55 of 66 people found the following review helpful
Is Immortality really worth the price?,
This review is from: The Immortal Life of Henrietta Lacks (Hardcover)
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Rebecca Skloot has written a book that certainly sounds like it could be science fiction, but in truth it is incredible science. However, it's not only about the science, but more importantly about who is behind it all. She has put a very real face to one of the most important medical research discoveries of our lifetime and given an appropriate name to the HeLa cells used in that research all over the world; Henrietta Lacks.
This book recounts the life of Henrietta, the death of Henrietta and the immortal cells she left behind that became the basis of many life saving discoveries in the medical field. HeLa cells are those which were taken from Henrietta's cancerous tumor many decades ago. They were easily replicated and viable for testing therefore they became an important staple in laboratories doing medical research right up to the present. Many have her cells to thank for their treatment and cures of deadly diseases.
Sounds like a generous donation to the medical community, doesn't it? But, what if Henrietta and her family had no idea any of this had taken place? They didn't know that her doctor had taken the cells, and upon realizing how unique they were, shared and traded them with other researchers. They especially were unaware that these were eventually being sold for a profit among labs and medical companies. Was this a case of explotation or was it simply how science progresses?
The author finds the surviving family of Mrs. Lacks and realizes there is far more to the story than it would first appear. She touches on each of the sensitive topics that present themselves as the family approaches her with so many questions left unanswered. The more I read, the more fascinated I became with the complexities.
The Lacks family are uneducated and living in poverty, struggling to understand how their loved one could have saved so many lives while her own could not be saved. They find it hard to believe their mother has done so much for the medical community, and made some companies millions of dollars, yet they cannot even afford good medical care. They wonder how cells were named after her yet there was no true recognition of her by her full, real name. The children hope that Ms. Skloot will not be another journalist to take advantage of them, but that she will give their mother the place she deserves as a real person, not just a "cell donor". Ms. Skloot does exactly that and I believe they would be very happy with the care she has given to the subject.
It's my opinion that everyone studying medicine & science should read this book to gain insight as to the genuine lives of patients. The understanding that there is much more to a person than their cells, their lab results, their disease, etc., is such an important lesson to be learned. To take a quote from the book, stated by the assistant who helped retrieve the cells while Henrietta was in the morgue, "When I saw those toenails I nearly fainted. I thought, Oh geez, she's a real person. I started imagining her sitting in her bathroom painting those toenails, and it hit me for the first time that those cells we'd been working with all this time and sending all over the world, they came from a live woman. I'd never thought of it thay way".
I would also highly recommend this book to anyone interested in the ethical and legal aspects of the medical and scientific communities. There is also a significant component relating to the Johns Hopkins, the black community and black history. Every aspect was fascinating and eye-opening.
If you are wondering how this could have happened, be warned that it could just as easily happen to any of us tomorrow, as there are still no laws in place preventing any doctor or hospital from keeping and using our tissue, or our children's umbilical blood, or our parents tumors for research once collected. Perhaps it is better that we all contribute to furthering scientific discoveries. But, you might rethink "immortality" after hearing this story. Just one more good reason to read this book.