Children with Fragile X Syndrome: A Parents' Guide (Paperback)

~ Jayne Dixon Weber (Editor) "This is the Meyer family story as told by Claire, the mother: "It's a boy!..." (more)
Key Phrases: full mutation, verbal perseveration, behavior management plan, The Arc, National Fragile, American Journal of Medical Genetics (more...)

Editorial Reviews

From Library Journal

Woodbine House has done it again! They have created another thorough yet easy-to-understand guide for parents of special-needs children. This one is especially important because of the absence of other good parenting texts on Fragile X Syndrome, which is one of the most common genetic causes of mental retardation. Recent evidence suggests that it may be even more prevalent than Down Syndrome. The book follows the publisher's well-established format, covering topics such as diagnosis, medical concerns, family life, education, legal issues, daily care, and advocacy. Each chapter closes with statements from other parents. As usual, the resource list in the back is well worth the cost of the book. Of special note is the chapter on education, which offers one of the most extensive coverages of Individual Education Plans (IEPs) and other educational hurdles offered by any book in recent years. Essential for all consumer health collections.DKellyJo Houtz Griffin, Eatonville,WA
Copyright 2000 Reed Business Information, Inc.

Review

"* Essential for all consumer health collections."

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Product Details

• Paperback: 460 pages
• Publisher: Woodbine House; 1st edition (July 15, 2000)
• Language: English
• ISBN-10: 0933149778
• ISBN-13: 978-0933149779
• Product Dimensions: 8.5 x 5.5 x 1 inches
• Shipping Weight: 1.2 pounds
• Average Customer Review: 5.0 out of 5 stars  See all reviews (2 customer reviews)
• Amazon.com Sales Rank: #670,723 in Books (See Bestsellers in Books)

Customer Reviews

Most Helpful Customer Reviews

13 of 13 people found the following review helpful:

5.0 out of 5 stars Telling it like it is...., October 14, 2000

By	Suzanne S. Balvanz "picture this by suzanne" (Outside of Washington DC) - See all my reviews (REAL NAME)

Jayne Dixon Weber has been there.....she KNOWS what it's like to raise a child with fragile x syndrome. I met her on a trip to Denver with my son, also affected by FXS, and was impressed by her. All of that comes through in the firm grasp of the facts in her book. It's hard to describe this life to someone who hasn't been there, and Jayne does a remarkable job. I find her work to be professional and compassionate. I think this book would be a wonderful addition to a parent's library as well as that of educator, social worker, doctor, etc. It's a VALUABLE personable easy to read book, from a true veteran.

11 of 11 people found the following review helpful:

5.0 out of 5 stars A must have for any parent of a child with Fragile X....., September 15, 2001

By A Customer

This is a wonderful book. It is the first that I read after finding out my two children have Fragile X. You'll find yourself referring to it often during your journey. Jayne Dixon Weber really gives you insight on many different issues. My son's teacher even bought a copy for herself.