Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome 1st Edition
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- Item Weight : 13.6 ounces
- Paperback : 260 pages
- ISBN-10 : 098257715X
- Product Dimensions : 6 x 0.59 x 9 inches
- ISBN-13 : 978-0982577158
- Publisher : Left Paw Press, LLC; 1st Edition (July 12, 2010)
- Language: : English
- Best Sellers Rank: #86,815 in Books (See Top 100 in Books)
- Customer Reviews:
Top reviews from the United States
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Those are all technical, correctable glitches. The book is full of useful and pertinent information--from making sense of the various type of EDS-HM, to how to talk to doctors, many of whom must have slept through that 15 minutes of lecture at medical school, about the disease. Those of us who have this in our lives are often in mental pain, without doctors, loved ones, and employers, not "getting it." Dr. Tinkle has put, in normal language, the uniqueness of people who can bend fingers to forearms, touch tongues to noses, and link an arm to an arm behind their back, without losing sight of the fact that such amazing little parlor tricks have painful and long-lasting consequences.
If you have this disease, this book is well worth plodding through, and gleaning the MANY available facts.
I am very happy to have this basic but important factual info and will likely share sections of this book with my healthcare providers (although not the whole thing since there are out of date parts that an unfamiliar physician may not realize are out of date/have been updated/have been proven incorrect). There are a lot more types of EDS identified now, along with a number of comorbidities, and much of this has recent research that came out after this book was written and either confirms some of the clinical observations made by this doctor, or proves that some of the theories from that time frame where actually incorrect.
I would also ignore the entire section on chronic fatigue as it is out of date and based off of studies that have been thouroughly discredited for improper research techniques, bias, and conflicts of interest. It also erroneously refers to chronic fatigue and chronic fatigue syndrome as the same thing, which is widly innacurate.
In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.
This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.
This book is amazing, thank you Dr Tinkle!
Top reviews from other countries
I was initially worried that this would be a tedious read, but the format turned out to be very easy to get through in just a few hours. The language is accessible without being condescending, and the entire book is thoroughly referenced at the end of each section.
A really great source for anyone with EDS/hypermobility!
One thing to point out: the book is American so some things that are written about benefits and entitlement to funding etc do not apply to us in the UK
Invaluable to Hypermobile/EhlersDanlos people and any & all physios & complementary practitioners who work with them.