Mrs. Therese Marie Crutcher-Marin

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About Mrs. Therese Marie Crutcher-Marin
Therese Crutcher-Marin was born in Kansas City, Missouri in 1955 to parents with a strong work ethic. Her career in healthcare, driven by her empathetic heart, lead her into hospice work to help people have the highest quality of life for as long as possible.
After Therese retired, she found love in writing and over 7 years wrote and published her first nonfiction book, "Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington's". It's an inspirational love story, over 38 years, of how John and Therese's marriage was actually fortified by its precariousness and how she learned to love more deeply in the shadow of John's mortality.
Therese is an advocate for Huntington's disease which took the life of her three sisters-in-law. She is the Chair of the HDSA San Francisco Bay Area Affiliate.
After Therese retired, she found love in writing and over 7 years wrote and published her first nonfiction book, "Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington's". It's an inspirational love story, over 38 years, of how John and Therese's marriage was actually fortified by its precariousness and how she learned to love more deeply in the shadow of John's mortality.
Therese is an advocate for Huntington's disease which took the life of her three sisters-in-law. She is the Chair of the HDSA San Francisco Bay Area Affiliate.
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Author Updates
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Blog postAuthor Therese Crutcher-Marin
Good Morning Huntington’s Disease Community!
The Pandemic continues to confine us to our home waiting for our turn to receive the vaccination, so I want to share with you my exercise routine that John and I do about 4-5 times a week.
I hope you will consider incorporating in your day, stretching and getting your heart rate up by marching in place, as an example. It truly helps you stay positive, feel5 days ago Read more -
Blog postHDSA 2019 Convention
Five years ago, in December 2015, John and I visited the HDSA UC Davis HDSA Center of Excellence to start the process to learn John’s gene status for Huntington’s disease. Mara Sifry-Platt, genetic counselor recorded family history, Dr. Vicki Wheelock physically examined John and a psychiatrist evaluated his mental health.
John and I had lived with HOPE since 1979, when Lora, Marcia and Cindy, discovered their mother had Huntingt1 week ago Read more -
Blog postAuthor Therese Crutcher-Marin, HD Advocate
Since the pandemic began, last March, I have watched the news every morning and I’ve become obsessed with the growing number of deaths in the U.S. As I’ve watched the number grow from one day to the next, my heart hurts for loved ones who died alone in a hospital.
Over the past few months, the Lester Holt on NBC has coined a new phrase; perpetual grief; indefinitely long-continued perpetual sadness. Types of Grief and Loss1 week ago Read more -
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Blog postAnita Dominguez and Denny Cone, HDSA Pacific Regional Officer and Staff, have thrown down the gauntlet challenging Chapters/Affiliates, in the region, to see who can recruit the highest number of new volunteers in six weeks beginning January 18th, 2021.
The challenge for a Recruitment Blitz may be focused on one specific volunteer need for Teams, Sponsors or Participants or it could be all encompassing to recruit for all areas of Team Hope Walk. Recruitment for volunteers to wor2 weeks ago Read more -
Blog postThe San Francisco Bay Area Affiliate, one of the 55 Chapters/Affiliates across the U.S., of the nonprofit, Huntington’s Disease Society of America, is celebrating its first year of operation. Despite the pandemic, team members shifted to zoom monthly meetings, virtual events and have developed a Strategic Plan for 2021 to help in the fight against Huntington’s disease, provide Education Days at Stanford & UCSF Center of Excellence, organize outreach projects so HD families can2 weeks ago Read more
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Blog postFrom my family to yours, HAPPY NEW YEAR!
As a person who sees the glass half full instead of half empty, I’m looking for a return to some sense of normality and to having access to the vaccine and being able to relax and be hopeful. It will be a relief to see the job market rebound. Bye, bye 2020 and welcome 2021.
Author Therese Crutcher-Marin
I’m a Huntington’s disease advocate, volunteer and Chair for the Huntington’sDisease Society of America (HDSA) San Franc3 weeks ago Read more -
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Blog postAuthor Therese Crutcher-Marin
Needless to say, I don’t think anyone would disagree that 2020 was a year like we have never experienced before. The number of Americans dying from Coronavirus is staggering.
As of today, December 30th, 2020 over 339,000 Americans have died a horrible death and more than likely, died alone.
Since my family was at risk for the cruelest disease on the planet, Huntington’s Disease, a rare, fatal, genetic brain disorder with NO CU3 weeks ago Read more -
Blog postAuthor Therese Crutcher-Marin, HD Advocate
I’ve been blogging for five (5) and for the first time I’m asking American’s, directly from my heart to yours, to donate to the nonprofit, Huntington’s Disease Society of America. HDSA Organization HDSA is a small nonprofit, 90% volunteer based, and no less important than the American Cancer Society, MS Society, Alzheimer’s Assoc. and Parkinson’s Foundation. Huntington’s Disease (HD) families suffer like families of the3 weeks ago Read more -
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Blog postFrom my family to yours, Merry Christmas!
Author Therese Crutcher-Marin
Even though we can’t, or shouldn’t, celebrate the birth of Christ with family and friends, I believe it’s a small price we pay to heal the world from the COVID-19 pandemic. This is a sacrifice we, as human beings, do for one another.
I’m reminded that, as human beings, we all share the same4 weeks ago Read more -
Blog postAuthor Therese Crutcher-Marin
I’m sharing a story about a friend who purchased Huntington’s Disease Society of America (HDSA) Amaryllis Holiday Kits and sent them to her family to stay connected during the holidays. The amaryllis commonly symbolizes strength and determination. The Huntington’s disease (HD) community has adopted this flower to represent hope and celebrate the advancements in HD research. HDSA Annual Event
HD is a rare, fatal, genetic brain disorder1 month ago Read more -
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Books By Mrs. Therese Marie Crutcher-Marin
Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington's
Apr 25, 2017
$8.99
Would you marry the man you adored if you knew he had a chance of inheriting one of the cruelest diseases on earth?
Therese Crutcher is not a risk taker. Through meticulous planning, she eliminates as much uncertainty from her life as she can. Yet during her senior year of college, blithely planning to marry her beloved John Marin, she is suddenly thrown into turmoil when John's sisters announce they finally know what killed their mother, institutionalized when her four children were all under ten. Phyllis had Huntington's disease, an inherited neurological disease with horrible odds: John and his three older sisters have a fifty-percent chance of inheriting this terrible wasting disease, which slowly kills the brain cells that affect movement and cognition. There is still no treatment or cure.
John says, "You never know what will happen in life," but his at-risk status shakes Therese to the core. How can she live with such uncertainty? Eventually, Therese decides to marry the man she loves. All four Marins choose to ignore what they cannot change; and in the early years, John and his sisters--a big part of Therese's life-- remain healthy, fun-loving, and as close as ever. Therese takes another big gamble and has a child, and then another.
When she observes symptoms in Lora, the oldest sister, Therese fears that Huntington's has found her. And when Marcia, the gentle middle sister, is diagnosed with the disease, Therese--with two small children, a career, and a husband now in the prime age range to show symptoms--struggles against the demons that feed her fear.
After Lora dies, Therese feels unprepared to support her family should the unthinkable occur, so she earns a master's in healthcare administration and begins a new career. When Marcia's symptoms worsen, John moves her nearby, and Therese lovingly oversees her care. Several years later, Cindy, the youngest, most athletic sister, alsodevelops Huntington's, and Therese does the same, feeling that managing the care of these loved ones is a privilege and the greatest gift she can give them.
Thus unfolds a life filled with unpredictability, tough choices, and pain, and yet full of love, good times, and great joy. Therese comes to realize that the uncertainty she willingly took on has opened her heart to love more deeply; that acknowledging her world could change overnight has made her life richer. She has learned to overlook shortcomings and to compromise, to let go of anger when she can't control a situation, to find joy in the simple things. Life is just too precious to waste a moment on small stuff. And though John's sisters leave this world far too soon, the Marin siblings, she realizes, have taught her about embracing life, forgiveness, and unconditional love.
Therese Crutcher is not a risk taker. Through meticulous planning, she eliminates as much uncertainty from her life as she can. Yet during her senior year of college, blithely planning to marry her beloved John Marin, she is suddenly thrown into turmoil when John's sisters announce they finally know what killed their mother, institutionalized when her four children were all under ten. Phyllis had Huntington's disease, an inherited neurological disease with horrible odds: John and his three older sisters have a fifty-percent chance of inheriting this terrible wasting disease, which slowly kills the brain cells that affect movement and cognition. There is still no treatment or cure.
John says, "You never know what will happen in life," but his at-risk status shakes Therese to the core. How can she live with such uncertainty? Eventually, Therese decides to marry the man she loves. All four Marins choose to ignore what they cannot change; and in the early years, John and his sisters--a big part of Therese's life-- remain healthy, fun-loving, and as close as ever. Therese takes another big gamble and has a child, and then another.
When she observes symptoms in Lora, the oldest sister, Therese fears that Huntington's has found her. And when Marcia, the gentle middle sister, is diagnosed with the disease, Therese--with two small children, a career, and a husband now in the prime age range to show symptoms--struggles against the demons that feed her fear.
After Lora dies, Therese feels unprepared to support her family should the unthinkable occur, so she earns a master's in healthcare administration and begins a new career. When Marcia's symptoms worsen, John moves her nearby, and Therese lovingly oversees her care. Several years later, Cindy, the youngest, most athletic sister, alsodevelops Huntington's, and Therese does the same, feeling that managing the care of these loved ones is a privilege and the greatest gift she can give them.
Thus unfolds a life filled with unpredictability, tough choices, and pain, and yet full of love, good times, and great joy. Therese comes to realize that the uncertainty she willingly took on has opened her heart to love more deeply; that acknowledging her world could change overnight has made her life richer. She has learned to overlook shortcomings and to compromise, to let go of anger when she can't control a situation, to find joy in the simple things. Life is just too precious to waste a moment on small stuff. And though John's sisters leave this world far too soon, the Marin siblings, she realizes, have taught her about embracing life, forgiveness, and unconditional love.
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