- Hardcover: 256 pages
- Publisher: Random House; First Edition edition (April 25, 2000)
- Language: English
- ISBN-10: 0679452915
- ISBN-13: 978-0679452911
- Product Dimensions: 6.2 x 1 x 9.8 inches
- Shipping Weight: 1 pounds (View shipping rates and policies)
- Average Customer Review: 11 customer reviews
- Amazon Best Sellers Rank: #686,416 in Books (See Top 100 in Books)
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Hard to Forget: An Alzheimer's Story Hardcover – April 25, 2000
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From Publishers Weekly
One day Pierce's father, John, left his home in Massachusetts on an errand. He wound up three days later in a Vermont jail. The police assumed from his confused state that he was intoxicated. In actuality, he was suffering from Alzheimer's disease--a fact that both Pierce (a writer-at-large for Esquire and a regular contributor to National Public Radio) and his mother long refused to acknowledge: "I felt the truth bending inside me, turning the last three mad days into some familiar shape, and I realized what I was feeling was the comfort of denial." Pierce makes a notable contribution to the growing literature on this affliction by combining a family memoir with an overview of Alzheimer's history since its discovery in 1906 by Alois Alzheimer and of the state of current research into the genetic causes of the disease. Among the scientists whose work Pierce covers are Allen Roses and Peter Hyslop, whom he labels the "Genome Cowboys" and who, Pierce claims, failed to receive due credit for their discovery of an early-onset gene because of rivalry in the scientific community. The author poignantly describes how he detached himself emotionally from his father's worsening condition and how this detachment affected his wife, Margaret, and children. Margaret was the sole family member who accepted her father-in-law's disease and tried to combat her mother-in-law's consistent denial. Pierce himself is at great risk for Alzheimer's--in addition to his father, three uncles died of the disease--but, as yet, he admits, he has not been tested. He has, however, overcome his resistance to the truth and in so doing has crafted this excellent memoir. Author tour. (Apr.)
Copyright 2000 Reed Business Information, Inc.
From Library Journal
Shortly before Memorial Day in 1985, Pierce's 70-year-old father went to the florist to buy flowers for the family graves. Three days later, he was found by police sitting in his car in Montpelier, VT, 250 miles away from his Massachusetts home, unable to remember his name or telephone number. Soon afterward he was diagnosed with Alzheimer's--a diagnosis that the family, especially Pierce's mother, refused to accept. Beneath the author's denial lurked the fear that he, too, would become a victim of the disease--his father's four brothers also died from it. A writer for Esquire, the Boston Globe, and GQ, Pierce used his journalistic skills to learn everything he could about the disease's history and prognosis and the search for its genetic links--while witnessing his father's decline. His book is a fascinating account of the fierce competition among the "genome cowboys" (the cutting-edge scientists racing to be first to identify new Alzheimer's genes). Although his genetic explanations are somewhat murky, Pierce's writing talents and his revelations of the darker side of genetic research and of families struggling to make sense of this devastating disorder make for a refreshing change from most feel-good, first-person Alzheimer's accounts. Highly recommended for aging collections.
-Karen McNally Bensing, Benjamin Rose Inst., Cleveland
Copyright 2000 Reed Business Information, Inc.
Top customer reviews
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From the early pages of the book--where we learn that the author's father was born in 1915, the same year Alois Alzheimer died--it's clear that the Pierce will interweave his own story with a history of the disease and the scientists struggling to understand and treat it. The science is presented dramatically--and underlying these sections, adding to their power, we are told the story of the author's father and his siblings. Pierce writes of his grandmother: "Mary Ellen Pierce had had five children, and all five of them would develop Alzheimer's disease. All four of her sons would disappear and then die. One of them was my father. He died without remembering her. He died without remembering me."
The topic of dementia is vast, and hits home for me personally. I've read a great many books about Alzheimer's ( thirty, at least), and Hard to Forget, because of its lucid prose and well-told stories, is one I read with enormous interest. There's plenty of information here about the disease, all readable and engaging--and the book is lit up by a closely-considered danger: the possibility that the author himself could come down with what has become a family disease. And the author has children. It's a good thing those scientists are hard at work.