- File Size: 3471 KB
- Print Length: 298 pages
- Page Numbers Source ISBN: 1557537607
- Publisher: Purdue University Press; 5 edition (November 15, 2016)
- Publication Date: November 15, 2016
- Sold by: Amazon.com Services LLC
- Language: English
- ASIN: B01NCLB1J7
- Text-to-Speech: Enabled
- Word Wise: Enabled
- Lending: Enabled
- Amazon Best Sellers Rank: #183,065 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded 5th Edition, Kindle Edition
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Jolene Brackey offers caregivers and families one practical suggestion after another, including ways to use the important details of a persons history, passions, and interests to empower loved ones to overcome daily struggles.(ANN KAISER STEARNS, PhD, best-selling author of Living Through Personal Crisis (2010))
Alzheimer’s disease wraps its tendrils around all those within the range of loveof the person living with the disease. Jolene Brackey’s Creating Moments of Joy shows us how dear healing moments can be experienced by all who are within the grasp of the disease. (PAUL RAIA, PhD, retired vice president of clinical services, Alzheimer’s)
I have been working with older adults with dementia for over twenty-five years. Jolene brings a perspective that crosses both years and bridges. Whether the caregivers are family or professional, young or ‘vintage,’ rookie or seasoned, she understands the struggles and creates a language to communicate with them all.(DEBORAH RICHMAN, BS, ACC, vice president of education and outreach, Alzheimer’s Association Minnesota / North Dakota)
Jolene shows us how to lighten up and even find humor in the most highly charged situations.(KAREN AND KIM, co-founders of In Care of Dad)
This book is key for anyone looking to transform a hardship into a life-affirming experience for both the care recipient and the caregiver, ultimately making you a more effective caregiver as well as a happy one!(CARLYNE FOURNIER, producer of the short film Remember When) --This text refers to the paperback edition.
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Top international reviews
The great thing about this book I found is that it is bite sized. After the leaflets from the memory clinic you are very much on your own in the early stages. So many what ifs, maybes, possibilities, etc. Go on some online forums with no real knowledge and prepare to be depressed. Yes any of this can happen but rarely in the same order, the same intensity or the same time span. Your loved ones journey will be similar to others but also to a degree unique.
I found reading and researching about Dementia depressing to a degree and still did not give me a road map. This book was very useful not as a read through in one go but a dip into source of knowledge. How to deal with situations which may or may not arise. That allows you to focus on what is in front of you, not depress you with all the possible eventualities that might happen or might not. Humour is used, common sense logic, the right balance certainly to me. I am three years into this journey and I now know far more than I did, have learnt new skills, have a much better understanding of how events will most likely develop. I just wish there were more resources like this to reach for when starting out as a carer of a loved one with Dementia.
I hope Amazon will allow me to take a liberty on such a tricky subject and mention a few other resource centres which would in my opinion help others along this road of learning. If I can help one other person I would have done some good.
Firstly get on the Talking Point forum on the Alzheimers website. Contributors have helped me several times with really useful first hand experience. It is a friendly and safe place to go. Just read the threads to start with but one day you will be glad to know there are other carers you can reach out to.
Secondly Future Learn do some excellent courses on Dementia caring. They are good learning sources, free to access for a limited period or indefinitely for a reasonable fee, you can enter forums as you progress on the course. You stop feeling clueless, isolated, etc, get some knowledge at a level pitched at the ordinary carer struggling along. A few hours a week and it does bring rewards.
Thirdly and only if you want to know more about Dementia. The University of Tasmania do excellent courses. More time demanding, intensive to a degree, but I finally had a much better grip on what Dementia is, how it progresses, research, supportive actions you can take to help a loved one by seeing the world through their diminished mental eyes. A more demanding course but rewarding in my eyes.
All the above and this book have helped me develop as a Carer for a loved one with Dementia. I got over the initial emotional upset and these tools have helped me enormously. Caring is isolating, frustrating, energy sapping, etc, but it is also rewarding and has rounded me as a person. Please take care on any carer journey you are on. Please, please Amazon I know I have pushed non Amazon products here but they are all free, just little known about. Please, please let your platform carry this information and help others on a hard and difficult road. Good luck fellow carers.
My mother is in a care facility and I will be sharing this book with them.