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Iron Boy: Surviving Beta Thalassaemia Major Kindle Edition
- ASIN : B09D3KBCRY
- Publisher : Next Chapter; 1st edition (August 18, 2021)
- Publication date : August 18, 2021
- Language : English
- File size : 1955 KB
- Simultaneous device usage : Unlimited
- Text-to-Speech : Enabled
- Screen Reader : Supported
- Enhanced typesetting : Enabled
- X-Ray : Not Enabled
- Word Wise : Enabled
- Print length : 220 pages
- Lending : Enabled
Best Sellers Rank:
#497,933 in Kindle Store (See Top 100 in Kindle Store)
- #558 in Biographies of Medical Professionals (Kindle Store)
- #1,684 in Medical Professional Biographies
- #6,526 in Memoirs (Kindle Store)
- Customer Reviews:
About the author
Top reviews from the United States
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Iron Boy Surviving Beta Thalassaemia by Major: authored by Arthur Bozikas, takes us to his personal experiences with the chronic illness. Australia is his home country where he studied and worked in the fields: Education, Management, Research to educate, support, train and provide information to people with intellectual disability. He has more than 25 years’ experience in service delivery, advocacy, policy development and management.
Born with this chronic blood disorder meant he wasn’t able to produce functioning red blood cells on his own, so he would require regular blood transfusions for the rest of his life to survive. He was twelve when he was first told he wouldn’t live past his twenty-fifth birthday. The settling-in period was filled with lots of new adventures and exploring different bike tracks, stuff that was exhilarating for a twelve-year-old. In 1973,
They are known as Thals. The lead-up to each hospital visit, stopover, and blood transfusion was exhausting. Trauma, misadventure with enduring nasty comments, he decided to show everyone that he wasn’t different, that he had the same blood as his brothers, that he was just as healthy as them. But all his original symptoms returned. Their dream of a miraculous cure grew dim and vanished.
Swelling in his brain; the doctors informed that he had a slim chance of survival. Between the violent sweats and coma-like slumber, the ongoing nightmare was more frightening than a horror movie for his parents. Hospital visits took their toll on him and hampered his ability to keep up with keep up with his classmates.
10 Iron Boy, 1973
Iron Man ended up being his favourite. It wasn’t because of the stories; it was his suit that mesmerised him. His imagination went into overdrive every time he picked up an Iron Man comic book. He found he wasn’t frail anymore. It was Iron Boy who kept bringing him back from the depths of despair and held him together in the midst of so much pain. Weak he couldn’t even get up and walk to the toilet from my bedroom and was forced to wet my bed. My secret weapon, I imagined he was Iron Boy.
Blood transfusions was the reason why Thals didn’t live past their early twenties. The impact of iron overload in the new miracle treatment is called iron chelation and it was the process used to remove the miracle treatment excess iron, from his body. It was 1983. The author thought he was going to die anyway. It’s bad enough he had to get regular blood transfusions so why put himself through this additional pain and discomfort every day? He was confronted with the uncertainties of life—focus on living one day at a time! As a twelve-year-old with a comic book in hand and a wonderful imagination, Iron Man comics saved his life because he was Iron Boy, at a time he needed a hero.
He was part of the first generation of thals to live beyond their early twenties, and that was only due to this drug called Desferrioxamine. If it wasn’t for the generosity of the wonderful people around the world who donate blood, people like him would not be there. People around the world donate blood for many reasons, but whatever they are, he knows who receives this precious gift, is grateful because it has given them a chance to live. Hopefully, he has been able to and will continue to give back in a way to show people who donate blood where their precious gift ends up. It’s inspiring to see the many young thals achieving prominent positions, becoming parents, and accomplishing great things.
No self-pity and honouring the gift of blood, are lessons that positively impact on life.
21 October 2021
The narrative revolves around the heart-melting story of a boy, now an adult and author of this book, who grew up with hopes different from the rest of the kids. Dealing with one of the strangest diseases out there, his life’s purpose was surviving and, unlike most of us, growing up for him was a threat.
Against all odds, he wanted to live and his family is portrayed as the strongest pillar of his life. This is actually what makes Iron Boy a motivational tale, one most of us should read. It's inspirational and it teaches some lessons. I’m definitely giving it 5 stars!
It's a wonderful story filled with vivid details. The writing is emotional and at times heartbreaking. This book taught me to be brave! The precision of details made the reading very interesting. I could not put the book down! A great story with an even better ending!