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Immortal Bird: A Family Memoir Hardcover – February 7, 2012
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Top Customer Reviews
The author is obviously intelligent well-educated, and well-connected by virtue of his work and background, but I certainly don't find that off-putting, as some readers reported. (Seriously, get over it, folks.) Certain people named in the book--scientists, film directors, actors--are part of Damon's story. To me, it seemed natural to include them. What comes across to me in this book is the depth of this man's love for his son, the unbearable agony of losing him, and an elemental desire to honor the memory of his wonderful child.
The shortcomings of the medical system in this case were frightening to read about. Though we necessarily hear only one viewpoint in a book such as this, that the parents felt so abandoned by the medical team at such a critical juncture was extremely disturbing. When the father of an ICU patient in a major medical center is reduced to racing down the hall trying to find someone to attend to signs of multi-system organ failure in his son, we ALL need to worry. I only hope that airing the systemic and individual failures recounted in this book will lead to some good.
Reading this book left me wishing I had known Damon Weber, and feeling a wee bit envious of those who did.
This book is a tribute to Damon Weber, a red-headed, artistic, fantastically intelligent boy, who was born with a major heart defect that was assumed to be have been corrected early on, but unfortunately led into another health issue known as PLE, a disease that doesn't allow the body to retain protein, and slowly but surely starves the person to death. The author and his wife thought PLE was a nightmare, until they began to fight it, and learned that dealing with the medical community, and the worlds best doctors and medical teams, was where the real horror lies.
As a nurse, I can attest to the fact that doctors do not return calls. And I have spent long, exhausting shifts keeping a patient comfortable and stable, only to be replaced by an eye-rolling lazy individual who barely listens to report, then goes for a smoke break, undoing all I've done on my shift in a few short minutes. Doctors, nurses, and almost everyone else you meet from the minute you step foot inside a hospital or medical institution, fail the patients who depend on them, by offering sub-standard care and attention.
The Webers had access to the best doctors money could buy, who turned out to be unreliable and uncaring, only showing up when things looked hopeful so they could receive the glory, then disappeared for days on end when Damon needed life-saving attention.Read more ›
Columbia Presbyterian Hospital had followed Damon since he came into the world as a blue baby on 8/8/88. It was a rare day of good fortune for the Chinese and for the Weber family. Their firstborn was indeed rare and special to them. It was back to Columbia to explore that pain, a stitch in his side that turned out to be PLE, Protein-Losing Enteropathy. Damon's mother, Shealagh, grew tentative and his father Doron's stomach churned. "Hold on! How do we go from `He's doing so well' in one checkup to `It's all falling apart' in the next?" The protruding belly, the stunted growth, his wheezing ... had the doctors known this was coming and remained subtly silent?
There would be no stone unturned as Doron began his search for a cure, at least a way to alleviate the pain and the lethargy. "I believe this will be a significant event in his life." No kidding. Doctors could be such fools. Father and son had begun their journey together, creating that closeness that is rare and beautiful. It was something only they could understand.Read more ›
Most Recent Customer Reviews
A "Disease of the Month" book.
When a father writes about the slow death of his son, you have to feel sympathy for the father - and this book is strongly focused... Read more
A sad father deals poorly with the loss of his son, and invokes GOD of all things. God is imaginary, and the sooner he realizes this the better.Published 8 months ago by Robert W. Finlay
I read this book straight through, long into the night. I was holding my breath, rooting for Damon. I feel I know your son after reading your
memoir. Read more
Immortal Bird was heartbreaking, but a beautiful story of the relationship between a father and son. It was hard to read but at the same time I couldn't put it down. Read morePublished 17 months ago by Jessica Corsetti
This book is well written and its subject (malpractice) is a very compelling one. However, I found it hard to relate to at times, due to the author's obvious wealth and access to... Read morePublished 23 months ago by Flamingo Girl
CLSC book - Great story...many lessons learned in its reading...writer is good story teller. Did the Immortal Bird die or not???? Book in good shapePublished on October 28, 2013 by Sallie Holder
I found Doron Weber's new book Immortal Bird a beautifully written memoir about his family and his son. Read morePublished on August 27, 2013 by Stanley Clark Lumb
Doron Weber has documented two fights here--one for his son's life and the other against the medical establishment. Read morePublished on August 24, 2013 by Book Shark