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Narcolepsy: A Funny Disorder That's No Laughing Matter (Paperback)

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4.7 out of 5 stars  See all reviews (10 customer reviews)


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Editorial Reviews

Review

I would recommend that all patients with narcolepsy read the book.... Moreover, sleep professionals--physicians, nurses, technologists--will benefit... -- Allan I. Pack, M.D., Ph.D., Dir. of Sleep & Respiratory Neurobiology, Univ. of PA Med Ctr

Reading your book has made me feel better about having narcolepsy. -- From a reader with narcolepsy


Product Description

This book provides accurate facts about all aspects of narcolepsy, a little-known neurological sleep disorder. It is estimated that 150,000-250,000 people in the U.S. have narcolepsy, but most of those have not yet been diagnosed. In the past, patients have seen an average of five or more physicians over a decade or longer before receiving a correct diagnosis of narcolepsy. As the public becomes better informed and more doctors are entering the field of sleep medicine, people are being diagnosed quicker and at an easlier age.

A wealth of information about narcolepsy is available on the internet, but this 166-page book is the most comprehensive, single source of information to be found. In addition to facts, the author relates her personal experiences with all the symptoms and describes how the disorder has impacted her life. It is an excellent reference source and a self-help book rolled into one.

People with narcolepsy usually have great difficulty reading a book without falling asleep. If anything can keep them awake, this book will. It is written in layman's terms, with a positive approach and amusing stories that encourage you to read on. --This text refers to the Hardcover edition.


Product Details

  • Paperback: 166 pages
  • Publisher: Marguerite Jones Utley (June 1995)
  • Language: English
  • ISBN-10: 0964332809
  • ISBN-13: 978-0964332805
  • Product Dimensions: 8.2 x 5.3 x 0.4 inches
  • Shipping Weight: 5.6 ounces
  • Average Customer Review: 4.7 out of 5 stars  See all reviews (10 customer reviews)
  • Amazon.com Sales Rank: #553,594 in Books (See Bestsellers in Books)

More About the Author

Marguerite J. Utley
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Narcolepsy: A Funny Disorder That's No Laughing Matter
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Customer Reviews

10 Reviews
5 star:
 (8)
4 star:
 (1)
3 star:
 (1)
2 star:    (0)
1 star:    (0)
 
 
 
 
 
Average Customer Review
4.7 out of 5 stars (10 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

 
22 of 22 people found the following review helpful:
5.0 out of 5 stars Well-written study of a little-known disorder by a layman., September 14, 1999
By A Customer
This small book is a must read for both the victim of the disorder and the professionals who treat it. A narcoleptic herself, Utley writes about situations and cases that all of us who suffer with narcolepsy will identify with over and over. She discusses symptoms, medications and their effectiveness and side-effects; the psychological effect of dealing with narcolepsy; how the family can help the victim and how important it is to have loving support; how to deal with both scary- and ever-present episodes of catalepsy, the muscle-weakness that accompanies narcolepsy, and the problems that can ruin any kind of social life. One result of reading the book is that the narcoleptic will be able to say, "Ohmigosh, I didn't realize other people experienced this," or "I didn't know THAT was part of the disorder; why, I've been doing that for years!"

The shortcoming in Utley's work is her failure to explain exactly how catalepsy affects various people...she talks about it only in vague generalities -- surprising for someone who invested so much time in spelling out the rest of the circumstances surrounding the average narcoleptic's life.

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14 of 14 people found the following review helpful:
5.0 out of 5 stars A balanced treatment of life with an incurable disorder., May 11, 1998
By A Customer
Although this book is biographical in content, it is marvelously reassuring to anyone diagnosed with Narcolepsy. Narcolepsy is indeed no laughing matter, but Ms. Utley does her best to make the reader see the humor and humanity in living with a medical condition that is viciously difficult to explain to those not afflicted.<P>Narcolepsy is a rare disorder of REM sleep, and connecting with others who have the disorder is very difficult. The author's style is insightful and compassionate and enables the reader to connect with a knowledgable member of a very sparse group.
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11 of 11 people found the following review helpful:
5.0 out of 5 stars A GOD SEND, A true inspration, there are Angles among us!, June 24, 2000
By Tammy (North Carolina) - See all my reviews
No one can possibly understand another Narcoleptic like one. Most people don't even tell the doctor alot of the symptoms for fear they will be locked away, considered nuts. Ms. Utley is honest and frank. She has a compassion and ability to touch your very soul. I Thank God every day for her and her book. This is a must read and must have book.
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Most Recent Customer Reviews

5.0 out of 5 stars One of the most helpful materials I've found
I was diagnosed with Narcolepsy years ago. I have done much research on the disease, but still never knew many of the things I was experiencing were actually related to my... Read more
Published 2 months ago by Jessica A. Morin

3.0 out of 5 stars An interesting read, but a bit unreliable
I have recently been diagnosed with Narcolepsy. I read this book and enjoyed reading the author's experiences. Read more
Published 18 months ago by C. Yockstick

5.0 out of 5 stars Indispensable!
I highly recommend this book to anyone who is newly diagnosed, both for their own reading and to educate family members, friends, and employers. Read more
Published on September 28, 2005 by Ali

5.0 out of 5 stars Great non-technical primer
Utley's book is a tremendous help to those who need to know more about this disorder.

She's great in interjecting humor, while at the same time showing empathy for others. Read more

Published on April 28, 2004 by John K. Puskar

5.0 out of 5 stars Narcolepsy and Life
After reading this book I was better able to understand why I go through what I do. Being a person with narcolepsy I applaud Ms. Read more
Published on February 15, 2004 by Yvonne Debellotte

5.0 out of 5 stars Wonderful
Narcolepsy is a hard disorder to live with and this book really helped. It helped me to understand some symptons that I had that I did not relate to narcolepsy. Read more
Published on April 15, 2001

4.0 out of 5 stars Good Layman's Guide to the Disorder
The author has narcolepsy and explains the disorder from her personal experiences.

Well organized and insightful. Read more

Published on August 19, 1997

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