Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope [Paperback]

Carrie T. Gruman-Trinkner (Author), Blaise Winter (Foreword)

Book Description

Publication Date: October 12, 2001

Clefting is one of the most common birth defects and one of the most reparable. Yet parents of clefted newborns often initially respond with fear, shock, and despair. This first guide written specifically for parents explains what a cleft is, why it occurs, and what can be done about it. Topics include surgical procedures, financial assistance, emotional impact, and forming support groups.

Editorial Reviews

From Library Journal

As the mother of a cleft-palate child, the author has dealt firsthand with the emotional and medical issues facing all parents with cleft-affected children. She opens her book with descriptions of different types of clefts and their possible causes and assures parents that the defects can be corrected with surgery. She then talks about the next important issue: how to feed cleft-affected children. She also explains at length the emotional impact of cleft-affected children on families and strategies to help these children cope with other people's reactions. Other issues such as hearing, speech, dental and orthodontic work, financial concerns, and support groups are also discussed. Throughout, there are encouraging profiles of successful people affected by cleft palate and a whole chapter about the author's own child, from birth to surgeries, and growing up happily with a supportive family. Not many books of this type are available; Karlind Moller & others' A Parent's Guide to Cleft Lip and Palate (Univ. of Minnesota, 1990. o.p.) is now over ten years old, and other guides focus on speech or take a clinical approach to the topic. Packed with important information, this is highly recommended for all public libraries and consumer health collections. Lily W. Liu, Arkansas Children's Hosp., Little Rock
Copyright 2001 Reed Business Information, Inc.

Product Details

• Paperback: 192 pages
• Publisher: Hunter House; 1 edition (October 12, 2001)
• Language: English
• ISBN-10: 0897931858
• ISBN-13: 978-0897931854
• Product Dimensions: 8.5 x 5.5 x 0.5 inches
• Shipping Weight: 12 ounces (View shipping rates and policies)
• Average Customer Review: 4.0 out of 5 stars  See all reviews (4 customer reviews)
• Amazon Best Sellers Rank: #710,660 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews

4 of 4 people found the following review helpful:

5.0 out of 5 stars A GREAT BOOK, January 30, 2006

By 

Kathryn - See all my reviews

This review is from: Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope (Paperback)

I am an older sibling of a child with a cleft and I found this book to be helpful in so many ways when re-searching what was going to be done to my baby brother. It used enough technical terms to explain what was going on, but it also explained things as well. I know that my mother would often read the chapter called Aiden; One child's story when she needed to find hope for her own son. I would recommend this book to everyone whether they are researching clefts or they have a family member who has a cleft. This is a wonderful book that was so extrememly helpful to both me and my family and well as other mom's I've talked to around the country.

1 of 1 people found the following review helpful:

5.0 out of 5 stars Very Helpful, June 25, 2010

By 

Danielle - See all my reviews

Amazon Verified Purchase

This review is from: Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope (Paperback)

I bought this book when my child was diagnosed with a cleft lip at her 20 week ultrasound. The information is very helpful and accuratly describes the emotions I was having at the time of diagnosis. This is a great resource to get for anyone looking for answers in regards to what to expect with a cleft child.

5.0 out of 5 stars A great support!, November 8, 2011

By 

Janill - See all my reviews

This review is from: Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope (Paperback)

I read this book before my son was born. I very much related to the mom who wrote this book. She shared in the book many of the same feelings I was experiencing. There was also excellent information provided. This book gave me many things to think about before my son's birth. I had a chance to look into different types of special bottles and have them ordered and on hand before he was born. This book really helped me deal and understand the emotions I would experience as well as the medical situations he would go through. I would highly recommend this book to all new parents of cleft-affected children.