Confessions of a Kidney Transplant Recipient Kindle Edition
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The book is a must read for people with kidney failure - it helps you prepare for physical, psychological and
other issues that come with kidney failure and kidney transplant.
The battles Mary fights are impressive:
* Gaining weight on Prednisone? Mary has a brilliant chapter "Monster" - thanks Mary, will invest in exercise equipment & personal trainers and uhm, some wax, too! Loosing weight while still being a growing hormonal teenager is quite an accomplishment and requires a lot of discipline - Mary, you are putting the fitness industry to shame!
* Have you gotten fired due to you mentioning your kidney problems at work? Check! The Chapter Twenty-One, The Work World, will get you realistic!
* Unable to find a good doctor or getting wrestled into unnecessary medical procedures? Chapters 19, Doctor Shopping, will illustrate how to stand up for yourself (as our 22 then year old Mary did) and do not settle for mediocre or improper health care.
* Absolutely frazzled by US Health Insurance system? You are not alone on this, read Chapter Twenty, Health Insurance Horrors. Really, why does the gov't cut immunosuppresent drugs coverage after 36 months of transplant, often resulting in returning patients back to already long waiting list?
So whatever nephrology hurdle is on your way, feisty Mary will guide you through and help you be an empowered patient and your own advocate, which is critical to your survival if you have kidney disease.
I also hope that physicians and scientists will buy this book and would get an idea what its like to be on the receiving end of The US Nephrology Enterprise.
This book just might help to instill a sense of urgency that is long overdue to improve the dire situation in nephrology that we have today in US and that continues to deteriorate.
With UNOS waiting list for the kidney transplant already over 95900 and consistently growing 5% every year - while the yearly number of kidney transplants remains constant and hovers only at 17000 - thus, the chances for Americans of getting a cadaveric kidney transplant are getting worse every day while the waiting times increase steadily across the country.
Lastly, the book is just plain fun to read even for people who are not affected by kidney disease - its impossible to put it down.
To some degree, it reads like a detective story - you cant help but wonder whats going to happen next to our resilient Mary and what adversity is she going to brilliantly overcome next?
The humor in the book is great, the very honest and at times self-depreciated attitude is contagious, the story telling is superb.
I also loved her interaction with her father growing up and admire Mr Wu's parenting!