- File Size: 758 KB
- Print Length: 45 pages
- Simultaneous Device Usage: Unlimited
- Publication Date: November 22, 2014
- Sold by: Amazon Digital Services LLC
- Language: English
- ASIN: B00Q1IGSH4
- Text-to-Speech: Enabled
- Word Wise: Enabled
- Lending: Enabled
- Amazon Best Sellers Rank: #669,349 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
|Print List Price:||$9.99|
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Paper in the Wind: Peeling back the lifespan of autism Kindle Edition
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Top customer reviews
With books such as this one, my reviews are personal. I can't help that as I know what it is like when you have a child who seems to always be awake. I know the terror of a child who has no concept of danger and doesn't verbalize his pain. I know the difficulty of a child melting down horribly in public. I know the pain of hearing comments such as,
"that child needs discipline,"
"that parent needs to learn what parenting is,"
and other hurtful remarks. I know how puzzling it is to have a child speaking in sentences change to using two phrases,
"cars, planes, trains,"
"socks, shoes, shirts,"
and repeat them endlessly. I know what it is like to watch children playing together while yours plays by lining things up in a specific order, by himself. I know what it feels like to hear the words, after hours, days and weeks of doctor visits and testing,
"he has autism."
I know the world this book speaks of and my review will reflect that.
What I like about this book is that it tells of a families journey with autism. It tells of mistakes made. It speaks of the worst that can happen when one parent is overwhelmed by autism and the best that can happen when one parent is strong enough to continue fighting. I applaud the fact the author brings up what happens in many cases: one parent avoids by working excessively and the other parent is exclusively doing the hard work of parenting. This is how many families fall apart. I love that it shares the cruelty of children towards autistic children and the power of friendship from those children who look beyond the quirky behavior. I am happy that it speaks of different treatments and therapies available for autism. Most of all, I am grateful for the hope it inspires; for teaching that autism is not a death sentence; for showing the positives of love, acceptance and friendship.
Autism is not one person fits all. That is why there is the spectrum. The children, (yes there are more than one), in my family are not violent. One feels no pain when hurt and had to be taught to say, "ow!", every time he fell, so we would know to look for any wounds. The other child feels everything. Loudly. The symptoms vary along with the severity, from person to person. So do the therapies and treatments. We welcome learning about new thoughts and therapies but they not be right for all. Please don't take offense if we don't use what you share. It may not be the right moment or child. Unfortunately it may also be that the therapy you mention is not available in our area or is too expensive to be explored. The single parent in this book has the resources to try every option. Which brings me to what didn't work for me. I was confused by the income available for the parent. I don't want to go exactly into why as it would spoil the book but I was confused by it. I didn't understand how he was able to truly afford all he did up to the point of writing blank checks and paying $7000 for school clothes while trying every therapy mentioned. There are some other things contributing to what I assumed was his responsibility to pay for as husband and father. I wish the author had made that clearer. I wondered if any therapies were covered under insurance, many are not. I had to look into grants for some things my guy needed but were high priced. I wish that had been mentioned in some form as social service budgets get smaller every year while need grows. Because I couldn't understand his resources I had a hard time with the reality of the story at one point, (yes I know it is fictional but it is written in a style to suggest memoir). Another thing I wasn't liking was the alcohol abuse. This felt like both the father and his friend were functional alcoholics. They drank all the time, even at the playground watching their children play. The father mentioned, more than once, falling asleep on the bedroom floor in his daughters room after drinking. While feeling as if I needed a drink or ten of alcohol, that was not an option. Too many things could go sideways. Maybe if the story were longer these things could be explored more and then they would fit. In a story of this length, they felt irresponsible.
Wrapping it up, this book is a worthwhile read. The father's dedication to his daughter, the friends and the fight for friendship, Alexa's progress, they are all inspiring. The book is a fast read that doesn't flinch from some of the difficulties of autism while providing hope. Even with the parts that didn't work for me, (keep in mind we are all different so they may work for you), I enjoyed reading this book. If you are interested in autism or looking for an inspirational story, definitely try this one.
I was found this book through BookTasters who, along with the author, offered this book for review consideration.
This story is written in a quasi-memoir format and tells the story of a single father and his autistic daughter. While it gives hope and is uplifting in the final outcome, it also doesn't hesitate to show the damaging side of dealing with such severe challenges of having an autistic child. Those who don't want spoilers should probably skip the rest of the review.
Even though I was elated with the happy ending to this story, especially with the beautiful ending to the hospital drama and the family circle coming together, the story also shows the dark side that is not talked about--the plight of the caregivers, mothers, fathers, grandmothers, grandfathers, whoever is "left alone" to do the primary care for an autistic individual. I would say that most stories gloss over this and appear to make the caregiver a "perfect" hero or heroine, who is always on top of things and keeping up a positive appearance. However all this does is serve to isolate the caregiver further and make them feel guilt for not being good enough. This story, however, shows that none of this is easy, and that caregivers need attention and support, therapy and treatment for their stress, anxiety, depression that could bring anyone to their knees when dealing with the grief and loss of hope as well as daily battles that take place.
The murder-suicide and alcohol abuse are honestly portrayed, even though extremely worrisome, but it points out that caregivers need more support and help than we think, and many times, they suffer in silence because they feel they need to do more or be "perfect" and they simply can't handle it, and it's okay to admit it. After all, when you look at what Allison was facing, [two daughters with severe autism, physical abuse at the hands of her daughters, isolation, her husband working 60 hours a week so he can "get away" from the chaos, guilt, lack of sleep, anxiety, and undiagnosed depression] she didn't see a way out. And sadly, no one cared to treat her psychological issues, her PTSD, her depression and her pain. I'm glad that the formerly absent husband grew to appreciate the difficulties she felt and that he made amends to her, even though she was already past consciousness. After reading this story, her plight haunts me the most, and I hope it'll get people to care for the caregiver and form a support network for those on the front lines and reach past the "I'm doing great" or "Everything's fine." that they so valiantly portray--illustrated by the long sleeve shirts and makeup she wore to cover up the bruises and bite marks. She wasn't okay, and sadly, she chose to end her life and in doing so, she didn't see an out for her two children either, like who would take care of them after she died, so she tried to take their lives too.
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