This book is a memoir of nursing a palliative child with Sandhoffs disease, who was undergoing a trial medication treatment not available in Australia and never before used on a child. Its also about her mothers journey with exploring the "why?" As a nurse who attended in the home, and edited the ms, I recommend this.
Artemissia: A Spiritual Awakening
What if your daughter is dying? How do you respond? This book shows how we are all capable of incredible greatness of spirit. And lightness of heart. Share with Kelly the spiritual journey that people spend lifetimes in monastries preparing for. She did it in her living room. Near Bryon Bay. And so can you.
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