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The Diving Bell and the Butterfly: A Memoir of Life in Death 1st Edition

4.6 out of 5 stars 418 customer reviews
ISBN-13: 978-0375401152
ISBN-10: 0375401156
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Product Details

  • Hardcover: 131 pages
  • Publisher: Alfred A. Knopf; 1st edition (May 13, 1997)
  • Language: English
  • ISBN-10: 0375401156
  • ISBN-13: 978-0375401152
  • Product Dimensions: 0.8 x 4.8 x 8 inches
  • Shipping Weight: 10.4 ounces
  • Average Customer Review: 4.6 out of 5 stars  See all reviews (418 customer reviews)
  • Amazon Best Sellers Rank: #113,660 in Books (See Top 100 in Books)

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Customer Reviews

Top Customer Reviews

Format: Paperback
This is the most remarkable book I have ever read. I make this comment because my own daughter, age 26, was suddenly "locked-in" two years ago due to a stroke from birth control pills. Her condition mirrors the author's. I used his spelling method and shocked the doctors with her communication abilities. (They had told me she was vegetative.) Bauby's little book has changed our lives. I was deeply saddened by his death from a heart attack. He was beginning to do a great wonder for the unfortunate people with this rare syndrome by starting a newsletter and being the subject of a documentary. The Diving Bell and the Butterfly is a clever account of what it's like to be locked-in and a combination of some personal slices of life which ironically relate to the author's terrifying condition.
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Format: Paperback
In December of 1995, Jean-Dominique Bauby, 43 year old editor in chief of Elle magazine in France, suffered a stroke which severely damaged his brain stem. After several weeks in a coma, he woke to find that he was one of the rare victims of a condition called "locked-in syndrome" or LIS, which had left his mind functioning but his body almost completely paralyzed. In a perverse sense he actually got fairly lucky because, unlike most victims, he was still able to move one eyelid. This allowed him to work out, with a speech therapist, a system of communication which entailed winking as someone slowly read through the alphabet. By using this code, he could painstakingly spell out words, sentences, paragraphs and, finally, this memoir.
The title of the book refers to the metaphors he uses to describe his situation. The physical paralysis leaves him feeling as if he was trapped within a diving bell, as if there is constant pressure pinning his body into immobility. However, at the same time, his mind remains as free as a butterfly and it's flights are as random. In fact, he calls the chapters of this book his "bedridden travel notes" and, indeed, they eloquently relate his journey through memory.
Although Bauby's situation is obviously unique, this book has universal resonance because his condition is itself an apt metaphor for the human condition. It is the essence of Man's dilemma that our infinitely perfectible minds are trapped within such weak containers of flesh and blood. For most of us, at most times, this frustrating dichotomy, between that which makes us godlike and that which makes us mortal, lurks in the background; but the author has it thrust rudely into the foreground, where it necessarily dominates his existence.
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Format: Paperback
Wow. This book is beautiful and haunting. You begin the book with the knowledge of Mssr. Bauby's fate. He proceeds to share with us his eloquent and striking observations post-accident. This book is beautifully and concisely written - it's as tight as a drum - and that is a testament more to Bauby's journalistic talents than his impaired condition. An intellectual with a love for opera, music, writing, and food, he comes to life in these pages despite the brevity of the book. We get a decent sense of him prior to his stroke: a man with a full appetite for life. At times, I had to suck in my breath and set the book down to pause, it was so profoundly heartbreaking. He shares with us his deepest, raw thoughts about his daily life, his former lifestyle, his children, the blessings he misses and the pleasures he now looks forward to, as well as the torment he cannot control. A key point, I think, is that throughout the book he sprinkles his persistent sense of humor, and a feeling of hope. It's amazing considering that he is experiencing something we all agree is our worst nightmare. There is no bitterness on these pages, it's more of an honest wistfulness. Like when he says he would have cheerfully killed one of his caretakers for the neglect he suffered at his hands. I will never forget the irony of the photograph from his childhood sent to him by his father; the description of his last day of normal life; the story of Mithra-Grandchamp; the bleakness of his Sundays and how they lend perspective to his other days (and ours); and his trip to smell the French fries. The meaningfulness and importance of the small, everyday events, abilities, and choices we make are cast in a new light after reading this book. But the experience is like having someone open you up and rip out your heart, such is the sympathy we feel for Bauby. In fact, I will likely be haunted by his descriptions of life, both breathtakingly beautiful and immensely sad. What a man. What a book.
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Format: Paperback
In 1995, Jean-Dominique Bauby was a vigorous man of 43 when he suddenly had a massive stroke that left him in a coma for twenty days. When he awoke, Bauby found himself a victim of "locked-in syndrome," a state of paralysis in which a person's mind functions while his body is frozen.

Bauby was the father of two young children and the editor-in-chief of a major magazine. He had traveled extensively and was blessed with many friends. After the stroke, his active and exciting life was no more. As a quadriplegic, Bauby had to be bathed, fed by a gastric tube, and moved by nurses and attendants. He could not speak at all. What was there left to live for?

It turns out that Bauby's mind provided him with the spiritual and emotional fuel to keep him from falling into despair. He did not become bitter or cantankerous, and he never lost his humor, imagination, or the wonderful memories that he cherished. Finally, he began to compose this book in his head, and through a system in which blinks of an eye indicated letters of the alphabet, he "dictated" this book to his secretary.

"The Diving Bell and the Butterfly" is witty, lyrical, and poignant. Bauby notes that since he could no longer eat in the normal way, he had to dine in his head, imagining himself enjoying beef bourguignon, apricot pie, or even a simple soft-boiled egg. Since he could not speak to his ninety-three year old father, Jean-Dominique's father called him on the phone and spoke to him. When he was finally able to sit in a wheelchair, Bauby was taken to the sea where he admired the colorful umbrellas, the beautiful seascape, and the lovely sailboats. He was destined to live the remainder of his life one step removed from reality, but, in his mind, this was better than not living life at all. Jean-Dominique Bauby lived to see his book published before he died in 1997. "The Diving Bell and the Butterfly" is an inspiring testament to the indomitable spirit of a very remarkable man.
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