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You Don't Look Sick: Living Well With Invisible Chronic Illness [Paperback]

Joy H. Selak (Author), Steven S. Overman (Author)
4.5 out of 5 stars  See all reviews (20 customer reviews)


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Book Description

March 4, 2005 0789024497 978-0789024497 1
“Coming to terms with this reality was a lot like accepting the death of a loved one.”

You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness chronicles a patient’s true-life accounts and her physician’s compassionate commentary as they take a journey through the three stages of chronic illness—Getting Sick, Being Sick, and Living Well. This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.

From the book:
“I’ve learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.”

You Don’t LOOK Sick! addresses practical aspects of chronic illness, such as:
  • hiring a doctor
  • managing chronic pain
  • coping with grief and the loss of function
  • winning battles with health and disability insurers
  • countering the social bias against the chronically ill
  • recognizing the limitations of chronics illness care and charting a path for change
In You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited.

From the authors:
“I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.”
—Joy H. Selak

“My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications.”
—Dr. Steven Overman

The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites@austin.rr.com.


Editorial Reviews

Review

"This is a POIGNANT, EASY-TO-READ chronicle of the journey of a person afflicted with a chronic illness." -- Bob Crittenden, MD, MPH, Chief of Family Medicine, Harborview Medical Center, Seattle

"Will benefit not only patients with chronic illnesses, but also their health care providers and family members." -- Roberto Patarca-Montero, MD, PhD, HCLD, Author of the Handbook of Cancer-Related Fatigue and the Concise Encyclopedia of Chronic Fatigue Syndrome --This text refers to an out of print or unavailable edition of this title.

Product Details

  • Paperback: 145 pages
  • Publisher: Informa Healthcare; 1 edition (March 4, 2005)
  • Language: English
  • ISBN-10: 0789024497
  • ISBN-13: 978-0789024497
  • Product Dimensions: 8.4 x 6.6 x 0.4 inches
  • Shipping Weight: 8 ounces
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (20 customer reviews)
  • Amazon Best Sellers Rank: #139,857 in Books (See Top 100 in Books)

More About the Author

Joy H. Selak was raised in San Antonio, Texas and after stops in California, Arizona and San Juan Island WA, has returned to her Texas roots in Austin. She is a former university writing instructor and stockbroker, but now devotes her time to theatre and writing. You Don't LOOK Sick! was a finalist for USABook News Best Health Book 2005 and Joy speaks to patient groups nationwide about building a meaningful life that contains long term illness. Joy and her co-author Dr. Steven Overman are at work on a second edition of You Don't LOOK Sick! and Joy is looking for a publisher for her completed novel, CeeGee's Gift. Joy can be contacted at joy@joywrites.com.

 

Customer Reviews

20 Reviews
5 star:
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4 star:
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3 star:    (0)
2 star:
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1 star:
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Average Customer Review
4.5 out of 5 stars (20 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

45 of 45 people found the following review helpful:
5.0 out of 5 stars "You Don't Look Sick. Living Well with Invisible Chronic Illness", August 27, 2005
By 
This review is from: You Don't Look Sick: Living Well With Invisible Chronic Illness (Paperback)
Having lived with a wicked case of Fibromyalgia for years, I wish this book had been around in the beginning. Until I was officially diagnosed, family and friends thought I was some kind of pathetic sympathy-seeking hypochondriac. Now they understand; but at the time, it was most definitely a case of "You don't look sick. What's up with THAT?!" I recommend this book for anybody diagnosed with a non-visible chronic illness who needs to take care of themselves, treat themselves well, and deal with all those nay-sayers who take a seeming eternity to get on-board with the diagnosis. This book is a winner!
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42 of 44 people found the following review helpful:
5.0 out of 5 stars A friend inside the pages., March 28, 2006
By 
Ashley Davis (Alexandria, VA) - See all my reviews
This review is from: You Don't Look Sick: Living Well With Invisible Chronic Illness (Paperback)
This book had me nodding in agreement, laughing out loud, and finally crying that someone else actually understood what I have been living with. It is a mixture of personal essay from a patient's view and advice on chronic illness from a doctor's view. I will be handing out copies of this to my mother and my friends just so they understand better what life is like for me. The tone of the personal essays is both upbeat and friendly. Even in the section where she is clearly ticked-off, the anger is told from the perspective of a woman who has lived and learned. She passes on her wisdom in a "Girlfriend's Guide" style that is easy to read again and again and again... It made me feel better than any of my recent doctor's visits! Thank you Joy!
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34 of 37 people found the following review helpful:
5.0 out of 5 stars Required Reading ..., May 3, 2005
By 
Tina Schermer Sellers (Seatte Pacific University) - See all my reviews
This review is from: You Don't Look Sick: Living Well With Invisible Chronic Illness (Paperback)
I just finished "You Don't Look Sick" and it is fantastic!! I am going to make it required reading for my Medical Family Therapy graduate students. It is the only book I know that has a clear and compelling view of the patient's process from symptoms to thriving, woven together with the physician's wisdom and voice. The process of reading the book creates for the reader an experience of collaboration and punctuates in it's evocative nature, the imperative of integrated and recursive care.
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This prayer was given to me by a friend with fibromyalgia, in response to my question, "How do you manage to live well, even though you can't get well?" Read the first page
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