Muscular Dystrophy: The Facts (Paperback)

by Alan E. H. Emery (Author) "If you have muscular dystrophy, or you have an affected son or daughter or other affected relative, the first thing to remember is that you..." (more)
Key Phrases: other dystrophies, chorion biopsy, muscle histology (more...)

Editorial Reviews

Review
`"This book, written for people with muscular dystrophy and their families, describes the nature of the disease...and its treatment options in a clear and easy to understand way."' Practice Nursing

`..."this book is very relevant for families who are affected by MD, and new staff joining the types of units where MD clients attend for treatment/education, etc."' Physiotherapy --This text refers to the Paperback edition.

Product Description
The muscular dystrophies are a group of genetic diseases that severely affect children and adults. Muscular Dystrophy: The Facts examines living with muscular dystrophy and coping with its physical and psychological effects. Written specifically for people with muscular dystrophy and their families, it will answer many of the questions that are often asked about how and why it occurs, and how it will affect the life of a recently diagnosed child. The different types of muscular dystrophy are described with the minimum of technical jargon. Questions relating to exercise, physiotherapy, surgery, and the emotional effects of the disease are answered, and advice is given on the problems of schooling and choice of career. At the end of the book Professor Emery also provides a useful list of international muscular dystrophy groups and associations.

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Product Details

• Paperback: 152 pages
• Publisher: Oxford University Press, USA (August 4, 1994)
• Language: English
• ISBN-10: 0192624490
• ISBN-13: 978-0192624499
• Product Dimensions: 7.7 x 5 x 0.4 inches
• Shipping Weight: 6.4 ounces
• Average Customer Review: 3.5 out of 5 stars See all reviews (2 customer reviews)
• Amazon.com Sales Rank: #2,858,051 in Books (See Bestsellers in Books)

Customer Reviews

Most Helpful Customer Reviews

3 of 3 people found the following review helpful:

2.0 out of 5 stars ok on facts, light on sense, September 13, 2005

By	G. Miller (Berlin Deutschland) - See all my reviews (REAL NAME)

This review is from: Muscular Dystrophy: theFacts (Paperback)

The medical aspects are dealt with fairly accessibly, but troubles me is the author's tone throughout the book - patronising, and his tendency to make statements that belie an extraordinary ignorance of human beings. What kind of weirdo would write a sentence like "....of course, the death of a child is always tragic, even when it is expected"?

There are a few such pronouncements in the book, but the whole thing is saturated with that strange arrogance that only doctors seem to manage - I think it comes from dealing so much with "the sick" and "suffering" family members, that they start thinking that doctors are some higher breed of "healthy" humans who are on earth to offer hope to poor unfortunates.

I would not recommend this book for parents.

3 of 3 people found the following review helpful:

5.0 out of 5 stars A great source of information, January 1, 2001

By A Customer

This review is from: Muscular Dystrophy: theFacts (Paperback)

This book uses easy to understand language to explain the complexities of this group of disorders. It is a good first book for individuals and families faced with the likelihood or reality of a muscular dystrophy diagnosis.