Intersex in the Age of Ethics was very instructive.
The chapter titled Pediatric Ethics included very good examples and the recommendations seem very necessary.
The case study of the John/Joan identical twin clearly shows the tendency of the surgeons who operate to publish results in a way to allow them to continue....
Everyone seems to say that the surgeons, etc. strongly "encourage" that the operation(s) be kept secret from the patients, even when the surgery is only done for cosmetic reasons. This results in the patients feeling shame, and sometimes having suicidal thoughts.
In their final conjecture they say, "Parents cannot be informed of the expected outcome of the pediatric surgery because the adult outcome studies have not been done. And the adult outcome studies have not been done because these adults have not been informed of the surgery. We may have here an epistemological 'black hole' that entraps parents, patients, and physicians in lies, secrets, and avoidable ignorance."
This book will be difficult for some to read, I think, because it involves material people in our culture do not normally discuss with each other.
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Intersex in the Age of Ethics Hardcover – January 1, 1766
by
Alice Domurat Dreger
(Editor)
The range of ethical issues that arise in regard to the treatment of intersex infants, children, and adults is representative of clinical healthcare ethics generally. By incorporating the perspective of patients and their stories in its account, Intersex in the Age of Ethics does more than introduce the question of healthcare ethics in microcosm, it leads the reader to examine the effect of ethical reflection on the lives of patients. David T. Ozar, Loyola University of Chicago
- Print length227 pages
- LanguageEnglish
- PublisherUniv Pub Group
- Publication dateJanuary 1, 1766
- Dimensions6.25 x 1 x 9 inches
- ISBN-101555721257
- ISBN-13978-1555721251
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Editorial Reviews
Review
"At last! Here is the volume that clinicians, teachers, counselors, parents, feminists, and philosophers have needed to understand intersexuality." -- Cheryl Chase, founder, Intersex Society of North America, Book Cover
Product details
- Publisher : Univ Pub Group; 0 edition (January 1, 1766)
- Language : English
- Hardcover : 227 pages
- ISBN-10 : 1555721257
- ISBN-13 : 978-1555721251
- Item Weight : 1.14 pounds
- Dimensions : 6.25 x 1 x 9 inches
- Best Sellers Rank: #6,719,442 in Books (See Top 100 in Books)
- #14,738 in General Gender Studies
- #23,266 in Philosophy of Ethics & Morality
- Customer Reviews:
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Reviewed in the United States on September 15, 2014
Reviewed in the United States on May 21, 2013
I purchased this book to use as a reference source for a college research paper and what I learned while reading it will stay with me as long as I live. This book covers the lives and difficulties of people who are born having both male and female sexual organs. Once called hermaphroditism, this condition was believed to be rare, but the statistics speak for themselves in terms of the number of babies born with "ambiguous genitalia." In the past, doctors chose a sex for the baby and surgery was done to assign a sex. Time after time, the results ruined lives. Today these unnecessary surgeries continue and the question has become one of medical ethics. Do the parents or doctor have the right to assign a sex to an infant? What if the parents choose wrongly and the child grows up to be miserable or commits suicide?
Reviewed in the United States on August 4, 2016
Arrived in time. a good and useful book
Reviewed in the United States on December 28, 1999
Alice Domurat Dreger has written what may well come to be regarded as the definitive work on intersexuality. By employing a collective and inclusive approach, Ms. Dreger is able to provide both personal and medical perspectives on intersexuality provided by individuals, their families and compassionate medical providers. She provides a brief forward to each chapter on the author and topic content which is illuminating and helps to assist the reader to focus on the material. This is a well-written book which, for the first time in a single printed volume, provides material solely dealing with intersexed individuals. This landmark book provides compelling reasons, based on the telling of personal odyssies, why only those people affected should be the decision makers in their care. I hope that every intersexed person, every family member or parent of an intersexed individual reads this book. And I pray that every medical professional who treats intersexed individuals, beginning with obstetricians, pediatricians and pediatric urologists, takes to heart the suggestions for adapting care to a patient-directed philosophy of medical care.
Reviewed in the United States on May 15, 2000
"The range of ethical issues that arise in regard to the treatment of intersex infants, children, and adults is richly representative of clinical healthcare ethics generally. By incorporating the perspective of patients and their stories into its account, however, INTERSEX IN THE AGE OF ETHICS does more than introduce the questions of healthcare ethics in microcosm. It also leads the readers to examine the effect of ethical reflection on the lives of patients. INTERSEX IN THE AGE OF ETHICS is a model, in both senses of this word, of what thoughtful healthcare ethics reflection can accomplish. It embodies a conceptual model of ethical reflection that leads the reader to pose the right questions and to respond to them with patients' lives in mind. And it is a model in the evaluative sense--excellent, admirable, and deserving of imitation."
