Heavy: Finding Meaning after a Terminal Diagnosis, A Young Family's First Year with ALS Paperback – January 15, 2014
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The first year after a diagnosis of a terminal illness is the most crucial. A wide range of emotions are experienced and figuring out how to cope with all the changes challenges the patient and family on every level. The reader is reminded they are not alone and that it is okay to grieve. The Neva’s experience is a balm to the soul of those going through similar trials. This peek into what they were thinking and feeling during this adjustment period encouraged me to be more proactive in the things that matter most—family and faith
I found Kristen’s honesty and venting her anger toward God a breath of fresh air. So often Christians fear they are betraying their faith if they let anyone know they are angry with God. Kristen knew God was big enough to handle all the stages of her grief.
Todd’s ability to deal with the practical areas and willingness to let others serve him spoke volumes. I love his honest assessment of each change his body went through. Men will relate to his struggle. As I female reader I got a real education on how a man thinks as his ability to provide for his family and care for himself is slowly stripped away.
Even if you aren’t dealing with terminal illness or have a family member that is, you will still benefit from reading their story. Often, outsiders don’t get what it is all about and are ready with pat answers or sappy words. This intimate look at the first year was a revelation for me. I feel a freedom to explore my faith, when in crisis, on a deeper level. This is an encouraging, faith-building read for anyone who is in the midst of crisis or wants to know how to more effectively help those who are.
Top international reviews
Telling personal stories is so important.
Thank you for being will to share this and offer support to others suffering this horrendous disease.
I lost my husband to ALS/MND with FTD and know that there can never be enough support for those suffering through this.