The Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery (Hardcover)

~ (Author), Patricia E. Bauer (Foreword)
Key Phrases: travel tank, silence button, dong dong dong, Thomas Soper, Silent Night, Perfect Spring (more...)

Editorial Reviews

Review

“The Year My Son And I Were Born is a deeply honest, extremely moving, and lovingly-written memoir that tells a story few books are willing to tell. Taking us through her first year as the mother of a child with Down Syndrome, Kathryn Soper shares the contradictory emotions, self-doubts, and even spiritual questions that many young parents experience during that time but rarely admit even to friends.  Along the way, her graceful, unsentimental, and gently humorous writing takes us through many struggles: navigating unfamiliar medical terrain, nurturing her six older children, keeping her marriage intact, and, above all else, accepting her son for who he is. In the end, she comes to see how to live life in a new way -- and so did I. I'm so glad Kathryn Soper had the courage to open her heart, mind, and spirit to readers. She has written a book that really matters.”

 —Rachel Simon, Author of Riding the Bus with My Sister

 

“Kathryn Soper's The Year My Son and I Were Born is a story of how sometimes life's lessons come at great personal cost—but that if we allow our hearts to open, even a mother's deepest despair can be transformed.”

 —Jennifer Graf Groneberg, author of Road Map to Holland: How I Found My Way Through My Son's First Two Years with Down Syndrome

 

 

“Kathryn Lynard Soper’s The Year My Son and I Were Born takes on, with grace, honesty and candor, a difficult subject:  what it means, in our culture of perfection, to become the mother of a disabled child.  From her son’s early, traumatic birth, to learning what it means to be the mother of a child with special needs, Soper’s journey with Thomas will appeal to not only readers who share similar experiences, but also to any reader who has found life can often turn out not to be as expected, or predicted—in other words, all readers.”
—Vicki Forman, author of This Lovely Life: A Memoir of Premature Motherhood

 

 

“Kathryn Lynard Soper is a wonderful writer.  Her prose is spare and achingly honest.  With her talent for to-the-bone expression, she has produced this remarkable memoir about the birth of her Down Syndrome son and the inevitable life changes he brought to her family—and to her own life.  It is at once heart-wrenching and redemptive, a memoir not just for someone dealing with a child’s disabilities (whatever they might be), but for anyone coping with a hard surprise. Soper is candid about the difficulty of embracing the unexpected, and leads her readers through the transcendent process of recognizing and loving the gift at the core of the challenge.

In one chapter, another of her children looks at his toy and asks, “When can I exchange my Transformer?” The baby of the Soper family, with his unique needs and difficulties, is their “transformer”—and not to be exchanged. This book is itself a sign of its author’s transformation, and will be a guide and a comfort for any reader.”

—Margaret Young, Creative Writing Instructor, Brigham Young University

 

In Praise of Gifts:

 

“This fine book helps dispel the fear and misinformation about Down syndrome that many parents and prospective parents face. As these deft essays convey, the world would be a sweeter place with more Down syndrome citizens, not fewer.”--George F. Will, Newsweek

“Gifts is honest and life affirming, a chorus of mothers proclaiming what every obstetrician and gynecologist should know--that life is a gift and an extra chromosome is not the end of the world.”--Beverly Beckham, Boston Globe

“Through Gifts we hear the powerful voices of mothers who said ‘yes’ when others might have been saying ‘no.’ These mothers take us on their journey filled with wonder, courage, and the belief that children with Down syndrome can and will succeed.”--Brian G. Skotko, M.D., M.P.P., Children's Hospital Boston and Boston Medical Center and author of Common Threads: Celebrating Life with Down Syndrome

"A beautiful book that provides insight into family life with Down syndrome; recommended for public libraries."--Library Journal Xpress Reviews

Product Description

A brutally honest yet beautiful journey of how one mother learned to bond with her disabled son and gained a new perspective on life.

See all Editorial Reviews

Product Details

• Hardcover: 336 pages
• Publisher: GPP Life; First edition (March 3, 2009)
• Language: English
• ISBN-10: 0762750618
• ISBN-13: 978-0762750610
• Product Dimensions: 8.6 x 5.6 x 1.2 inches
• Shipping Weight: 1.1 pounds (View shipping rates and policies)
• Average Customer Review: 4.8 out of 5 stars  See all reviews (16 customer reviews)
• Amazon.com Sales Rank: #193,739 in Books (See Bestsellers in Books)

  Popular in this category: (What's this?)

  #23 in

  Books > Health, Mind & Body > Personal Health > Children's Health > Down Syndrome

Customer Reviews

Most Helpful Customer Reviews

4 of 4 people found the following review helpful:

4.0 out of 5 stars What a real mom feels like, August 25, 2009

By	Someone's Mom (Chesapeake, VA) - See all my reviews

This book starts out like a freight train. Kathryn and her husband are waiting to be dismissed from the hospital where she's been treated for premature labor and are eagerly looking forward to getting home to their family -- when her water breaks. After a harrowing labor, she gives birth and within hours is informed by the medical staff that her son Thomas probably has Downs Syndrome. Then she's put into a sort of limbo while genetic testing is performed, during which time at least one doctor tells her that Thomas probably DOESN"T have Downs, and then they find out that he indeed does.

The author does an exquisite job of straddling the lines between those who want her to embrace Thomas' specialness and tell her what a heroic person she is for taking on this job -- and coping with her own anger, fear, frustration and even shame. She tells us somewhat proudly at the beginning that her other children do very well in school and that some of the six have even been identified as gifted (even profoundly gifted). We all know neighborhoods and schools like this -- where parents call themselves "gifted parents" as though they themselves were gifted, and live vicariously through the child, taking their own cues about whether or not they're measuring up as parents from how well the child rank vis a vis their peers on standardized tests. Parents also seem to use the 'giftedness' thing like a shield -- convincing themselves that since their child has been identified as bright and a winner, nothing bad will ever happen to them. Life is a contest and they appear to be winning, even triumphing over others.

But Kathryn then sits us down and tells us that perhaps she got it wrong -- somehow she's let her children think that smartness is the most important thing and that somehow smart people are good and less smart people are bad.
I believe at one point she even uses the word "loser", beginning to notice how frequently it's applied in society, in all sorts of contexts. Upon finding out about Thomas' condition, Kathryn's youngest child freely admits that he's ashamed and angry and doesn't want a retarded brother (and perhaps kathryn doesn't want to be a "retarded parent" , looked down on by all the 'gifted parents').

This is the story of how Kathryn and her children learned that we're all so much more than the sum of our scores on tests or our grades in school. Her children are able to voice the idea that "Thomas is here to teach us something really important" and that the gifts and lessons they learn are much more significant than the ones they learn in school. For me, the moment when you felt she had really embraced this new knowledge was when she threw away the workbooks she had purchased, to prep the kids for the gifted sorting out test at school, and let them play outside instead.

Unfortunately, you can also see how hard it would be for Kathryn and her family, who appear to have evolved beyond much of the stupidity we see displayed in our PTA's and schools, to then continuing living in a community where most people are pretty shallow compared to her. It kind of makes you wish that everyone would read this book, and that somehow her optimism and wisdom would be contagious.

4 of 4 people found the following review helpful:

5.0 out of 5 stars Highly Recommended, March 25, 2009

By	MLP - See all my reviews

An intimate portrait of grief, the kind that mourns the hidden fears of loss and failure that lurk within us all. And of course, the kind of grief that tranforms its bearer, teaching them about the long dark night but also about the beauty of the brilliant morning sun.

Yes, this is a book about mothering a child with Downs Syndrome, but also a universal story of motherhood and self-awareness. It may be trite to say that it's a story about love, but as with all things, love has both yin and yang. Kathryn is bold enough to explore both.

2 of 2 people found the following review helpful:

5.0 out of 5 stars From "Why us, Lord?!" to "Where do we go from here?", May 19, 2009

By	So Many Books So Little Time - See all my reviews

My son-in-law found this book for me and I'm so glad he did! Our son, Jeff, had DS, but we didn't know it until he was 1 1/2, in the early 1960's. When I could stop saying, "Why us, Lord?!" and ask "Where do we go from here?" things began to happen for us. I identified with Thomas' noisy breathing, and with Soper's comment, "He's slow, slow, slow. So what?" Our pediatrician said the same thing to me. She told me to record all that Jeff COULD do in the back of his photo album, and that was the start of the book I wrote about him: "Journey With Jeff; Inspiration for Caregivers of People with Special Needs." (Amazon.com) Jeff died in 1988, from leukemia, at the age of 27. He began to have seizures when he was 14, and the meds took a toll on his body. I earned my Masters in Special Education as I learned how to help Jeff, and worked with children with special needs from pre-school to senior high. When I see a child living with DS now, I identify with the lady in the book whose baby died at age 5. She said, "His face, his face. It's been so long." Tears came when I read this. "The Year My Son and I Were Born," plus Soper's video on You Tube, have meant a great deal to me. They are highly recommended.