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You Don't LOOK Sick!: Living Well with Invisible Chronic Illness 1st Edition

4.5 out of 5 stars 30 customer reviews
ISBN-13: 978-0789024497
ISBN-10: 0789024497
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Editorial Reviews

Review

"This is a POIGNANT, EASY-TO-READ chronicle of the journey of a person afflicted with a chronic illness." -- Bob Crittenden, MD, MPH, Chief of Family Medicine, Harborview Medical Center, Seattle

"Will benefit not only patients with chronic illnesses, but also their health care providers and family members." -- Roberto Patarca-Montero, MD, PhD, HCLD, Author of the Handbook of Cancer-Related Fatigue and the Concise Encyclopedia of Chronic Fatigue Syndrome --This text refers to an out of print or unavailable edition of this title.
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Product Details

  • Paperback: 200 pages
  • Publisher: CRC Press; 1 edition (March 6, 2005)
  • Language: English
  • ISBN-10: 0789024497
  • ISBN-13: 978-0789024497
  • Product Dimensions: 8.4 x 6.6 x 0.4 inches
  • Shipping Weight: 8 ounces
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (30 customer reviews)
  • Amazon Best Sellers Rank: #1,055,407 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

By P. Brier on August 27, 2005
Format: Paperback Verified Purchase
Having lived with a wicked case of Fibromyalgia for years, I wish this book had been around in the beginning. Until I was officially diagnosed, family and friends thought I was some kind of pathetic sympathy-seeking hypochondriac. Now they understand; but at the time, it was most definitely a case of "You don't look sick. What's up with THAT?!" I recommend this book for anybody diagnosed with a non-visible chronic illness who needs to take care of themselves, treat themselves well, and deal with all those nay-sayers who take a seeming eternity to get on-board with the diagnosis. This book is a winner!
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Format: Paperback
This book had me nodding in agreement, laughing out loud, and finally crying that someone else actually understood what I have been living with. It is a mixture of personal essay from a patient's view and advice on chronic illness from a doctor's view. I will be handing out copies of this to my mother and my friends just so they understand better what life is like for me. The tone of the personal essays is both upbeat and friendly. Even in the section where she is clearly ticked-off, the anger is told from the perspective of a woman who has lived and learned. She passes on her wisdom in a "Girlfriend's Guide" style that is easy to read again and again and again... It made me feel better than any of my recent doctor's visits! Thank you Joy!
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Format: Paperback
I just finished "You Don't Look Sick" and it is fantastic!! I am going to make it required reading for my Medical Family Therapy graduate students. It is the only book I know that has a clear and compelling view of the patient's process from symptoms to thriving, woven together with the physician's wisdom and voice. The process of reading the book creates for the reader an experience of collaboration and punctuates in it's evocative nature, the imperative of integrated and recursive care.
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Format: Paperback Verified Purchase
I have an auto-immune disease and often have trouble with folks not understanding that I am ill or how ill I am .... because "I don't look sick" , I don't have a cast on my leg, bandages... this book helps me deal with my internal dialogue and my process of dealing with some of these emotions. It has helped me deal with what to say to others as well.
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Format: Paperback Verified Purchase
This book provides an excellent account of the struggles faced by people with chronic illness and advice for their families. Inspirational guidelines provided for finding 'peace' with the limitations placed on the lives of the chronically ill.
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Format: Hardcover Verified Purchase
Everyone's illness is different. So, I did not go into this book expecting the author to talk only about the illness that I am suffering from. I was simply hoping to gain the support of hearing someone else's story to help me realize that I am not the only one on this journey. This book did that for me. I could relate to many of the ups and downs, even though mine are different. When you deal with chronic illness you often feel alone and like you are the only one in the world that had to give up work, friendships, lifestyle, money, etc. The author shares her story about all of that and more.

What the book didn't really do for me is give me coping skills or ideas on how to better deal emotionally which was part of what I was looking for when I read the book. However, I would recommend reading this book if you want to reaffirm that you are not alone in the world of chronic illness. If you want coping skills, I would recommend reading How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Bernhard.
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Format: Paperback
This book was exceptionally helpful. It does not start out all starry eyed about keeping a stiff upper lip. She acknowledges that getting a chronic illness is hard on you and your life, your family, your friends. Then she describes the grief phases through which you can progress to reach some type of realistic adjustment to the whole thing. It was easy to identify with her and feel that she is talking to you, not a fantasy person who always makes lemonade. This makes it refreshingly readable.
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Format: Kindle Edition Verified Purchase
I am going through the long process of being diagnosed with some form of connective tissue disease currently and reading Joy's story and her doctors take on things has helped me tremendulously. I am still in the getting sick phase of my illness, and reading about someone else's experience with the process of getting sick and trying to find a good team of doctors and coping with the stress of other peoples views of her illness has really helped me get a handle on my own illness and feelings. This is a hard process and Joy has captured it very well in her book.
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