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Chronic Fatigue Syndrome: A Novel: A Tale of Bureaucracy, Money, and Belief Paperback – December 15, 2010
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Top Customer Reviews
As a ME/CFS sufferer of 23 years, the book just makes me happy. Why? I love to think of people reading it and suddenly understanding: not so much the illness, but the way we've been gaslighted by the medical profiteers. Gaslighting is a form of psyhological abuse employed by sociopaths. The object is to make the victim question her own perceptions and judgment, and failing that, to make everybody else question her sanity.
Since the author has focused on following the money -- rather than abuse of patients -- she does not use the term "gaslighting", but it fits perfectly.
Happy is also the feeling I get when I think about educated rural people teaming up to get to the bottom of a giant betrayal of their sick friends and families, and setting a trap for the insurance-industry criminals who want to silence Alistair with threats. If you have enough of a community with enough skills among you, you can make enough stink to change the whole program.
My favorite scene is Alistair flying into the saddle and then jumping the fence to pursue the unknown man into her neighbor's woods. That would be one heck of a scene on-screen! My favorite character is Danny, the ex-marine equipped with strategies and wisdom. The "Evil won't care" quote is the best I've seen in a looooong time on that subject. You'll have to read the book to get the rest of it!
The book was too short for me. I wanted more character development, which would have required a longer novel. The first chapter left me under-impressed because the characters seemed unreal. I warmed up to them in the second chapter and onward. Alistair's character is actually a bit like mine: I was an environmental activist before my illness.
Anderson does not mention the first ME/CFS outbreak in the U.S., at LA County Hospital in 1934. Polio was going around, and the doctors and nurses were given the Brodie vaccine, which was still experimental. This resulted in the first ME/CFS cases. The 198 doctors and nurses were paid a settlement of $6 million in 1939, since they could no longer work, and needed medical care. The settlement, according to Dr. Hyde, came with a condition: keep quiet.
Dr. Ian Lipkin thinks it would take 3 years to identify the virus at the root of ME/CFS, given the funding to do it. My question is, would they let him publish his results? They've been keeping a lid on this pathogen for 80 years. And letting it spread.
I've only gotten a little over 50 pages into the book and can't wait to finish. I recommend the book for several reasons.
Those with the illness will see themselves among the characters. Those active on certain forums will be able to fill in some gaps in their knowledge, connect the dots in the big picture, and add some details. Many of us have become very good at research ourselves!
For family members and friends of people with CFS, it is a great source for understanding the illness and the barriers that have been placed to overcoming it.
I will be sharing this with many and most likely will need more copies!
If you suffer from CFS or Fibromyalgia you will read your story in this book. It will leave you questionning, "they" know something "they are not telling us".
With recently being diagnosed with CFS, I try to find out everything that I can about the disease. After reading this book, I gave it to my husband and children to read so that they too would understand the difficulties that CFS sufferers are attacked with on a daily basis.
I HIGHLY recommend this book to CFS sufferers, family members of CFS sufferers, and the medical profession. Not only is it well worth the money, but well worth the time to read, and learn just what CFS means.
from this illness for over seven years. I've been ridiculed, abused by doctors and had very unfair experience with my Long Term disability Insurance Company. the author revealed how and why this happens. This is the situation that thousands of patients with this illness have to face every year. I applaud the author for writing this book!
Most Recent Customer Reviews
this awful condition since 2001.Read more
There are a couple ways one can go about getting a diagnosis.
Go to a ME/CFIDS/CFS doctor.Read more