Amyotrophic Lateral Sclerosis: A Guide for Patients and Families:Third Edition Kindle Edition

4.5 out of 5 stars 25 customer reviews
ISBN-13: 978-1932603729
ISBN-10: 1932603727
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Editorial Reviews

Review

"...serve(s) as a useful introduction to clinicians...dealing with ALS...as well as a guide to patients and families." -- Physical Therapy, January 2002

You couldn't ask for a more comprehensive (book) than this latest volume from Demos. -- Quest, Vol. 8, No. 4, 2001

About the Author

Hiroshi Mitsumoto, M.D., is director of the Eleanor and Lou Gehrig MDA/ALS Center and professor of neurology at Columbia-Presbyterian Medical Center in New York. He is a past chairman of the Medical Advisory Board of the ALS Association. Drs. Mitsumoto and Munsat are internationally acclaimed experts in the management of ALS.

Product Details

  • File Size: 3439 KB
  • Print Length: 499 pages
  • Page Numbers Source ISBN: 1932603727
  • Publisher: Demos Health; 3 edition (March 16, 2009)
  • Publication Date: March 16, 2009
  • Sold by: Amazon Digital Services LLC
  • Language: English
  • ASIN: B004INGZIG
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Enabled
  • Lending: Not Enabled
  • Enhanced Typesetting: Not Enabled
  • Amazon Best Sellers Rank: #917,342 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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Customer Reviews

Top Customer Reviews

By S. Hansen on May 16, 2003
Format: Paperback
My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
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Format: Paperback
I used this book religiously before my dad passed away from complications due to ALS last July. The book was very helpful to understand what was happening and what was coming. As depressing as it all is, it was better to understand the situation so I could do all I could to help my loved one. I was just looking at my copy the other day and the amount of highlighting in it and stickies hanging out of it reminded me of how used the book was.
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Format: Paperback
Hiroshi Misumoto, MD, author of this book, has assembled articles from experts in all areas surrounding ALS (Lou Gehrig's disease). While it can become fairly technical in scope for the home user, it is an encyclopedic reference for those who suffer from the disease and those who care for them.

Usually, I avoid books with articles from many experts because often these articles are simply filler that make a short book appear long. Such is not the case with this book. Each expert has contributed advice from his or her field of experience and knowledge concerning ALS. Every issue of treatment and care is covered in this book, and there is enough information to help the patient and caregiver ask the physician specific questions and be knowledgeable enough to understand the answers.

I imagine that reading Amyotropic Lateral Sclerosis will appear daunting at first to many. However, the information is presented in readable fashion once you get started. Each subject area, covered in chapter format, can be tackled as needed, so you don't have to attempt to read this book through in a very short time.

Hats off to Mitsumoto for a well-researched, well-presented volume.
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Format: Paperback Verified Purchase
Some people complain that this is more like a college text book. I have been in 2 specialist's offices and have seen this book on their shelves. I have witnessed an incident where the neurologist actually referenced this book to explain what he was talking about. Great reference guide if that is what you were looking for!

I am not sure if I am allowed to do this or not, but here it goes:
If you are looking for a personal account of ALS, I would recommend "Riding Sideways" by Darla Burns
also, "I Choose to Live" by William Sinton. This book, however, becomes an autobiography halfway through, for a few chapters, but it is a great view on his journey. Both books had made me realize certain details or aggravations that Dr Mitsumoto doesn't cover.
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Format: Paperback Verified Purchase
This is an excellent resource for patients and families. Things are explained in a non-technical manner. There is an index where you can look up topics by page #. Each chapter focuses on something different and all are written by professionals. You don't have to read the book cover to cover, you can just read the parts that pertain to you right now (if that's the way you want to do it). I purchased this book based on reviews from others who have bought it and am very happy. I do not feel the need to search for another book to even supplement this one.
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Format: Paperback
If it wasn't for this book, the last couple of months of my ex's life would have been even worse. This book explains EVERYTHING you need to know when dealing with ALS. There isn't a lot known about how to deal with it. I met doctors, hospitals, rehabilitation facilities that had no CLUE about how to handle the symptoms of this disease.

This book took me from initial diagnosis and symptoms, to what do do after Michael was diagnosed, to the most OBVIOUS things like GIVING HIM A VACUUM MACHINE WHEN HE COULD NO LONGER SWALLOW. I mean - REALLY now - do we HAVE to tell medical people to give him a vacuum when he can no longer swallow? They even mentioned what pain drugs he should have been taking. They went from like a Tylenol thing at the hospital to fentynl. Finally, it brought us through the final stages. Michael did ALL the things this book told me he would do.

PLEASE PLEASE PLEASE PLEASE if you only buy ONE book and you're a caregiver of someone with ALS, this is the book to get! I am now a family advocate for ALS, because there just isn't enough known about it. I truly wish I could meet Hiroshi Mitsumoto. I would love to give him a HUGE hug. Michael's disease moved so fast, and I didn't get involved until the last few months, but without this book, I would have been completely lost. HIGHLY RECOMMENDED. And in response to others' posts - YES, it IS like a textbook. If you're going through a specific issue in relation to ALS, you want to be able to look up the topic and jump right to the answer. Written in plain terms so you'll understand, but it ALSO tells you the correct MEDICAL terms, so when the doctors don't want to listen, you throw a few of these buzz words out, and all of a sudden, they pay attention!

Please believe me - it's a must have. I PUT IT ON MY AMAZON KINDLE, SO I HAD IT WITH ME WHEREVER WE WENT!
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