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Holding Tight, Letting Go: Living with Metastatic Breast Cancer Paperback – September 11, 1997
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"An excellent book....If knowledge is power, this book will be good medicine." -- Dr. David Spiegel, Stanford University, author of
"For years there have been so many requests for a resource book on metastatic breast cancer. Advanced Breast Cancer fills that void and does a wonderful service to thousands of women by giving them the resources they have been seeking, the support they need and the hope that research offers possibilities for a longer life.... The information on handling emotional issues, treatment options, side effects from treatment, and managing pain will be used as a resource bible on how to cope with metastatic breast disease for years to come." -- Jane Rodney, Director, Breast Cancer Resource Center, YWCA, Princeton, NJ
"Musa Mayer has given us a gift that we have needed for a long, long time: an in-depth, truthful, personal and informative resource about metastatic breast cancer. I believe that this book will be as important to women with metastatic breast cancer as Dr.Susan Love's Breast Book is to newly diagnosed breast cancer warriors." -- Breast Cancer Action Newsletter
"Real stories, well-researched advice and practical references that will be a lifeline for a growing group of patients, too often overlooked....This book should be part of every woman's treatment plan."(Amy S. Langer, Executive Director, NABCO (National Alliance of Breast Cancer Organizations)) -- Amy S. Langer, Executive Director, NABCO (National Alliance of
"While there are dozens, if not hundreds, of self-help books on breast cancer, relatively few discuss these and other realities of metastatic disease. This is the superbly-handled subject of Musa Mayer's sensitive and beautifully written Holding Tight, Letting Go...This is a courageous book that needed to be written, but few could have done it, or done it so well. As it explores some of the most painful questions humans can ask themselves, it never ceases to be a celebration of the human spirit." -- NABCO News, January, 1998
From the Publisher
Praise for Advanced Breast Cancer:
"I want you to know how much your book means to me. I am currently in treatment for breast cancer for the fourth time since 1987, second time for bone metastasis. I live in a small town and felt I was the only person in the world who couldn't get rid of cancer. Your book reassured me I had a lot of company, and has given me many role models for dealing with the disease. I thank you and those you profiled in your book for sharing their hopes and fears. When I mentioned your book to my oncologist, he asked me if I was frightened after reading about what I was facing. I had to reply that, to the contrary, it had given me courage to continue my fight." --Judith Neilson
"I found your wonderful book at UCLA Cancer Hospital. I am eternally thankful to UCLA for telling me about it. I had scoured book stores for sources of information on metastatic breast cancer. I believe yours is one of a few, if not the only, book out there that deals completely with metastatic breast cancer. I will be shouting its praises to anyone who will listen. I have read it twice." --Judy Conklin
"Such a book was desperately needed, and I will be pleased to promote it through the many women I know who are living with a diagnosis of metastatic breast cancer, and others who are interested. It may prepare many of us for a road that we hope we will never have to face." --Liz Whamond, President, Canadian Breast Cancer Network
"There is little information and support available for the advanced breast cancer patient. Each year I receive the Resource List from NABCO. I turned to the page on metastatic breast cancer/recurrence. Usually the only things listed deal with pain management and hospice. I have no pain and thankfully am not near hospice.
I was pleased to find additional listings this year, including your book. Immediately I purchased it. I started reading and quickly realized what a treasure your book is, just what I was waiting for. I also told my husband and two daughters (27 and 29) that I'd like them to read it. I requested that the center where I am treated add this book to the patient library which they said they will.
You answered a need that was lacking for most of us on the breast cancer journey. And you did it perfectly. Bless you for that. I had been putting off getting involved with the computer. While reading I knew I couldn't delay any longer. So you are directly responsible for my joining the breast cancer email list. I thank you for that. It is a gift." --Ruth Wolf
"I started to read it and cannot put it down! As a woman who was diagnosed with a primary breast cancer last year,I have found the book reassuring, and feel that you have chased away some of the scary monsters in the breast cancer closet. As a friend of someone with metastatic disease, I have found something that I know will give her great comfort. I will be purchasing another copy of your book so that I may keep a copy for myself and add it to my private lending library." --Norma Steele
"I was afraid to even open the covers of this bookit seemed like it was going to be too difficult a journey. Silly me! You were right there with me, holding my hand, gently taking me down the path. I started it last night and look forward to reading the whole thing." --Harriet Kay
"Your book truly is a gift to all women and those who love them. With tenderness and respect you wove the stories of these spirited survivors into an outstanding guide for fully living to life's end. The extensive resource list was a delightful surprise. What a joy to have the organizational web sites listed. As one of the early-diagnosed breast cancer survivors without a personal knowledge of chemotherapy, I found the glossary especially helpful." --Rosemary Locke
"I just finished reading your latest book, andwow!what a good one it was. I wish I could get more women to read it. I did ask our cancer center to add it to their library. I think it is a fantastic book and a must-read for all so that everyone can understand the realities posed by metastatic breast cancer. As I have said before, the women with metastatic disease do face life issues differently than those of us who are disease-free." --Lois Anderson
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Mayer assumes (and this was news to me, unwelcome news) that a depressing percentage of those who are touched by breast cancer will event! ually, maybe in a few months, maybe in a couple of decades, have to deal with a metastasis. Life with the metastasis may then go on for another 12 or so years, even longer as new treatments come on line. There may be blissful further remissions during this phase or a lurching from crisis to crisis until the end. One husband of a breast cancer sufferer wrote of their experience: "This disease began as a mist, deepened into a fog, and ended like a tornado."
Life in this sort of world, similar in ways to life in HIV-land and both vastly alien to the world of the healthy, is made more tolerable by the companionship of others that is offered by books like this. Mayer's emphasis is on the real. "Real help comes from hearing real stories, and from learning you are not alone." "In real lives, along with precious moments of peace and transcendence, there is also pain and anger and a terrible sadness."
Will appeal to: People such as those rep! resented by the Breast Cancer Discussion List - educated, ! secular-but-spiritual, liberal and accepting of Western medicine.