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Inside the O'Briens: A Novel Hardcover – April 7, 2015
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When a beloved Irish-Catholic police officer is diagnosed with Huntington's Disease, his grown children witness their father's demise and consider whether they want to be tested to see if they have inherited the condition. By the best-selling author of Still Alice.
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I moved to California last year and my new neurologist eventually said I might have Huntington's and I got a DNA blood test. (41 CAG repeats in HD language.)
I knew nothing about "prodone" until I read Lisa's book. It explained a lot about my entire adult life and gave me an invaluable new perspective on my mother's "mental illness's."
I'm actually relieved with this diagnosis because I finally have answers as to why I'm like I am.
I have found a great local support group and am also getting on a list for any future clinical trials. I live by myself with my dog. I can still take care of myself and am able to drive. I figure I have at least 5 to 10 years minimum and totally optimistic that there will be drugs developed in my lifetime that will slow or halt the progression of this awful disease. And maybe even a cure.
I am so grateful to Lisa Genova for writing this book and the serendipitous way it appeared the week I needed it most.
Would you want to take a test to tell you your future? Each of the four offspring struggles and decides.
One can feel nothing but compassion for this Irish Catholic family who have worked hard and have a dreadful future. This disease, like many others, is truly unfair. I particularly became attached to Joe during the story, and literally held my breath while watching the disease take over, but not destroy, his life.
Genova again has written a thoroughly excellent book . It will stay with me. The disease, though, must expunged!
Lisa Genova did an excellent job making it interesting, easy to understand biologically and covering the devastating aspect with financial security or monetary rape if the male has it. This disease is mainly is seen at the age of 30-45. You have 10-15 years when symptoms project to live. It is a dominant gene and if your mother/ father had it, you have a 50-50 chance of having it. Sadly, their is no cure and it messes with your head more than your body in the beginning.
It is called the most tortuous disease to a person and its very destructive. You can't hold babies, you break glass, you tap dance and don't know it.
Why not 5, I did not like the way she left you hanging in the end. It seemed incomplete with how much she wrote about this character having, not having it. It seemed very Hollywood. Didn't care for it. But I do enjoy Lisa Genova' s angle to use neuroscience as a way to educate the literary world to stop and help fund this disease.
Also, the swearing was worse than an episode of the Osborne' s. Irish don't swear that much. I know Boston. It's a great city. Cop or not. They don't use that language as if it was a poor section. Also, they are religious and devout people who love life and a good time.
Why this disease isn't talked about more among everyday people is beyond me. I know Alzheimer from being a Caregiver, and I know Cancer having to live with it. But I didn't know Huntington's disease until this book. Why? I guess because less people are diagnosed with it, and it wouldn't bring medical profession and pharmaceutical companies more money. Maybe that's why?
Lisa Genova does a great job holding the readers attention to the OBrien family and what they go through being the disease is Gene related.