and completed quite a few life goals. Her story is not all of our stories but certainly illustrates how narcolepsy is not something you can just live with and ignore. It is a daily struggle to just be functional on some days. Thank you Julie Flygare for sharing a private part of you to help bring narcolepsy awareness to the public!
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Format: Kindle Edition Verified Purchase
This book is so well written, I couldn't put it down. I thought I knew what narcolepsy was, but I never knew what it was like to live with narcolepsy. The author shares detailed day to day experiences. Her determination is inspiring and her accomplishments are hard earned.
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I read this book in one sitting. Julie writes so eloquently about her experience with narcolepsy and cataplexy that you get to really understand the short-circuits of her neurology and how she faces them, mostly with grace and humor. Sometimes not so much, which is interesting too. (She comes up with some self-preservation skills for her mental health that are original!) Her perseverance and fortitude despite sometimes not being able to trust her own brain inspire. I wonder if Amazon will recognize the word 'cataplexy' after enough people review this book? You know it's a book that needed to be written when the defining symptom is so unusual that it's not even recognized by spell-checkers! Moving story, fascinating neurological disorder...I bet Oliver Sacks would like this book too.
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I have narcolepsy, and I loved Julie's book. She had me crying with understanding, laughing, and cheering her on. I'm so grateful that someone has finally written about this little understood disease that I have, and she did it so well! I want to buy this book and hand it out to everyone I know so that they might understand me better. The way she explained the disease had me giving her an imaginary high-five because it's right on. If you know, or are, someone with narcolepsy-then read this book. If you've never heard of narcolepsy then read this book because maybe you'll recognize the symptoms in someone you know. Or read it just to enjoy a beautifully written memoir.
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