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Babies with Down Syndrome: A New Parents' Guide Paperback – September 19, 2008

4.6 out of 5 stars 46 customer reviews

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Editorial Reviews

Review

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

This book was originally published in 1985 because so little accurate and positive information on Down syndrome was available. Revised for the first time in 13 years and featuring four new chapter authors, it covers information that will be most helpful for families with children from birth to age five. Including the experiences and advice of parents, this should be one of the first books parents read upon receiving their child s diagnosis. The contributors-- educators, medical professionals, adults with Down syndrome, and, primarily, parents of children with Down syndrome--along with editor Skallerup, mother of a child with Down syndrome, define Down syndrome and discuss adjusting to your baby, medical concerns and treatments (for example, 40 to 60 percent have some type of heart defect), daily care, family life, postnatal development, the importance of early intervention, and legal rights and hurdles. Highly recommended for parenting collections in public libraries. --Library Journal, *starred review, October 1, 2008

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

About the Author

The contributors are Sue Buckley, Jean Nelson Farley, Marian H. Jarrett, Emily Perl Kingsley, Chahira Kozma, Len Leshin, Mitchell Levitz, Joan B. Riley, Jo Ann Simons, Susan J. Skallerup, Marilyn Trainer, and Mary Wilt. A mix of parents of children and adults, an adult with Down syndrome, advocates, educators, early interventionists, medical professionals, and writers, all are dedicated to helping children with Down syndrome.
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Product Details

  • Paperback: 352 pages
  • Publisher: Woodbine House; third edition edition (September 19, 2008)
  • Language: English
  • ISBN-10: 1890627550
  • ISBN-13: 978-1890627553
  • Product Dimensions: 5.5 x 0.8 x 8.4 inches
  • Shipping Weight: 14.4 ounces (View shipping rates and policies)
  • Average Customer Review: 4.6 out of 5 stars  See all reviews (46 customer reviews)
  • Amazon Best Sellers Rank: #144,906 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

By Brittany R. Massey on October 19, 2009
Format: Paperback Verified Purchase
If you recently had a child that was diagnosed with Down syndrome, or like myself, had an amniocentesis come back with positive results for a baby with Down syndrome -- BUY THIS BOOK.

There's a lot of information on the internet, but this book not only compiles it together for you in an organized fashion (so you actually retain what you read...) but it also provides humanity. Short snippets at the end of every chapter help you cope with the array of emotions that you will be feeling -- without making you feel bad, dirty or even worse.

The information in this book is amazing. The information itself actually cheered me up and made me realize, "Hey, it's actually NOT that big of a deal." I'm truly indebted to the authors and contributors of this book.

You can find as much information as possible for children and teenagers with Down syndrome -- if you have a child passed the age of 9. This book provides you with information for NEWBORNS, INFANTS, TODDLERS and YOUNG CHILDREN. Again, invaluable.

If you're a family member (grandparent-to-be, or new grandparent) BUY this for yourself as well. There's a lot of teamwork involved in raising a child with Down syndrome, and whilst you may not be the main source of the team... your ability to cooperate with mom and dad's new way of raising this child will help tremendously. There's also a lot of legal issues in regards to the child's future that all grandparents need to know!
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7/12/2011...We were blessed with a beautiful Down Syndrome grandchild, we thought my goodness we know nothing about what challenges lie ahead for our little man...this book is wonderful, it has informed us on what to expect and also what is expected of us...we have started to learn sign language already just in case he has a communication issue...This book makes life in general so much easier...
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i bought this so i could learn more about down syndrome and if there were anythings i could be doing right away besides the basics. i have three children and my youngest 4 months old has down syndrome. i like the book it has alot of good information about down syndrome in easy to understand terms. BUT there is one thing i do not like about this book. i dont like the fact that it says you should give yourself time to grieve... why is anyone grieving for anything... seriously. you gave birth to a preicious little baby so what if your baby has an extra chromosome its not something to grieve. now if you have any child that is born with a life threatening problem then i can see you being upset and sad but if you have a healthy baby with down syndrome then whats the problem. but thats my opinion. my husband and i never once thought for a second why us? why cant we have a typical baby? all we ever thought was we have three perfect children and one just so happens to have down syndrome. and as for being sad when you see a baby the same age as your ds baby doing things your baby cannot do just yet... well guess what my oldest two who do not have down syndrome were completely different my first do everything earlier then average children my second on the other hand did everything at average age or a little old. like my first starting rolling over at 2 months (belly to back) my second was four months exactlly and my baby with down syndrome was four months and six days when he did. all kids are different just give them love patience and teach them and when they are ready they ll do it themselves.
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I bought this for a friend who was overwhelmed She said the book had helpful information without sounding too clinical. It even gave information about how when the baby starts school the schools can try to reimburse some of their costs through your insurance and leave you in a bind, something that never would have occurred to either of us. All in all this book is an excellent starting point that may answer questions you didn't even know you had.
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The scariest thing about Down Syndrome for me was, quite honestly, the fact that I knew nothing about it. After a recent discovery of my boyfriend's nephew being born with the condition, I think the hardest part for our family to register was the intial shock and fear of not knowing what to do or how to do it. "Babies with Down Syndrome, A New Parent's Guide," was extremely helpful to me; I felt that the book provided intelligent and useful medical and parental information as a guide to help care for your newly diagnosed baby. Knowledge truly is power - and the sources listed in the back of the guide provide further information that one can look into, such as support groups, reliable websites, forums, etc. I did not feel overwhelmed by medical diction and felt humbled by snippets of realistic accounts submitted by parents of children with Down Syndrome. I would definitely recommend this book as a start to your understanding of Down Syndrome and have passed it throughout the family.
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This book is very informative. I was given this book after my son (who has DS) was born. I highly recommend it. Don't let it scare you though. Not all DS babies have all the issues they talk about. They are just letting you know guidelines as to what to watch for and what to have checked.
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