- Series: HIMSS Book Series (Book 2)
- Paperback: 337 pages
- Publisher: CRC Press; 1 edition (August 20, 2016)
- Language: English
- ISBN-10: 1498769624
- ISBN-13: 978-1498769624
- Product Dimensions: 7 x 0.8 x 10 inches
- Shipping Weight: 1.4 pounds (View shipping rates and policies)
- Average Customer Review: 8 customer reviews
- Amazon Best Sellers Rank: #1,466,646 in Books (See Top 100 in Books)
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Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation (HIMSS Book Series) 1st Edition
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"In 2030, we’ll look back at this book as the first to document the most compelling change ever to occur in healthcare. Participatory Healthcare combines the facts, figures, trends and market forces driving person-centered health with the heart and soul of the patients who are leading this movement. I’ve made it required reading for all at WEGO Health, and it’s a must for every stakeholder in healthcare."
-Jack Barrette, CEO, WEGO Health
"Participatory Healthcare, edited by Jan Oldenburg with Associate Editor Mary Griskewicz, could become the defining textbook of our field – the new cornerstone of our movement… This book is a fitting continuation of Tom Ferguson’s legacy: by reframing the discussion around the role of patients in healthcare, it makes the case for a world-changing paradigm shift in our approach to patient care. Participatory Healthcare provides exactly what we need: conceptual essays and pragmatic stories that demand to be heard. I very much hope you’ll read it, from cover to cover."
-Dave deBronkart, Cancer survivor, co-founder and chair emeritus, Society for Participatory Medicine
From the Back Cover
Healthcare Management - Process Improvement
JaneSarasohn-Kahn, Health Economist and Advisor, THINK-Health and Health Populi blog
"This book contains the keys to transforming our healthcare system from one in which patients are receivers of care to one in which they are collaborators in care."
--Paul Kleeberg, MD
"This book inspires hope for change. Reading the poignant patient and caregiver stories in this book makes the need for change to a more participatory healthcare system personal. I urge each of you, after reading this book, to get involved in this exciting transformation."
--Daniel Z. Sands, MD, MPH
Written through the lens of healthcare experts, patients, caregivers, and families, Participatory Healthcare: A Person-CenteredApproach to Healthcare Transformation highlights new models of interaction between providers and patients. The book envisions a new approach to healthcare in which patients and caregivers are respected and welcomed as partners in designing and managing care, where technology supports and enables both more convenient and more personal experiences for providers, patients, and families.
The book begins with essays from those working inside the system to make it more patient centered and convenient. The essays emphasize best practices and case studies reinforced with clinical research underscoring outcomes others have attained.
Using a unique narrative approach, the book is infused with real-life stories from patients and caregivers about their experiences of acute or chronic illness. The stories highlight ways illness alters lives and shifts perspectives for individuals and families. They bring theoretical ideas to life by showing how individuals suffer when care is fragmented, when medical records are hard to obtain, when patients aren't welcomed as collaborators, when physicians are condescending or not empathetic,and when healthcare is both inconvenient and costly. Each story refers back to the transformational principles presented in the essays by highlighting key lessons for policy and practice.
Stories are powerful, and the essays and stories discussed within this book will stay with the reader for years to come,supporting and inspiring system change.
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But here is the heart of the matter. Patients have important, relevant, material, critical information to share. This information may be "right or worng" medically, but right or wrong the information provides for richer dialogues, more lasting connection and better outcomes.