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My Tubey: A Day in the Life of a Tube Fed Boy Paperback – April 20, 2011
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About the Author
Rhiannon Merritt-Rubadue's daughter was born with severe Pediatric GERD that led to her being tube fed until the age of three. When she could find no children's books about kids with feeding tubes, she decided to write some and created MyTubeyBooks.com. Rhiannon studied creative writing and earned her BA from the University of Washington. She lives near Seattle with her husband and two children.
Top customer reviews
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I purchased this for my 2 year old son, and perhaps even moreso for his playgroups, peers, and their parents. It's a very helpful tool in our arsenal of "show and tell" items to help de-mystify the feeding tube.
How sad that a previous review was disappointed - but I couldn't disagree more with that review. The illustrations are great! The little boy looks very much like a little boy should - and he's shirtless in situations that plenty of other (tubeless) little boys find themselves shirtless. Children (with and without tubes) are curious and want to see what the tube looks like - it absolutely makes sense to illustrate the book in a way that shows the tube! In some scenes the boy is shirtless, in others he is not. It seems perfectly normal and natural to me. I take no issue with the word "tubey" - we and countless others use it on a daily basis. We use "Tubey" to refer to the medical device itself, and "Tubie" to refer to my little boy (and others who have a Tubey). This is very common verbiage.
I was excited to see very recognizable items in the book - the feeding pump looks just like ours, as did the gravity/bolus feeding set and other tubing. I VERY much appreciated that appropriate words were used - stoma, bolus, etc - it wasn't cutesy, it was REAL. At the same time, it wasn't scary or clinical. Very well done.
I am very happy with my purchase and look forward to future titles by this author.
The book is also over priced. We were disappointed with this attempt at an informational text. We would not recommend this book for anyone but look forward to a more appropriate book by another author/artist.
There may be more people around with tubes in America but for us in New Zealand it's unusual and so having the books really helped him to feel more normal and okay.