...addresses a broad range of issues, including sexuality and reproduction; love,marriage, and relationships; bowel and bladder management; stress; and physical fitness...written by well- respected researchers and women with disabilities.
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Editorial Reviews
Review
An overall account of the special need of disabled women in our society, this book is a 'must read'... -- SCINursing
This book contains an abundance of information useful to women with physical disabilities... -- -Adapted Physical Activity Quarterly
This book contains an abundance of information useful to women with physical disabilities... -- -Adapted Physical Activity Quarterly
About the Author
Danuta M. Krotoski , Ph.D., is Chief of Basic Rehabilitation Medicine Research, Branch of the National Center for Medical Rehabilitation Research at the National Institute of Child Health and Human Development, National Institutes of Health, in Bethesda, Maryland.
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Most Helpful Customer Reviews
8 of 8 people found the following review helpful:
5.0 out of 5 stars
Important contribution to health of Woman with Disabilities,
By jik@pacbell.net (Los Angeles, California) - See all my reviews
This review is from: Women With Physical Disabilities: Achieving and Maintaining Health and Well-Being (Paperback)
This important new contribution to the field grew out of a 1994 conference sponsored by the National Center for Medical Rehabilitation Research, The Health of Women With Physical Disabilities: Setting a Research Agenda for the '90s. Women With Physical Disabilities exposes a diverse subject that, until now, has received little to no attention.The volume is unique in that it does not overmedicalize the issues. Rather, it concentrates on the point of view of women with physical disabilities. Many of its contributors are researchers, clinicians, and advocates with disabilities who are in charge of their lives and their bodies and who are active members of the research, health care, and disability communities. The book targets multiple audiences: women with disabilities, health providers, researchers, and families and friends of women with disabilities. Women with disabilities will identify with many of the described experiences, may find some new information and perspectives, and will have reinforced the need to move ahead with strong, loud, and continued advocacy for change. Health providers should benefit by an expansion of their clinical knowledge and by becoming aware of some of the practical and quality-of-life issues of concern to women with disabilities. Researchers will find new ways of analyzing the issues raised and new ideas for broadening the scope of their investigations to ensure that their research has practical applications. There are many important recommendations in the book for new research priorities. The 33 articles cover a range of topics, including an exposition on wellness in the context of disability, an overview of sociodemographics of women with disabilities, a look at the effect of combining disability status with cultural minority status, sexuality, reproduction, contraception, obstetrics, parenting, stress and its impact on physiology, approaches to stress management, bowel and bladder management, and exercise and nutrition programs to enhance physiological and psychological fitness. A few of the articles are technical, but most are easy to read. Carol J. Gill's "Becoming Visible: Personal Health Experiences of Women With Disabilities," eloquently explores experiences of oppression of women with disabilities. She establishes the importance of women protesting their invisibility in the health system in terms of treatment options and in the research that guides those treatments. The chapters on sexuality deal with what is known and not known about sexual response, reproductive health, pregnancy and delivery, as well as the psychosocial issues of sense of self, relationships, parenting, sexual orientation, abuse, gaining access to health care systems, and the politics surrounding the sexuality of women with disabilities. Sandra Welner's article addresses several critical issues, rarely discussed: the negative effects of taking estrogen and progesterone for women with certain disabilities, the effect of disability on the detection and treatment of sexually transmitted diseases, and the experience of menopause. Questions addressed are increasingly frequent topics of conversation among disabled women "boomers' " For example, as we age with disability and enter menopause, what will the effects be of many years of decreased weight bearing and limited participation in aerobic exercise? Are we more vulnerable to significant osteoporosis? What will the inevitable changes in tissue, strength, skin elasticity, reduced blood supply to the skin and soft tissue, and temperature sensitivity mean to us? Carol Gill's noteworthy essay on dating and relationship issues articulates common and painful difficulties encountered by many with disabilities in establishing intimate relationships. She explores issues around societal devaluation, physical and verbal abuse, family disapproval of relationships, and the practical and financial burdens placed on couples by misguided public policy. Harilyn Rousso's "Sexuality and a Positive Sense of Self " shares some good and bad news regarding adolescent girls with disabilities. The social scene is still difficult as girls continue to be excluded, rejected, and viewed as asexual based on the mythical standard of physical perfection. The good news is that today's girls are tougher, more self-confident, and more creative in dealing with negative assumptions about their social potential. These girls recognized, earlier than many of their older peers, that the source of oppression was outside themselves. The problem is societal prejudices, not their bodies or their abilities. Corbett O'Toole's "Disabled Lesbians: Challenging Monocultural Constructs" explores the barriers that disabled lesbians encounter both within the disabled women's community and the health care world. The "Stress and Well-Being" section treats a subject one doesn't see written about a great deal: stress related to dealing with disability. It explores the relationship between the physiological basis of the stress response and physical and emotional health and traditional approaches to stress, as well as new approaches to alleviating stress. This book does a great service in recording in one volume a representative sampling of what is known, but more important what is not known. Many of the articles leave the reader frustrated and wanting more data, information, and strategies. This work sounds a blaring alarm: "pay attention to these areas and devote greater resources to investigating many of the issues critical to women with disabilities' " If this is to happen, researchers, providers, and women with disabilities must join forces and be the sounders of the alarm, also. We must make our needs clearly, assertively, and repeatedly known in areas of essential services and resources, including education, prevention, research, and public policy change! We need to advocate for attention and solutions so our concerns and our urgency for these services and resources are not only understood but become a priority for many. So what do we want? We want these issues to get attention, and we want it now! Reviewed by June Isaacson Kailes, Disability Policy Consultant, author of "Health, Wellness and Aging with Disability," and "Be a Savvy Health Care Consumer, Your Life May Depend on it!" ||
3.0 out of 5 stars
Too Many Statistics,
Amazon Verified Purchase(What's this?)
This review is from: Women With Physical Disabilities: Achieving and Maintaining Health and Well-Being (Paperback)
I recently became disabled and I was hoping that this book would give me some tools or strategies to help me cope. I think it had been recommended on the Muscular Dystrophy Association website. Unfortunately it was mostly full of statistics and dry facts and I also hadn't remembered to check the publication date, most of the facts were taken from studies done in the 1980's and early 90's. The other issue was that there was alot of focus on women with spinal cord injuries which is a much more drastic disability then what I have. Some of it was interesting and informative however so I'm still glad I read it, mostly it's just that it wasn't what I was expecting so I was a little disappointed.
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