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About Mrs. Therese Marie Crutcher-Marin
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Blog postEach of us is given but one pass through life. No retakes. No repeats.
So, make a covenant –
To live well. Be good to yourself, your family and others. Be big in behavior, not small. Think mature, not immature. Take the long view, not shortsighted. Participate thickly, not thinly. Consider carefully Abraham Lincoln’s thought that “in the end, it’s not the years in your life that count. It’s the -
Blog postThis statement may seem ridiculous given the statement I’ve created for Huntington’s disease (HD); “the cruelest disease on the planet”. I have not changed my mind regarding the statement but HD transformed my way of thinking, in a positive manner, really, without me even knowing it. WhatisHD
After I’d made the decision to marry John, who had an unknown gene status for HD, I realized, in order to not lose my mind with worry, I had to retrain my brain; first, to learn how to live in th -
Blog postChoice, Chance and Change: The Three C’s of Life. https://www.habitsforwellbeing.com/the-3-cs-of-life-choices-chances-changes/
When you make a choice, you change the future.
The huge uncertainty I chose to live with, John had an unknown gene status for Huntington’s disease (HD), the cruelest disease on the planet, caused a huge CHANGE in my life. His 50/50 chance of inheriting this rare, fatal, incurable brain disorder that is like having ALS, Parkinson’s and Alzhe -
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Blog postChoice, Chance, and Change: The Three C’s of Life. It’s all up to you. It’s scary or empowering depending on how you look at it. https://www.habitsforwellbeing.com/the-3-cs-of-life-choices-chances-changes/
When I decided to marry John, and took the chance that he had not inherited the mutated huntingtin gene for the worst disease on the planet, Huntington’s disease (HD), I knew the possible consequences of my decision. It may sound strange, but living at risk for HD change -
Blog postChoice, Chance and Change: The Three C’s of Life. https://www.habitsforwellbeing.com/the-3-cs-of-life-choices-chances-changes/
Woody Guthrie Festival 7-2017
When I was 22 years old, I had to make the most difficult decision (choice) of my life. I was in love with a man I planned to marry after I graduated from California State University, Sacramento. I was at a fork in the road; marry John and live with the uncertainty of Huntington’s disease (HD) or w -
Blog postIn the United States, the Rare Diseases Act of 2002 defines rare disease strictly according to prevalence, specifically “any disease or condition that affects fewer than 200,000 people in the United States”, or about 1 in 1,500 people.
With that said, Huntington’s Disease (HD) is a rare disease since it affects approximately 30,000 people in the U.S. What-is-HD
Marjorie Guthrie The poster child for HD is the famous folk singer Woody Guthrie who died of complication -
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Blog postTs sign up for the ONLINE support group, go to this website: https://www.supportgroupscentral.com/groups_ _____________________________________________________________________________
The UC San Francisco Huntington’s Disease Clinic website: https://www.ucsfhealth.org/clinics/huntingtons_disease/
UC Davis HD Clinic website: https://health.ucdavis.edu/huntingtons/
Kaiser HD/Genetic Movement Disorders, Sacramento: https://mydoctor.kaise -
Blog postNonfiction story of Life At Risk for HD John and Therese Marin Therese at the 2018 HDSA Annual Convention in LA. Chapter 7 Life At Risk http://amazon.com/author/theresecrutchermarin “I was ecstatic that John and I were finally living under the same roof. Our split-level apartment had two bedrooms, one bathroom, a cute kitchen with a bay window that my coleuses loved. Upstairs was a dining area and a sunken living room with a stone fireplace; a sliding-glass door opened onto a
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Blog postAuthor Therese Crutcher-Marin Christmas in 1976 when John & I were in college No one can image what it is like to Live At Risk for the cruelest disease on the planet; Huntington’s disease. What-is-HD This rare, hereditary brain disorder, is like having ALS, Alzheimers and Parkinson’s at the same time, has no cure and strikes during prime working years. It’s difficult to understand, unless you have lived it.
This picture describes the process I went through when John and his three -
Blog post“Uncertainty is the only certainty there is, and knowing how to live with insecurity is the only security.” ~John Allen Paulos
John and I lived AT RISK for the cruelest disease on the planet, Huntington’s disease (HD), for 38 years. It was in 2016, that John decided he wanted to know his gene status. Many years ago, the genetic test became available in 1993, I asked him to have the test done, but he couldn’t, and I understood why. 5-tips-for-living-with-un -
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Books By Mrs. Therese Marie Crutcher-Marin
Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington's
Apr 25, 2017
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