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About Mrs. Therese Marie Crutcher-Marin
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Blog postAuthor Therese Crutcher-Marin
Good Morning Huntington’s Disease Community!
The Pandemic continues to confine us to our home waiting for our turn to receive the vaccination, so I want to share with you my exercise routine that John and I do about 4-5 times a week.
I hope you will consider incorporating in your day, stretching and getting your heart rate up by marching in place, as an example. It truly helps you stay positive, feel -
Blog postHDSA 2019 Convention
Five years ago, in December 2015, John and I visited the HDSA UC Davis HDSA Center of Excellence to start the process to learn John’s gene status for Huntington’s disease. Mara Sifry-Platt, genetic counselor recorded family history, Dr. Vicki Wheelock physically examined John and a psychiatrist evaluated his mental health.
John and I had lived with HOPE since 1979, when Lora, Marcia and Cindy, discovered their mother had Huntingt -
Blog postAuthor Therese Crutcher-Marin, HD Advocate
Since the pandemic began, last March, I have watched the news every morning and I’ve become obsessed with the growing number of deaths in the U.S. As I’ve watched the number grow from one day to the next, my heart hurts for loved ones who died alone in a hospital.
Over the past few months, the Lester Holt on NBC has coined a new phrase; perpetual grief; indefinitely long-continued perpetual sadness. Types of Grief and Loss -
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Blog postAnita Dominguez and Denny Cone, HDSA Pacific Regional Officer and Staff, have thrown down the gauntlet challenging Chapters/Affiliates, in the region, to see who can recruit the highest number of new volunteers in six weeks beginning January 18th, 2021.
The challenge for a Recruitment Blitz may be focused on one specific volunteer need for Teams, Sponsors or Participants or it could be all encompassing to recruit for all areas of Team Hope Walk. Recruitment for volunteers to wor -
Blog postThe San Francisco Bay Area Affiliate, one of the 55 Chapters/Affiliates across the U.S., of the nonprofit, Huntington’s Disease Society of America, is celebrating its first year of operation. Despite the pandemic, team members shifted to zoom monthly meetings, virtual events and have developed a Strategic Plan for 2021 to help in the fight against Huntington’s disease, provide Education Days at Stanford & UCSF Center of Excellence, organize outreach projects so HD families can
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Blog postFrom my family to yours, HAPPY NEW YEAR!
As a person who sees the glass half full instead of half empty, I’m looking for a return to some sense of normality and to having access to the vaccine and being able to relax and be hopeful. It will be a relief to see the job market rebound. Bye, bye 2020 and welcome 2021.
Author Therese Crutcher-Marin
I’m a Huntington’s disease advocate, volunteer and Chair for the Huntington’sDisease Society of America (HDSA) San Franc -
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Blog postAuthor Therese Crutcher-Marin
Needless to say, I don’t think anyone would disagree that 2020 was a year like we have never experienced before. The number of Americans dying from Coronavirus is staggering.
As of today, December 30th, 2020 over 339,000 Americans have died a horrible death and more than likely, died alone.
Since my family was at risk for the cruelest disease on the planet, Huntington’s Disease, a rare, fatal, genetic brain disorder with NO CU -
Blog postAuthor Therese Crutcher-Marin, HD Advocate
I’ve been blogging for five (5) and for the first time I’m asking American’s, directly from my heart to yours, to donate to the nonprofit, Huntington’s Disease Society of America. HDSA Organization HDSA is a small nonprofit, 90% volunteer based, and no less important than the American Cancer Society, MS Society, Alzheimer’s Assoc. and Parkinson’s Foundation. Huntington’s Disease (HD) families suffer like families of the -
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Blog postFrom my family to yours, Merry Christmas!
Author Therese Crutcher-Marin
Even though we can’t, or shouldn’t, celebrate the birth of Christ with family and friends, I believe it’s a small price we pay to heal the world from the COVID-19 pandemic. This is a sacrifice we, as human beings, do for one another.
I’m reminded that, as human beings, we all share the same -
Blog postAuthor Therese Crutcher-Marin
I’m sharing a story about a friend who purchased Huntington’s Disease Society of America (HDSA) Amaryllis Holiday Kits and sent them to her family to stay connected during the holidays. The amaryllis commonly symbolizes strength and determination. The Huntington’s disease (HD) community has adopted this flower to represent hope and celebrate the advancements in HD research. HDSA Annual Event
HD is a rare, fatal, genetic brain disorder -
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Books By Mrs. Therese Marie Crutcher-Marin
Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington's
Apr 25, 2017
$8.99
Other Formats:
Paperback
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