Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery [LARGE PRINT] (Hardcover)

~ (Author), Hal Friedman (Author)
Key Phrases: resource room, Against Medical Advice

Editorial Reviews

Review

"A work of naked truth, as disturbing as it is important-Against Medical Advice turns Tourette's Syndrome inside out and shows us what it is like to be trapped inside a brain that has a nightmarish mind of its own. This true story of Hal Friedman's son, Cory, is a gift of honesty, huge courage, and hope, and a reminder that against all medical advice and odds, human beings can prevail." (Patricia Cornwell 2008)

"Against Medical Advice is a true story that reads like the most riveting of pageturners. Read it and feel at gut-level what it's like to be a child whose life is almost destroyed by a hellish array of nightmare medical symptoms. Best of all, watch what happens when an entire family stands together against all odds, armed with strength, perseverance, and love for one another." (Lisa Scottoline 2008)

"In the tradition of The Curious Incident of the Dog in the Night-Time, Patterson and Friedman manage to get deep inside debilitating illness, and show us what life looks like from that perspective. Against Medical Advice is an amazing story of courage, fortitude and a family's love, simply told." (Terri Cheney 2008)

"Inspiring...a testament to the importance of family and the resilient nature of the human spirit." (George Pelecanos )

"Against Medical Advice is both harrowing and heartbreaking, but is also a story of astonishing courage. This book stands as a testament to the amazing power of one family's unconditional love for each other." (Tess Gerritsen )

"The frightening, frustrating life story of Mr. Friedman's son Cory, who for 13 years battled Tourette's syndrome, obsessive-compulsive disorder, and anxiety disorder." (The Wall Street Journal Jeffrey A. Trachtenberg )

"Against Medical Advice touches on numerous harrowing experiences Cory rode out in school." (USA Today Mary Brophy Marcus )

"A disturbing story but ultimately an inspiring one that affirms the power of families to overcome adversity." (The Arizona Republic ) --This text refers to an alternate Hardcover edition.

Product Description

Cory Friedman woke up one morning when he was five years old with the uncontrollable urge to twitch his neck. From that day forward his life became a hell of irrepressible tics and involuntary utterances, and Cory embarked on an excruciating journey from specialist to specialist to discover the cause of his disease. Soon it became unclear what tics were symptoms of his disease and what were side effects of the countless combinations of drugs. The only certainty is that it kept getting worse. Simply put: Cory Friedman's life was a living hell.

AGAINST MEDICAL ADVICE is the true story of Cory and his family's decades-long battle for survival in the face of extraordinary difficulties and a maddening medical establishment. It is a heart-rending story of struggle and triumph with a climax as dramatic as any James Patterson thriller.

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Product Details

• Hardcover: 368 pages
• Publisher: Little, Brown and Company; First Edition edition (October 20, 2008)
• Language: English
• ISBN-10: 0316025046
• ISBN-13: 978-0316025041
• Product Dimensions: 9.3 x 5.9 x 1.3 inches
• Shipping Weight: 1.3 pounds (View shipping rates and policies)
• Average Customer Review: 4.3 out of 5 stars  See all reviews (89 customer reviews)
• Amazon.com Sales Rank: #867,457 in Books (See Bestsellers in Books)

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Customer Reviews

Most Helpful Customer Reviews

45 of 46 people found the following review helpful:

3.0 out of 5 stars Insight into life with Tourette's Syndrome or Disorder, October 26, 2008

By	BrianB (Northern California) - See all my reviews

This review is from: Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery (Hardcover)

This is an fascinating, discouraging, and ultimately hopeful story of one child's struggle with Tourette's Syndrome, obsessive compulsive disorder, alcoholism and misunderstanding. Although Corey, the one afflicted, did not write the book, the authors present it in the first person, giving the story a personal feel and immediacy. Corey develops a severe form of Tourette's at age five. He is given a variety of medicines over the years, and he suffers from a bewildering and distressing constellation of symptoms. Not surprisingly, he struggles at home and at school. Some of his teachers are understanding, and some are hostile, as he often disrupts the classroom with his unorthodox behaviors.

The book details how Corey receives ill treatment at the hands of the medical and educational establishments. Some of his doctors suffer from the messiah complex: the inability to admit that they might have prescribed the wrong medicine. Some of his teachers do not like him, because he can appear very difficult in class. He has a very hard time making friends. This prolongs and intensifies his misery.

I didn't always feel complete sympathy for Corey. At times, especially toward the end of the book, some of his complaining feels excessive. Corey maintains that his school aid entrapped him, reporting him for smoking on campus, an activity which was previously tolerated. He does admit that they "can't officially allow me to have a cigarette on the property." and he was supposed to walk far away from the school, but he was "a little lazy." He feels persecuted by the school board that recommends he repeat his junior year. After reading about the events of that year, It seemed that it was a reasonable decision, but the authors describe the board in highly unfavorable terms. The school relents when his mother makes a impassioned case for allowing him to continue. Still, they get very little sympathy from Corey.

The story is a valuable history of a child and a condition that is still a medical mystery. The writing is personal, direct, and to the point. I completed the entire book in two days. It seemed that Corey was speaking directly to me as I read. If you have an interest in Tourette's you should read this book, because it gives valuable insight into a personal experience. You cannot get this insight from a medical textbook. What emerges is the fact that modern medicine did not make anything easier for this young man. The education system helped him in some ways, but failed him in others. This book may not be a masterpiece of non fiction, but it could be a good and useful book for physicians and educators alike.

40 of 41 people found the following review helpful:

5.0 out of 5 stars Incredibly familiar, October 22, 2008

By	TSMom (Austin, TX) - See all my reviews

This review is from: Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery (Hardcover)

This book was a phenomenal retelling of the life of someone with Tourette Syndrome. As a mother of three boys who all have the same diagnosis as Cory, I feel like I can adequately say that I am more of an authority on the subject than most. As I read through his life struggles, weeping through a great many of the pages, I could identify with much of the grief and pain that he and his parents have gone through. I believe that everything in the book was very accurately portrayed, from the lack of understanding of the educational system to the medical roller coaster ride of trial and error, not to mention the misery inflicted by social situations. I feel like the book was tastefully written to not bash the people who do not understand this condition, (including medical/mental health professionals) but to portray the frustration and mental anguish caused by this lack of understanding.

I highly recommend this book to all, but especially to those who have the fortunate opportunity to touch the life of someone with Tourette Syndrome. As is obvious in Cory's case, these children are incredible. They have to overcome so much more than the rest of us would ever dream of imagining just to live, let alone succeed. Thank you Cory, for sharing your life with us.

28 of 29 people found the following review helpful:

5.0 out of 5 stars A great read, an intense book, October 20, 2008

By	Anthony L. Marchigiano "NDBOOKie" (NYC) - See all my reviews (REAL NAME)

This review is from: Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery (Hardcover)

Some parts are intense. A few pages are among the realest, most moving pages you will ever read. Some parts were tough to experience through Cory's eyes, but the comfort and redemption of this book and the message it leaves you with is that we as Human beings are strong and can endure more than we can imagine if we refuse to be defined by our misfortune and embrace the love of those that love us. This book, better than any I have read, tells a true story in a real way.