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Amyotrophic Lateral Sclerosis (American Academy of Neurology Press Quality of Life Guide Series) Paperback – October 1, 2004

by Robert G. Miller (Author)

4.3 7 ratings

Part of: American Academy of Neurology Press Quality of Life Guides (8 books)

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"ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS.

In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families.

Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations."

Part of series

American Academy of Neurology Press Quality of Life Guides
Print length

256 pages
Language

English
Publisher

Demos Health
Publication date

October 1, 2004
Dimensions

6 x 0.58 x 9 inches
ISBN-10

1932603069
ISBN-13

978-1932603064
See all details

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Editorial Reviews

Review

"Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze? You'll find answers to all these questions and more in this highly readable book" -- MDA/ALS Newsmagazine

"*****"All of [the authors] have extensive experience helping individuals affected by ALS and their families. Thus, the information they offer in the book is practical, realistic, and specific... All in all, Amyotrophic Lateral Sclerosis provides up-to-date, comprehensive information on living with ALS, which make it very useful for individuals affected by ALS and their families." -- About.com

"Informative, accurate and even reassuring, and will be valuable to readers internationally. In particular, the description of the major features and symptoms caused by ALS is excellent, and the methods of managing these problems are simply and lucidly explained... This book is an excellent and well thought-out example of an important resource that should be made available to all those suffering with ALS." - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders

"The authors are all experts in the management of ALS, and this book will be much appreciated by patients and professionals alike." --From the foreword by Lewis P. Rowland, MD, Neurological Institute, Columbia University Medical Center (Lewis Rowland, MD From the foreword, Neurological Institute, Columbia University Medical Center 20100503)

About the Author

Robert G. Miller, MD, is Director of the Forbes Norris MDA/ALS Research Center at the California Pacific Medical Center in San Francisco; Clinical Professor of Neurology in the Department of Neurology at the University of California, San Francisco; Clinical Professor of Neurology and Neurological Sciences in the Department of Neurology at Stanford University Medical School; and Director of Neuromuscular Research and Chairman of the Department of Neurosciences at California Pacific Medical Center (CPMC) in San Francisco.

Dr. Deborah Gelinas is the Clinical Director of the Forbes Norris MDA/ALS Research Center.

Patricia O'Connor, RN, is the nurse case manager and coordinator of the Multidisciplinary Clinic at the Forbes Norris MDA/ALS Research Center in San Francisco, CA.

Product details

Publisher ‏ : ‎ Demos Health; 1st edition (October 1, 2004)
Language ‏ : ‎ English
Paperback ‏ : ‎ 256 pages
ISBN-10 ‏ : ‎ 1932603069
ISBN-13 ‏ : ‎ 978-1932603064
Item Weight ‏ : ‎ 12.5 ounces
Dimensions ‏ : ‎ 6 x 0.58 x 9 inches

Best Sellers Rank: #2,206,099 in Books (See Top 100 in Books)
- #1,681 in Nervous System Diseases (Books)
- #1,761 in Alzheimer's
- #1,936 in Dementia

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4.3 7 ratings

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Melissa Phelps

Five Stars

Reviewed in the United States on August 5, 2014

Verified Purchase

In good condition. Very reasonable price.

Helpful

E. Cousins

Helpful and to the point! I wished they issued an updated edition!!!!

Reviewed in the United States on May 11, 2009

Verified Purchase

I found the chapters about insurance, clinical trials, and the resources appendix to be really practical and to the point. I have a neurobiology background but I do not know much about ALS: the first chapter provided me with an excellent road map I can take and run as a base to further my education as a health care provider whose relative was just diagnosed.
Thank you!!!
PS Is there a new edition in the pipeline? a 2005 edition is somewhat outdated when it comes to diagnosis, outcomes, therapeutic options, clinical trials, and at times even legal/insurance issues.
I would really appreciate it if someone could give me the heads up on it, or anything else pertaining to ALS education and treatment. I can be contacted through "the bookish trader" on amazon.
Thanks,
ECC

5 people found this helpful

Helpful

Carolyn Sexton

I have ALS and was surprised this helped....

Reviewed in the United States on July 24, 2006

Cover to cover this book enlightened me to what I've expereinced, feared and now need to predict. Having lost my aunt and godmother to this disease made me feel guilty and aprehensive. I taught religion for 5 years to 8th graders in addition to my full time job. In the last year I had to tell them the truth about me, I now have ALS, the first group outside my family and very close friends. I did not think reading this book would encourage me to hope but it did. Although most of my family also are reading it too, it almost seems harder for them then me, but in the end its good advice and at least opens the door for good and educated communication when decisions will be needed.

7 people found this helpful

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LindaFaith

Explained the disease fairly well, but I wish it ...

Reviewed in the United States on September 22, 2014

Verified Purchase

Explained the disease fairly well, but I wish it had gone more into the methods of diagnosis. Will keep as a reference.

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