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The Lupus Book: A Guide for Patients and Their Families 3rd Edition

4.8 out of 5 stars 82 customer reviews
ISBN-13: 978-0195181814
ISBN-10: 0195181816
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Editorial Reviews

From Library Journal

Nearly one million people in the United States suffer from lupus erythematosus, which develops when the body becomes allergic to itself. Because of the difficulty of diagnosing lupus, several years may elapse before an accurate diagnosis is made, resulting in mental anguish and damage to vital organs. By increasing public awareness of this disease, Wallace, a world authority on lupus, hopes to effect earlier diagnosis. In a lay companion to the renowned Dubois' Lupus Erythematosus (Williams & Wilkins, 1992. 4th ed.), which he coauthored, Wallace thoroughly explains the body's immunological processes and the causes, diagnosis, management, manifestations, prognosis, and genetic risks of lupus. Containing detailed illustrations and charts similar to those found in medical texts, The Lupus Book is written for allied health professionals as well as patients at the college reading level. Several other current books offer simpler explanations and more easily understood charts while placing a greater emphasis on coping skills; Mark Horowitz's Coping with Lupus (Penguin, 1994) and Sheldon Blau's Living with Lupus (LJ 11/1/93) are among the best. Wallace's book is recommended for those who require a detailed explanation of the disease.?Mary Prottsman, Medical Lib., Enterprise, Ala.
Copyright 1995 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

Review


"This revised and expanded edition of The Lupus Book is a clear and concise update of an essential guide for all people affected by lupus. Dr. Wallace's discussion of lupus is comprehensive and highly readable, and the reader will learn vital information about lupus and about the latest treatments and therapies for the disease. The Lupus Book stands out as the most readable and helpful book on the disease, and I recommend it to individuals diagnosed with lupus, their families, and the professionals who care for them."--Sandra C. Raymond, President and CEO, The Lupus Foundation of America, Inc.


"As we accelerate the scope and pace of lupus research, it is vital that we inform the lupus community of advances and changes in the field. In this new edition of The Lupus Book, Dr. Dan Wallace gives us a much-needed, updated overview of lupus--its causes, complications, diagnosis--and offers potential for new treatments."--Margaret G. Dowd, President, Lupus Research Institute


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Product Details

  • Hardcover: 304 pages
  • Publisher: Oxford University Press; 3 edition (June 1, 2005)
  • Language: English
  • ISBN-10: 0195181816
  • ISBN-13: 978-0195181814
  • Product Dimensions: 9.3 x 1 x 6.3 inches
  • Shipping Weight: 1.2 pounds
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (82 customer reviews)
  • Amazon Best Sellers Rank: #2,476,151 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

Format: Hardcover
The Lupus Book offers detailed information about lupus that is helpful for the newly diagnosed patient or, like my mother, for a lupus survivor of more than 20 years. It has become a "lupus Bible" for my mother and me, even after all the books we've read about lupus over the last 25 years. The book includes example anecdotes, useful information on treatments, and VITAL clinical information for each body system involved. Another Amazon.com customer recommended this book, and I am so grateful--we discovered a life-saving diagnostic procedure through this book that my mother's doctors had not intended to run. If you think you're getting the best care possible for your lupus, read this book and be certain of it. I can't recommend this book highly enough--it is quite literally life-preserving information for the chronically ill lupus patient.
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Format: Hardcover
I have had lupus for at least 20 years and have been diagnosed for 12 of those years. I have a good amount of knowledge of the disease and have been professionally employed as a health educator for rheumatic diseases in the past. I have also been a rheumatic diseases support group leader since 1986.
But what good is knowledge when you are too ill to use it? People who have the symptom of severe fatigue, as well as those who share my experience with lupus cognitive impairment problems, will understand what I mean.
I was having shortness of breath and knew that trouble breathing is big trouble. I was being treated in a managed care setting with antibiotics. I had also been taken off my medications to see if drug allergies were causing breathing problems, and it was proposed that this be tried again even though I only got sicker the first time. I was told I might have acute lupus pneumonitis and when I saw some of my own test results I knew this is what I had. But I wasn't sure what to do about it! My steroids were being decreased and I was getting worse.
A paragraph in Dr. Wallace's book leapt out at me, telling me that (page 85) "If it is properly managed with high doses of steroids, [acute lupus pneumonitis] can be completely reversible...Despite this, it is unfortunate that up to 50 percent of patients with ALP die within months, often due to a delay in diagnosis". Well, folks, I happen to know Dr. Wallace and hightailed to Beverly Hills to see him ASAP. I did have ALP and I would have been in a box underground soon enough if I didn't get treatment, which obviously I did or I wouldn't be here writing this review.
Enough said! Get the book.
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Format: Hardcover
I have recommended this book to numerous people to help them understand their illness better. Dr. Wallace has written this book in terms that a lay person can understand, but never 'talks down' to the reader. This book is an excellent tool for arming oneself in being their own patient advocate. The information can allow you to converse with your heath care provider, working with them to achieve the best care for you. Having read many books about this disease which I have had for the last 10 years, I am pleased with the extensive coverage of the many symptoms and ways that lupus can manifest itself. A very helpful and useful book.
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By A Customer on September 11, 1998
Format: Hardcover
My Rheumatolgist recommended this book and I finally took his advice. This is the most comprehensive, easy to understand book on lupus I have ever read.. AND most importantly, it is not depressing. I feel empowered after reading this book. The section on lab results is very informative..I would recommend this to anybody curious about lupus.
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Format: Hardcover
This is simply the best book on the market for patients with various kinds of lupus, people who suspect they may have lupus, and those who love them.
Written by one of the foremost rheumatologists in the world, and a noted expert in the field, this book covers everything from what is known about the causes of the various types of lupus to why it is difficult to diagnose the disease, on through the biochemistry of the disease, its manifestations and symptoms, the possible treatments for them, and the probable outcome of those treatments. It even discusses the options for lupies: what about pregnancy, for example?
For a lupus patient, this is a must-read at diagnosis, and a faithful friend thereafter, as this fickle disease morphs into various different forms over time. It is also surprisingly reassuring for the new patient, who may have read outdated materials suggesting that a five-year survival rate is to be expected (it is not).
The book, like its author, is careful and caring, but it assumes an intelligent reader and does not patronize. Anyone who doesn't want to read the technical explanations (why are C3 & C4 levels important?) can skip those parts, but the long-term patient will find him or herself going back to them eventually. The patient who reads and understands this book will also be in a far better position to advocate for him or herself with any rheumatologist, and to understand the tests that are inevitably run both to diagnose the illness and to detect its severity at any given time.
The only more thorough book on the market on this subject is a textbook, "Dubois Lupus," edited by Daniel Wallace and Bevra Hahn.
I found this volume invaluable even before I became one of Dr.
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