- Series: Patient Centered Guides
- Paperback: 513 pages
- Publisher: Childhood Cancer Guides; 2 edition (October 11, 1999)
- Language: English
- ISBN-10: 1565926323
- ISBN-13: 978-1565926325
- Product Dimensions: 6 x 1.1 x 9 inches
- Shipping Weight: 1.6 pounds (View shipping rates and policies)
- Average Customer Review: 4.7 out of 5 stars See all reviews (44 customer reviews)
- Amazon Best Sellers Rank: #13,996,372 in Books (See Top 100 in Books)
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Childhood Leukemia: A Guide for Families, Friends & Caregivers (Patient Centered Guides) 2nd Edition
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"This book is an extraordinary resource. In its pages the reader will find clear, concise, and understandable information about childhood leukemia. And even more powerfully, the reader will "hear" the voices of parents who share their experiences in their own words: what worked, what didn't, what helped, what hurt. Families, friends, and caregivers who use this book will have information and support at their fingertips, and a powerful tool with which to help young people with leukemia get what they need to claim their lives in spite of this disease and the toll it takes." —Kathy Ruccione, PhD, MPH, RN Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program Children's Hospital of Los Angeles
"I highly recommend Childhood Leukemia to all families of children with leukemia. It is an immediate help for the newly diagnosed parent and a comprehensive reference for the subsequent years of treatment. This book covers everything-and I mean everything-that a parent needs to know about the issues surrounding treatment for childhood leukemia. It amazes me that for a disease as rare as childhood leukemia, someone as talented a writer as Nancy took the time to write such a complete and useful book." —Patty Feist, MS Parent a survivor of ALL, Webmaster, Pediatric Oncology Resource Center
"Childhood Leukemia was and is an invaluable resource for me. I discovered it a few months into my daughter's leukemia journey and have read and reread it. When Katie was first diagnosed I was told mountains of information, but was unable to absorb much of it due to the initial shock of having a child with cancer. Having all that information and much more at my fingertips has been a huge help. Sometimes it helped me just to know what questions to ask. Even now, months after treatment has ended, I continue to refer to the book for information about the different drugs that were used; I also use the book to help other parents who have questions." —Pat Lee Mother of a leukemia survivor
"Nancy Keene, whose daughter survived childhood leukemia, offers help and support in this comprehensive guide for families, friends, and health care providers of childhood leukemia patients. Leukemia Society staff and volunteers regularly use this guide as a valuable reference tool. 'This is an excellent guide for living and coping with childhood leukemia,' says Hildy Dillon, Director of the Information Resource Center at the Leukemia Society of America." —NewsLine Leukemia and Lymphoma Society
"This is the definitive book for lay people, parents of children with cancer, and survivors of childhood cancer themselves. We routinely provide a copy to all of our patients and families who are enrolled in our long-term survivor follow-up clinic for their education. It's a treasure chest of information." —Sharon B. Murphy, MD Chief, Division of Hematology/Oncology Children's Memorial Hospital Chicago, IL
"I am the great grandmother to a little four-year-old girl who has the type of leukemia known as ALL … I am 90 years old and was a bookseller for 25 years … Your book is so complete and so helpful in every way, that I couldn't resist sending you my compliments for writing it. Bless you." —Alice H. Sobey (one of dozens of thank-you letters sent to the author) --This text refers to an out of print or unavailable edition of this title.
From the Publisher
This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emtional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Our hope is that parents who read this book will encounter medical facts simply explained, will find advice that eases their daily life, and will feel empowered to be a strong advocate for their child. --This text refers to an out of print or unavailable edition of this title.
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Top customer reviews
A few things I really like about this book:
1) I love having all the drug information organized and easy to read
2) I love the personal quotes throughout from parents who have been through what we are going through
3) I love the hints and tips about how to make hospitalization easier including who makes up our medical team. As well as, what to expect while in the hospital.
4) I covers complications to treatment, insurance hints, and sections none of us want to visit (BMT, relapse and death and dying)
5) The importance of finding support for the whole family
This is a MUST have book for everyone who has a children diagnosed with ALL. MUST HAVE!! It is well organized and readable. Buy it. You wont regret it. It has been a great support to our family.
This disease is rare. We're very lucky to have a book like this. Let's do what we can to see that everyone who can use it has a copy.