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The Iron Disorders Institute Guide to Hemochromatosis: A Genetic Disorder of Iron Metabolism
 
 
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The Iron Disorders Institute Guide to Hemochromatosis: A Genetic Disorder of Iron Metabolism (Paperback)

~ Wylie Burke (Author) "By the time John was thirty, he was impotent, depressed, exhausted, and experiencing severe chest pain..." (more)
Key Phrases: transferrin iron saturation percentage, saturation percentage greater, human hemochromatosis, Iron Disorders Institute, United States, Scientific Advisory Board (more...)
5.0 out of 5 stars  See all reviews (16 customer reviews)
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Product Description

Hemochromatosis is one of modern medicine's greatest oversights. A disorder that few Americans are able to pronounce at first glance, it is an inherited disorder of iron metabolism, not a blood disease, that can be fatal if not detected in time. Commonly misdiagnosed as arthritis, diabetes, heart disease, impotence, depression, and liver disease, hereditary hemochromatosis is common in people of northern European descent and is most prominent among the Scotch-Irish.

The Iron Disorders Institute Guide to Hemochromatosis is a reference book for home use. It contains helpful charts, diet and nutritional information, treatment guidelines, a glossary of terms, and compelling personal stories of people living with the disorder. Written by the top researchers and experts in university and research hospitals from all over the United States, it is destined to become the definitive source for information about the disorder for millions of families worldwide.

Undetected hemochromatosis frequently is fatal, and that is why it is emerging as one of the most important health issues of the new millenium. It's real, it's common, and it can kill you.



About the Author

Cheryl Garrison is an artist, writer, and cofounder and Vice President of Educational Development of the Iron Disorders Institute. The editor of the Iron Disorders Institute's publications, read worldwide by physicians and patients alike, she lives in Clyde, North Carolina.

Product Details

  • Paperback: 368 pages
  • Publisher: Cumberland House; 1 edition (May 2001)
  • Language: English
  • ISBN-10: 1581821603
  • ISBN-13: 978-1581821604
  • Product Dimensions: 7.8 x 5.5 x 1.1 inches
  • Shipping Weight: 1 pounds (View shipping rates and policies)
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (16 customer reviews)
  • Amazon.com Sales Rank: #41,922 in Books (See Bestsellers in Books)

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    #2 in  Books > Health, Mind & Body > Disorders & Diseases > Genetic
    #70 in  Books > Health, Mind & Body > Reference

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Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
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Inside This Book (learn more)
First Sentence:
By the time John was thirty, he was impotent, depressed, exhausted, and experiencing severe chest pain. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
transferrin iron saturation percentage, saturation percentage greater, human hemochromatosis, iron loading condition, diagnose hemochromatosis, iron loading disorder, standard phlebotomy, therapeutic phlebotomy, iron imbalances, quantitative phlebotomy, loading disorders, chest port, normal iron metabolism, elevated ferritin, hereditary hemochromatosis, phlebotomy treatments, iron overload disease, neonatal hemochromatosis, elevated iron levels, elevated serum iron, high iron levels, high ferritin, elevated serum ferritin, blood extraction, tissue iron
Key Phrases - Capitalized Phrases (CAPs): (learn more)
Iron Disorders Institute, United States, Scientific Advisory Board, National Institutes of Health, Advisory Board Member, Blood Institute, Mayo Clinic, Patient Survey, Department of Medicine, James Connor, New York, Patient Services, San Diego, Eugene Weinberg, International Consensus Conference, John Beard, Rochester General Hospital, Scientific Conference, Cheryl Garrison, Marie Warder, Northern European, South Africa, Vincent Felitti, American Hemochromatosis Society, Clara Camaschella
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13 of 13 people found the following review helpful:
5.0 out of 5 stars The Iron Disorders Institute "Guide to Hemochromatosis", August 13, 2001
By kay cash (Salt Lake City, Utah) - See all my reviews
The Iron Disorders Institute "Guide to Hemochromatosis" is a cogent book. The cover gets ones attention immediately, as it lists the symptoms on the cover. When my daddy died on July 4, 2000, I had never heard of Hemochromatosis, I am 57. He was diagnosed, too late, on July 1, 2000. After a zillion hours of searching the Internet about Hemochromatosis, I came away very angry about this "most common genetic disorder, because it is basically unknown by the layman and underdiagnosed by the medical profession, 1/250 have it and don't know it, and 1/10 carry the gene," per the CDC. (Many professionals still call it a "rare old man's disease.") Excuse me, but women have Hemochromatosis also. All that was needed was for my daddy to have had an early diagnosis, and give blood to reduce his iron level. This book is the most comprehensive and up-to-date information that the layman can read about Hemochromatosis. And the layman had better read it, because their doctors don't know about its prevelence, and many don't know to test for it. Instead the doctors continue to "well-meaningly" treat the patient's symptoms. Simple blood tests that are described in the book, can diagnose Hemochromatosis. The individual must arm themselves with this book's information and help educate their doctor. In fact, I have bought "Guide to Hemochromatosis" for a few doctors.
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11 of 11 people found the following review helpful:
5.0 out of 5 stars At last, just what the patient ordered!, January 13, 2002
By Cheryl Mellan (Marietta, Ohio) - See all my reviews
(REAL NAME)   
I am absolutely delighted with the Iron Disorders Institute
"Guide to Hemochromatosis"!

It has been three years since our family first heard the word
"hemochromatosis", and in that time I have searched public
and hospital libraries as well as the Internet in an attempt to
find factual, non-partisan, current information; comprehendible
by a layperson. I have sifted through clinical information beyond my level of understanding, as well as reams of half-truths, non-truths and sheer conjecture.

What an education, at such an affordable price! I sincerely
appreciate the fact that the Iron DisorderS Institute has offered
the knowledge that there are MANY disorders of iron metabolism,
not ONLY the one that genetically affects our family. They
have offered education in the form of charts, diet and nutritional information; COMPLETE understandable clinical information.

The CDC tells us "Approximately one of every 200 to 400 people
is affected, while one in 10 is a carrier making this one of the most common of the known genetic disorders in the United States". Sadly, it is one of the most MISSED diagnoses. With educational materials like this book offered by experts in the field, I feel hope and confidence that my husband will successfully deal with his diagnosis; our daughters will never experience what their dad has because of their KNOWLEDGE; and for our grandchildren, iron overload will be something they deal with through lifestyle choices and yearly monitoring - it will never hurt them. Perhaps most important, what a gift to an unsuspecting public, so many of whom carry this genetic mutation, and have yet to find that illusive, lifesaving diagnosis!

My most sincere thanks!
Cheryl Mellan,

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10 of 10 people found the following review helpful:
5.0 out of 5 stars The Iron Disorders Institute Guide to Hemochromatosis, January 23, 2002
By James E Hines (South Lancaster, MA United States) - See all my reviews
At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis. "The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource. I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies.

I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results. There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide".

The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated. The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields.

The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive. There is little doubt as to the value of this book in one's arsenal for educating loved ones about the insidiousness of excess iron and the damage iron can do to the human body.

I found that one can simply read individual chapters in no particular order and assimilate a plethora of knowledge without being bogged down in technical jargon. This book relates well on a very personal level. I can not emphasize enough the value of this book. It commands a highly visible location in my reading library, replacing the "Reader's Digest".

I also highly recommend this book as being very germane to every individual, worldwide, who has Irish, Scottish, or English ancestry.

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Most Recent Customer Reviews

5.0 out of 5 stars Great Book!
I found the information in this book to be very useful! Loaded with answers to the many questions I have about hemochromatosis
Published 14 days ago by L. Watts

5.0 out of 5 stars Hemochromatosis: A Genetic Disorder of Iron Metabolism
This book is full of important information for everyone, but especially for people with iron disorders! Read more
Published 7 months ago by Jane Collett

5.0 out of 5 stars informative
This book has some really great info that you can't find other places. A real must for anyone dx with or close to someone dx with "iron overload".
Published 19 months ago by Letha Roberts

5.0 out of 5 stars Nothing more you need to know.
This book was recommended by a friend when my 26 year old son was diagnosed with hemachromatosis, before I even knew my husband and I are both carriers. Read more
Published on November 4, 2007 by zan gregory

5.0 out of 5 stars Excellent
This book should be much easier to find.The information is badly needed.If it were more accessable more people would see the symtoms and perhaps get better diagnosis. Read more
Published on October 16, 2005 by J. Whitaker

5.0 out of 5 stars solid information for people with this problem
Finally, there is definitive information out there, instead of just people passing word of mouth warnings. This books is worth gold for people of Celtic ancestry. Read more
Published on May 3, 2004 by Deborah MacGillivray

5.0 out of 5 stars guide to hemochromatosis
An incredible find that will save many lives. It explores the world of iron overloading and hemochromatosis in an easy to read style. Read more
Published on January 23, 2002 by gordon brown

5.0 out of 5 stars BEST INVESTMENT
This book will be everyones BEST investment for good health. It brings to the fore the lastest information on one of the most devastating causality of diseases.
Published on December 6, 2001 by Tom Cigolotti

5.0 out of 5 stars Guide to Hemochromatosis
This is the first and only text containing a complete and understandable body of knowledge on the disorder known as hemochromatosis. Read more
Published on July 11, 2001 by Donald L. Moore, Jr.

5.0 out of 5 stars Medical Professionals Take Heed
All Physicians, Nurse Practicioners, Nurses, and Medical students,should update their knowledge by becoming more sensitive and aware of this common health problem! Read more
Published on May 18, 2001 by rsa1

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