- Paperback: 312 pages
- Publisher: Singing Dragon; 2 edition (December 21, 2014)
- Language: English
- ISBN-10: 1848192312
- ISBN-13: 978-1848192317
- Product Dimensions: 6 x 0.7 x 9 inches
- Shipping Weight: 1.2 pounds (View shipping rates and policies)
- Average Customer Review: 9 customer reviews
- Amazon Best Sellers Rank: #710,755 in Books (See Top 100 in Books)
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A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking (2nd edition) 2nd Edition
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Without having to worry about medical jargon, this is a book for anyone (layperson or professional) who wants to understand the personal impact of, and wants to be up to date with the clinical presentation and management of Ehlers-Danlos Syndrome - Hypermobility Type. --from the foreword by Dr Alan J. Hakim MA FRCP, Consultant Rheumatologist and Acute Physician, Barts Health NHS Trust and Board Non-executive, CWHHE Clinical Commissioning Collaborative, North West London
Without having to worry about medical jargon, this is a book for anyone (layperson or professional) who wants to understand the personal impact of, and wants to be up to date with the clinical presentation and management of Ehlers-Danlos Syndrome - Hypermobility Type. (from the foreword by Dr Alan J. Hakim MA FRCP, Consultant Rheumatologist and Acute Physician, Barts Health NHS Trust and Board Non-executive, CWHHE Clinical Commissioning Collaborative, North West London)
Top customer reviews
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Just got hit with symptoms in your mid 20s and they took doctors, yourself, and everyone else forever to connect and do a gene test for (or clinical dx but are waiting for a gene test?)? This is a good place to start..
...but don't stop here please. Don't take this book as the gospel of EDS. Continue to research your subtype with the research being done in France, UCLA, and compare treatments in different countries to see what's the best route to take.
This has to be one of the dumbest books that I have ever had the displeasure of reading.
NOT A GUIDE TO LIVING WITH EDS!!!! It's a story from some woman who thinks that she is an expert on EDS.
This whole book seems to be devoted to the author's poetry and person stories.
If you don't know anything about EDS, then maybe up to chapter 8 would be useful, but again IF YOU HAD NO KNOWLEDGE OF EDS. Most of us have a lot of knowledge, before we start looking for books to read. This book is not the most accurate, so please FIND SOMETHING ELSE.
The author chooses instead of giving information about associated conditions, to talk about her experiences with the conditions. This is not a GUIDE!!
DO NOT LISTEN TO THIS WOMAN ABOUT STRETCHING!!!!!! If you speak with your (educated) rheumatologist, they will tell yoga (and most will also include pilates) should be avoided. This woman advocates pilates for EDS people. She also talks about circuit training----running stairs?! EDS people should not be doing any exercises that put strain on your joints. Exercises for EDS people need to be for strengthening muscles, without putting strain (or as little strain as possible more accurately). These exercises may include swimming (avoid over the head work especially if you had difficulties with your shoulders), walking, and perhaps light cardio, such as using ellipticals. Speak with a doctor, not this quack who has obviously not done any real research. LIGHT weight training is also recommended.
Ballet is TERRIBLE for EDS. For correcting posture and learning sense of your body, yes, BUT NOT AS PUTTING STRAIN ON JOINTS!!! You go to a physical therapist, not a ballet instructor to fix these issues.
Her desire to blame everything on EDS is out of control. Trying to blame EDS for cognitive problems, without recognizing that depression and fatigue can cause the cognitive problems . . . she really has no idea what she is talking about.