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Colitiscope: Living With Crohn's Disease and Ulcerative Colitis Paperback – September 1, 2009
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"This book will help a lot of people not feel so alone and shameful. It’s like having a conversation with a close, trusting friend." Marit Lysne, PsyD, LP, clinical psychologist, Carleton College
"Should be read by everyone affected by a chronic diseasepatients, families, friends and coworkers. It is informative and touching, and best of all, laugh out loud funny. I can’t wait to recommend it to friends, family and my patients." Ken Loving, MD, AAFP, family physician and medical director, Access Community Health Centers, Madison, Wisconsin
"As a parent, I have watched and experienced my son’s struggles with Crohn’s disease, but reading your words gives me a better understanding . . . very practical, and all ages will find parts they can identify with. It’s a quick read with lots of humor and smiles." Carolyn Bloom, physical therapist, Lawrence, Kansas
From the Author
When I was first diagnosed with ulcerative colitis I gobbled up all of the literature I could find on the topic. Mostly they were medical texts--encyclopedias of the disease, its symptoms, and the medications available. But none of them helped me with the trickier personal parts, like surviving a road trip or sneaking out of the office after an accident. Plus, I had a lot of questions: What is a colonoscopy really like? How do I talk to others about my disease? Who do I tell? How much do I share? And what will happen to my golf game!?
Unfortunately there are few resources that cover these practical issues. So, I wrote the book myself. You could call it a how-to or self-help book, but I see it as an adventure story. And it's a funny one, because laughing keeps my spirits up. The awkward situations I've experienced have helped me learn how to live with IBD, and I hope that by sharing that perspective I can help others find balance as well.
Top customer reviews
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This book will amuse those who have bowel disease, but I think will be a greater benefit to those who are close to someone with it and are trying to understand. Unless you can say you live your life in constant fear of embarrassment and illness, you need to find someone who can do a good job of explaining the experience to you.
I recommended the book to my family doctor and to my colon specialist for suggested reading material for patients and their families. I haven't found anything on the subject that is a well done as this book. It will mean someting to a great many people.
In the course of sharing these essays with others, I've learned that several people in my life live with either chronic bowel disease or digestive complications related to some other ailment. Were it not for Colitiscope, the topic would have never been raised, and that entire dimension of their lives would have remained unknown to me. With the subject broached--and with the knowledge gained from reading this book--I can now be a more understanding and effective friend.
In the end, these essays transcend Crohn's and colitis and offer a window into the challenges of living with any number of quiet afflictions. You walk away from the book more open, more inquisitive, and more equipped to understand one another.
It's a brave thing the author has done, publicly bringing attention to this subject, and I applaud him.
I don't know what else I can say, other than, everyone should read this book, if for nothing else than to learn about a very unknown disease so that you may understand it better and be more empathetic to those with it.