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The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally Paperback – November 21, 2014
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About the Author
Calvin and Susan Q. Knittle-Hunter are the co-creators, co-founders and co-directors of the Periodic Paralysis Network, Inc. (PPNI), an independent, educational corporation, designed to provide support, education and advocacy to individuals with Periodic Paralysis (PP). Calvin, the Primary Director of PPNI, earned B.S. degrees in Behavioral Science and Psychology at Westminster College and the University of Utah. He also holds an M.Ed. degree in Special Education and M.S. degree in Information Technology from the University of Utah and Capella University. Calvin worked in a variety of fields including teaching, corrections and case management. Susan, the Managing Director of PPNI, earned B.S. degrees in Psychology and Special Education at the University of Utah and spent many years as a teacher and case manager working with children and adults with disabilities. She suffers from a rare and disabling mineral metabolic disorder called Periodic Paralysis. Calvin and Susan have co-authored and co-published three books; living with Periodic Paralysis: The Mystery Unraveled, Sotos Syndrome: A Tribute to Sandy and Moments In Time: At Home In The Woods.
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A Rare Gift
The Periodic Paralysis guide and work book is an extremely valuable tool in helping to both understand the basics of Periodic Paralysis and to gain better clarity on your symptom experience, to hopefully bring more chance of a recognised diagnosis and inform your own personal knowledge.
Even when you experience paralysis repeatedly and daily, it is, in fact, still very hard to figure out your triggers and to understand what is going on, specifically. It can be a totally devastating and bewildering experience, finding that you have a rare and little understood disease, with continual flaccid muscle paralysis, that is often ignored, dismissed, misdiagnosed and mistreated or ignored.
It is a complex thing to get your head round and can seem daunting. It can totally affect every aspect of living. The charts in the book are a very helpful way to identify and clarify the whole experience.This book is a useful and informative way of beginning to better articulate personal experience. Everyone has similarities and differences, depending on severity and type of paralysis. The charts are particularly useful in helping you think through and record relevant and important information.
This book is well researched and written from personal insight and hard won knowledge and created out of great concern, compassion and understanding of this debilitating, yet often hidden and misunderstood disease.
It gives you hope that you can start to reclaim your life, to some degree, by at least understanding more about the paralysis, what triggers it and how to take a natural approach to deal with it, with the hope of improving the quality of your life and experience.
Thank you Susan and Calvin. With such an all encompassing, overwhelming and devastating experience of paralysis, anything that brings hope, wisdom, information and help is a rare gift.