- Paperback: 368 pages
- Publisher: Da Capo Lifelong Books (February 14, 2017)
- Language: English
- ISBN-10: 073821938X
- ISBN-13: 978-0738219387
- Product Dimensions: 5.5 x 1.1 x 8.2 inches
- Shipping Weight: 11.2 ounces (View shipping rates and policies)
- Average Customer Review: 31 customer reviews
- Amazon Best Sellers Rank: #77,910 in Books (See Top 100 in Books)
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Life after the Diagnosis: Expert Advice on Living Well with Serious Illness for Patients and Caregivers Paperback – February 14, 2017
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"As a physician and a former caregiver to my late husband, I adored this wise and comforting book. I will recommend it to patients, friends, anyone facing a life-changing illness. An empowering resource for living better and longer."- Lucy Kalanithi, MD, FACP, Clinical Assistant Professor of Medicine, Stanford University School of Medicine
From the Author
As a palliative care physician I often get calls and emails from friends, family and colleagues who are facing serious illness or who have a loved one with serious illness. They have questions about what the doctor means or how to decide about treatments. Serious illness can be confusing and frightening and you can't just google your way through. I share with them advice based on my 27 years of experience caring for thousands of seriously ill people. Every person asks if there's a book they can read to provide the same kind of guidance and I had to say "no." Until now. That's why I wrote my book. I realized that there's a great need for a book to guide people with serious illness and their loved ones. A book that offers clear, concise, caring and compassionate information about the experience of serious illness and how to get the best care from the medical system. A book that focuses on the whole person, explains what doctors mean, provides the truth behind the myths about serious illness, and offers practical recommendations on what to do and when. I can't be with every person going through serious illness, so I wrote a book to serve as that personal guide.
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With a warm and clear style, Dr Pantilat lays out a path from receiving the diagnosis through to moving forward and then to planning ahead to enjoy the life that you have. He finds a way to empower patients and their families, demystifying jargon and explaining that you will have choices.
Dr Pantilat provides a framework to consider how you might want to proceed, consistently pointing out that you need to identifying your personal goals and making decisions that allow you to enjoy life.
The stories he shares of his patients and of his own family members provide warmth and lead toward a better understanding of the options to consider.
Like Atul Gwande's book "Being Mortal", "Life After the Diagnosis" is an important read. One to share with friends and family.
Dr. Pantilat so successfully helps individuals navigate the very difficult world of serious illness and the pros and cons of healthcare in this arena. Now that I too am helping these individuals it gives me the perspective of their questions and concerns that only someone with years of experience can offer. Dr. Pantilat coveys the tender spirit of a seasoned caring physician when he writes about very very difficult subjects.
The chapter on hope was particularly meaningful to me. I've been a nurse for 33 years and I have frequently heard that we should not rob people of their hope. However, Dr. Pantilat showed me how hope is dynamic and can change with the ups and downs of chronic illness. In a very crucial time with a family I used what I learned from this book to help a family move from the likely impossibility of cure to their next hope. Once they were able to do this the angst was gone and the weight of that angst almost visibly left the room and was replaced by joy.
I would most certainly recommend this book to patients and their family and friends dealing with serious illness but also to healthcare providers. In speaking for my profession it would go a long way for us to improve our understanding, communication and compassion for this vulnerable group seeking to navigate healthcare. I intend to share this book with my colleagues so we can better understand and help those that we are serving.
The next time someone you know is facing a life-altering diagnosis and you don't know quite what to say to them, hand them a copy of this book. You will ease their journey, help them focus and they will be grateful for your wisdom in sharing Dr. Pantilat's words.