- Paperback: 260 pages
- Publisher: Left Paw Press, LLC; 1 edition (July 12, 2010)
- Language: English
- ISBN-10: 098257715X
- ISBN-13: 978-0982577158
- Product Dimensions: 6 x 0.6 x 9 inches
- Shipping Weight: 11.2 ounces (View shipping rates and policies)
- Average Customer Review: 114 customer reviews
- Amazon Best Sellers Rank: #37,830 in Books (See Top 100 in Books)
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Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome 1st Edition
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If they ever reprint it with real margins I'd love to have a copy!
In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.
This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.
This book is amazing, thank you Dr Tinkle!
The diagnosis of Hypermobility Syndrome was forth-coming & Dr. Tinkle's book shed so much light I actually would fall asleep at night with the book right by my side as I would read & reread to learn. Through the book I began to gain in small steps some appropriate medical care. Granted I drove everywhere to get it ~ and even endured the age-old, "get counseling ~ it can help fatigue" - while trying to ignore side-long glances. Yet I persevered because I KNEW Dr. Brad KNEW what he was talking about. He was my light at the end of the tunnel. I gave the book to my doctors and happily some took it most willingly (they chuckled and thanked me for not highlighting it all up with, "see? that's me!" "see again? this is me!" - as I admitted I was tempted to do! Next I discovered this newest book was published & I bought two copies....one for myself....and the other for 'who knows who' as I am relocating and need to begin again the process of building my team of clinicians to aide me in dealing with Hypermobility Syndrome.
I wondered how in the world any book could improve on the first.. I no longer wonder! This book again spells out in decided detail all of the reassurance you the reader seek ~ to be validated by a highly esteemed professional - Dr. Tinkle - in your experience as an EDS-HM or Hypermobility Syndrome patient. The book goes in depth to a greater degree with some of the pertinent clinical findings a clinician (or even patient) can find on exam and in diagnostic testing and patient history. It then discusses further some possible road maps for the patient/caregiver/doctor team to navigate for better outcomes in dealing with the varied difficult (albeit common) issues such as chronic pain & disability. Additionally the book traverses the reality of symptoms as they impact all the various age groups in life with EDS-HM/Hypermobility Syndrome. It becomes easy to see how early diagnosis can directly impact lives for the better -- maintaining wellness to the greatest extent possible armed with knowledge - is so much better than having four artificial joints beginning in your forties in utter ignorance.
Another service that is not to be minimized is Dr. Tinkle's expressed opinion on Hypermobility Syndrome being of the same animal perhaps as EDS-HM. Too often Hypermobility Syndrome or the dreaded 'Benign Joint Hypermobility Syndrome' diagnosis is met with random disbelief, accusation, or frank, "So What". It's never comfortable to be dismissed ~ most especially when in pain and striving to attain the help and treatment you deserve to live your best possible life. Only in sharing the beginning words of "I have Ehlers-Danlos Syndrome....." would any medical practitioner begin to pay attention ~ sifting through what they read or recalled back in college or medical school. This was good news as I then would launch into my notion of having a 'variant' of it perhaps - Hypermobility Syndrome and offer Dr. Tinkle's book to them for further reading & expert knowledge.
I began my process of achieving better wellness on the foundation of what Dr. Tinkle has made available to everyone in the writing of this newest book and his first. I simply and humbly wish to thank him for pioneering in this fashion...I cringe to think where I'd be today if it weren't for this helpful writing and encourage you to read either one, or better - both. For anyone who may have EDS-HM or Hypermobility Syndrome and feel you need a 'voice' as you self-advocate ~ I sense Dr. Tinkle is truly present for you and with you through these pages.
Those are all technical, correctable glitches. The book is full of useful and pertinent information--from making sense of the various type of EDS-HM, to how to talk to doctors, many of whom must have slept through that 15 minutes of lecture at medical school, about the disease. Those of us who have this in our lives are often in mental pain, without doctors, loved ones, and employers, not "getting it." Dr. Tinkle has put, in normal language, the uniqueness of people who can bend fingers to forearms, touch tongues to noses, and link an arm to an arm behind their back, without losing sight of the fact that such amazing little parlor tricks have painful and long-lasting consequences.
If you have this disease, this book is well worth plodding through, and gleaning the MANY available facts.