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CONGENITAL ADRENAL HYPERPLASIA: A Parents' Guide 1st Edition

4.9 out of 5 stars 19 customer reviews
ISBN-13: 978-1420806496
ISBN-10: 1420806491
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  • CONGENITAL ADRENAL HYPERPLASIA: A Parents' Guide
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Editorial Reviews

About the Author

C. Y. Hsu is the mother of a child with Congenital Adrenal Hyperplasia. She holds a Bachelor of Science degree from the Massachusetts Institute of Technology in Cambridge, Massachusetts, and a Master of Architecture degree from Harvard University. Ms. Hsu is a licensed Architect who has practiced in Boston, New York, and Williamsburg, Virginia. Currently, she has her own small architecture firm in Connecticut. Scott A. Rivkees, MD, is Professor of Pediatrics at the Yale University School of Medicine in New Haven, Connecticut, and Director of the Yale Child Health Research Center, a think tank devoted to finding treatments and cures for childhood diseases and illnesses. He is also Associate Chair of Pediatrics for Research, and Chief of the Section of Developmental Endocrinology and Biology at the Yale School of Medicine.
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Product Details

  • Paperback: 308 pages
  • Publisher: AuthorHouse; 1 edition (September 19, 2005)
  • Language: English
  • ISBN-10: 1420806491
  • ISBN-13: 978-1420806496
  • Product Dimensions: 6 x 0.8 x 9 inches
  • Shipping Weight: 1.2 pounds (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (19 customer reviews)
  • Amazon Best Sellers Rank: #738,241 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

Format: Paperback Verified Purchase
Great book to get a thorough understanding of the disorder and feel confident when discussing treatment with doctors. I read the entire book in a week when my baby was a newborn and was able to easily grasp what we're up against now and in the future to keep my daughter healthy. I highly recommend this book to any parents or interested relatives of someone with CAH.
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Format: Paperback
This detailed book provides answers to parents' most pressing questions about CAH. The tables and graphs are very helpful. It is well written and easy to understand... a must have for every family affected by CAH.
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Format: Paperback Verified Purchase
The best. It was recommended to me by our endocronologist and then by so many other parents. If you're recently diagnosed or just looking for more information on a previous diagnosis, this book holds most of the answers to the questions you may have. It really helps understand the condition and can make it a lot less scary for new parents. A 'must have' for anyone who deals with CAH.
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Format: Paperback
I call this book WONDERFUL = MY OWNER'S MANUAL = FINALLY

My CAH (salt wasting) son is now 25 y.o., married and on his own. I have wished for this book since his diagnosis at 6 wks of age. I learned how to care for him the hard way, trial and error. I have purchased this book to help his wife, learn about his condition. The problems and medical requirements needed to live a normal life.

I had to explain his signs of crisis and treatment needs. Every trip to the E.R., a new physician, many a night I sat next to his bed in the hospital, explaining to the nurses his condition.
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We have had this book for five years now, and still find it indispensable for so many situations. We have used it as an educational resource for nannies, school staff, family members, and non-endocrinologist medical professionals.

We first bought this when our first child was born and was diagnosed with SW-CAH. We needed to educate ourselves and this was our starting point. There is a lot of inaccurate and misleading information about this disease on the internet, and this book is very effective and explaining the facts. Between this book and the information at the Cares Foundation, you can begin to understand how to manage CAH and what to expect in the years to come.

If you are affected in any way by CAH, or are a medical professional and want to learn about this rare disease, please buy this book. If you have a school ager with CAH, buy an extra copy to keep at the school.
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I highly recommend this book to anyone who is a parent or a loved one of someone with CAH. The book is very informative and really breaks down the condition in a way that is very easy to understand. I debated about buying this for 2 years because I felt like I was a pretty informed parent and I am glad I finally bought this book because I did come away with a better understanding of the way this condition affects the body.
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This book was recommended to us, and is a great resource in "everyday" English. Prior to this, we were getting most of our information from articles in medical journals, which, while helpful, were not the sort of information we could give to grandparents, aunts & uncles, etc. to educate them on caring for a child with CAH.
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Format: Paperback
This book is for anyone who has or knows a child with CAH.

It is full of information and UNDERSTANDABLE!! You should have a spare copy for your child's Doctor also. This genetic disease is just now being tested in newborns,and we still have some states that will not test for this, and babies are dying unneccesarily.

A MUST READ BOOK
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