From Booklist
Panzarino is a severely disabled lesbian activist and art therapist, and her story is scary in its forthright honesty. Born with a rare progressive muscular disease, she has lived a life in which virtually no achievement is small and nothing is taken for granted. She speaks uncompromisingly about the pain of ill-advised childhood braces, the guilt at disappointing her parents, waiting for assistance with toileting, and being barred from elementary school and the day-to-day companionship of other children. Dependent on a mother with two additional children, one of them born with the same malady, Panzarino well communicates the great frustration, anguish, and turmoil she endured during her fight for education, employment, a usable wheelchair, reliable aides, transportation, accessibility, and, ultimately, a life of her own in which she could realize personal and political growth. A longtime friend and sometime lover of disability rights activist Ron Kovic, Panzarino eventually turned to lesbianism and political activism. She established Beechwood, a communal living environment for disabled women, where she continues her work as a therapist, writer, and activist.
Whitney Scott
Product Description
Born with a rare muscle disease, the author recounts the challenges of growing up handicapped, her early adulthood and dawning political activism, her relationship with Vietnam veteran Ron Kovic, her lesbianism, and her work as a disability rights activist. Original.