The Official Patient's Sourcebook on Primary Biliary Cirrhosis (Paperback)

~ James N. Parker (Editor), Philip M. Parker (Editor)

Editorial Reviews

Product Description

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to primary biliary cirrhosis (also Cholangiolitic biliary cirrhosis; Hanot syndrome; Hypertrophic cirrhosis of Hanot), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on primary biliary cirrhosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

From the Publisher

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching primary biliary cirrhosis (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to primary biliary cirrhosis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating primary biliary cirrhosis. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with primary biliary cirrhosis. Part II moves on to advanced research dedicated to primary biliary cirrhosis. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on primary biliary cirrhosis. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with primary biliary cirrhosis or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with primary biliary cirrhosis. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with primary biliary cirrhosis.

See all Editorial Reviews

Product Details

• Paperback: 168 pages
• Publisher: Icon Health Publications (August 2002)
• Language: English
• ISBN-10: 0597834024
• ISBN-13: 978-0597834028
• Product Dimensions: 11.2 x 8.3 x 0.5 inches
• Shipping Weight: 1.1 pounds (View shipping rates and policies)
• Average Customer Review: 5.0 out of 5 stars  See all reviews (1 customer review)
• Amazon.com Sales Rank: #1,429,039 in Books (See Bestsellers in Books)

Customer Reviews

Most Helpful Customer Reviews

9 of 19 people found the following review helpful:

5.0 out of 5 stars The Book's Audience, January 14, 2003

By	Health Book Abstracts (Houston, TX) - See all my reviews

Designed for people who are new to primary biliary cirrhosis, this sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it is designed for patients who are less familiar or are new to the Internet as a medical research tool. It tells the reader where and how to look for information covering virtually all topics related to primary biliary cirrhosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are compiled and reproduced to give you some of the latest official information available to date on primary biliary cirrhosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Primary Biliary Cirrhosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Primary Biliary Cirrhosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Primary Biliary Cirrhosis; Chapter 5. Patents on Primary Biliary Cirrhosis; Chapter 6. Books on Primary Biliary Cirrhosis; Chapter 7. Multimedia on Primary Biliary Cirrhosis; Chapter 8. Periodicals and News on Primary Biliary Cirrhosis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Primary Biliary Cirrhosis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; PRIMARY BILIARY CIRRHOSIS GLOSSARY; INDEX. Related topics include: Cholangiolitic biliary cirrhosis, Hanot syndrome, Hypertrophic cirrhosis of Hanot.