Porphyria: The Unknown Disease (Paperback)

by Diana Deats-O'Reilly (Author)

Editorial Reviews

Review
A good understanding of this inherited metabolic disease presented in a clear understandable text. -- A Medical Education Reviewer

A nice read and good content. -- A DNA researcher

A splendid book on Porphyria written in a most scholarly fashion with an impeccable style and a grasp on all of the intracacies of Porphyria which is admirable. -- A Medical Reviewer

Product Description
A vital book to the countless number of people who suffer from the debilitating effects of the metabolic inherited disease Porphyria written in a non-medical terminology for both the patient and medical clinician.

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Product Details

• Paperback: 313 pages
• Publisher: Porphyrin Press (March 2, 1998)
• ISBN-10: 096703650X
• ISBN-13: 978-0967036502
• Average Customer Review: 5.0 out of 5 stars See all reviews (15 customer reviews)
• Amazon.com Sales Rank: #2,251,962 in Books (See Bestsellers in Books)

Customer Reviews

Most Helpful Customer Reviews

6 of 6 people found the following review helpful:

5.0 out of 5 stars COMPREHENSIVE OVERVIEW SIMPLY STATED, January 5, 2002

By	Sharon Richards (South-Central U.S.A.) - See all my reviews

I was given the term "porphyria" over the phone from the specialist who did not explain anything except told me to get this book and read it cover from cover. When the book arrived I had all kinds of questions which were covered in simple to understand language for the ordinary patient. No mumbo-jumbo of medical terms. When I went back to see the specialists we then were able to dialogue because we both had a basis of information as a background. Since then I have ordered books for co-workers, family members and my pastor so they can understand what I have and understand that it is not a psychological disease.

8 of 9 people found the following review helpful:

5.0 out of 5 stars Simply stated, easy to understand and comprehensive., October 5, 2001

By	R. Anderson M.D. (Rocky Mountain region) - See all my reviews

This is not a heavy medical text or full of biochemical terms, but written in everyday layman's English, and something a clinician can share with a patient knowing that the book will cover all aspects of the acute hepatic form from description, medical history, drugs, nutrition, to family interpersonal relations to the wonderful case histories of case subjects.

No other porphyria book can be grasped as well as this one.
This book was written by a patient with a publishing house offering the book to the general public as part of the non-profit charitable Porphyria Educational Services, a group that gives
educational support for patients with this disease.

Unsafe Drug lists in this box and all other information found
in the text is regularly updated on a website of the same name,
so your handbook is always up-to-date.

I have freely shared this with my patients which they could read and share with family members. It was most helpful for them as well as saving costly time having to be spent in the clinic.

3 of 3 people found the following review helpful:

5.0 out of 5 stars EASY-TO-UNDERSTAND BASIC PORPHYRIA, October 19, 2001

By	george m endicott (Rocky Mountains) - See all my reviews

Luckily I ran across this very basic easy-to-read medical handbook designed for patients. Not the ordinary scientific approach to a complex subject, but written that any patient can understand the basis of their complex disease. It is a "keeper" and one that I know I will be sharingwith medical students and patients alike.