- Publisher: Holistic Education Pr (July 1, 1996)
- Language: English
- ISBN-10: 0962723266
- ISBN-13: 978-0962723261
- Product Dimensions: 6 x 0.8 x 9 inches
- Shipping Weight: 10.4 ounces (View shipping rates and policies)
- Average Customer Review: 10 customer reviews
- Amazon Best Sellers Rank: #2,724,938 in Books (See Top 100 in Books)
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Losing Lou-Ann provides a description of the course of Pick's disease for a specific victim and the emotional, financial, and other effects upon Lou-Ann's husband, children, parents, in-laws, church, and community. The various responses-admirable, indifferent, or hurtful-are described.
I purchased and read this book because my wife was recently diagnosed with frontotemporal dementia, a degenerative brain disease category that includes Pick's disease. I wanted to learn what might lay ahead in more detail than provided by medical synopses. Losing Lou-Ann provides such a view, sad as it is. The disease-related events reported in the book seem completely true, judging from early experiences with my wife.
Losing Lou-Ann does not allude to one aspect of Pick's disease, possibly genetic influences. This omission is surprising since during Lou-Ann's illness her daughter married. It seems reasonable that hereditary linkages would have been discussed at that time and thus be included in the book. Doubtlessly, less was known then than now, but scholars have recently reported an apparent autosomal-dominant inheritance pattern for familial frontotemporal dementia.
This book is also a love story. Lou-Ann's husband Clint visited her almost every day, sometimes more than once, for the years when she lived in a nursing home. When Lou-Ann could not feed herself, Clint regularly feed her dinner. When she was incontinent, he changed her diapers. And always Clint longed to have Lou-Ann's head upon his shoulder as in years past.
This is a book about a terrible disease and a great love.
The author, Clint Erb, wrote that life became simple once his wife's disease was diagnosed, and yet it was far from simple to find the strength to battle over seven years to preserve the fundamental human dignity and respect for his wife whose individuality was continually under assault by this insidious brain disease. Erb has achieved a remarkable literary feat in clearly conveying throughout the book the power of Lou-Ann's personality and his own courage and love for her as the disease slowly and piece by piece took away everything.
Losing Lou-Ann is an inspiration to the rest of us who face obstacles and challenges on a much more reasonable scale. The example set by the author in his undying love for his wife has a much more universal appeal than just to families dealing with a specific disease.
Most recent customer reviews
with Pick's disease and I wanted to know what I faced. What a
beautiful love story.Read more