- Paperback: 368 pages
- Publisher: Da Capo Lifelong Books (February 14, 2017)
- Language: English
- ISBN-10: 073821938X
- ISBN-13: 978-0738219387
- Product Dimensions: 5.5 x 1.1 x 8.2 inches
- Shipping Weight: 11.2 ounces (View shipping rates and policies)
- Average Customer Review: 34 customer reviews
- Amazon Best Sellers Rank: #90,158 in Books (See Top 100 in Books)
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Life after the Diagnosis: Expert Advice on Living Well with Serious Illness for Patients and Caregivers Paperback – February 14, 2017
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"As a physician and a former caregiver to my late husband, I adored this wise and comforting book. I will recommend it to patients, friends, anyone facing a life-changing illness. An empowering resource for living better and longer."- Lucy Kalanithi, MD, FACP, Clinical Assistant Professor of Medicine, Stanford University School of Medicine
From the Author
As a palliative care physician I often get calls and emails from friends, family and colleagues who are facing serious illness or who have a loved one with serious illness. They have questions about what the doctor means or how to decide about treatments. Serious illness can be confusing and frightening and you can't just google your way through. I share with them advice based on my 27 years of experience caring for thousands of seriously ill people. Every person asks if there's a book they can read to provide the same kind of guidance and I had to say "no." Until now. That's why I wrote my book. I realized that there's a great need for a book to guide people with serious illness and their loved ones. A book that offers clear, concise, caring and compassionate information about the experience of serious illness and how to get the best care from the medical system. A book that focuses on the whole person, explains what doctors mean, provides the truth behind the myths about serious illness, and offers practical recommendations on what to do and when. I can't be with every person going through serious illness, so I wrote a book to serve as that personal guide.
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With a warm and clear style, Dr Pantilat lays out a path from receiving the diagnosis through to moving forward and then to planning ahead to enjoy the life that you have. He finds a way to empower patients and their families, demystifying jargon and explaining that you will have choices.
Dr Pantilat provides a framework to consider how you might want to proceed, consistently pointing out that you need to identifying your personal goals and making decisions that allow you to enjoy life.
The stories he shares of his patients and of his own family members provide warmth and lead toward a better understanding of the options to consider.
Like Atul Gwande's book "Being Mortal", "Life After the Diagnosis" is an important read. One to share with friends and family.
Everyone tells you to ask questions but how do you do that when you don’t know what questions to ask. This is unchartered territory for most of us and we are at a loss as to what to say to the dying, the living, the doctors, the family, etc. We don’t know what services are available to us and don’t know who to ask about them.
Life After the Diagnosis guides you through this process. Dr. Pantilat tells you what to expect, what questions to ask, what services may be available and how and who to ask for them. I liken it to a roadmap in dealing with everyone involved when a loved one is terminal ill.
Dr. Pantilat stresses the importance of taking care of everyone involved, especially the caretaker. Everyone dies, and it is often said that death is a part of life. Those words bring little comfort when you are in the throws of watching someone you love suffer and fearful of what life will look like when they are gone. Life After the Diagnosis helps to bring some comfort to you at this difficult time.
I have shared this book with friends; all have been appreciative and said how invaluable it was to them. Suggestions have included that it be put on tape for those who are unable to read it, and that a version should be published for teenagers coping with the death of a loved one.
A must read, a comprehensive read, and most importantly a read that everyone can understand.