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The Peripatetic Pursuit of Parkinson Disease Paperback – October 9, 2013
The Amazon Book Review
Author interviews, book reviews, editors picks, and more. Read it now
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...Although there is much crossover, the book is divided into eight chapters Parkinson Basics and Beyond, Parkinson Is More Than a Movement Disorder, Helping Ourselves, Quality of Life, The Difficult Bits, PD Activism, Advocacy in Action and Going International .
If you're looking for a simple didactic, here's what you should do approach to Parkinson, then you should go elsewhere. If you want to be spoon fed, like a child, this book is not the answer. This is not a book for mental couch potatoes. This is a book for active enquiring minds who just happen to have PD.
So if you are a thinker and like your brain cells regularly tickled, this book is for you. If you want answers, they are here. But more importantly, so are questions and ideas. And if you want to really understand your PD, what it means to you as a person and to those around you, you are already knocking on the door.
This is a book which prompts original thought, challenges existing dogma, provokes responses, and empowers the reader. It is further even than that -- it's an aerobic workout for the brain!
The book is also accessible. Individual sections are short and punchy. Personal testimonies abound, providing intimacy and a human scale to the neurobiology. Everything is here -- from reactions to diagnosis through to the ethics of sham surgery in clinical trials. And all points in between.
You may not know it yet but this book is what you have been waiting for. Jon Stamford, PhD, co- founder of Parkinson s Movement,UK
--Review: On the Move, Newsletter, UK, Autumn 2013.
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Top Customer Reviews
1. Like many people, when I was first diagnosed with Parkinson’s it was totally unexpected. I knew no one who had Parkinson’s disease and I knew very little about it. I thought I’d had either a small stroke or some issues with my muscle movement. But the neurologist told me he was 110% certain I had Parkinson’s disease! After I heard him say that my mind went blank and he continued to tell me how he’d write a prescription for some drugs and to come back and see him in six months. Oh and by the way he thought there were some support groups in the local area that I could probably find out about. It took me about a year of doing Internet research and talking to other people to finally get a handle on what Parkinson’s disease was all about. How I wish I’d had this book 3 years ago. It does a great job of answering many of the questions I had immediately after my diagnosis and provides great insightful comments from many of the contributors who have experienced the same issues that I have. Many of the stories in this book are very personal and there are also a number of good articles written by MDs, neurologists and scientists. In other words there’s something for everyone.
2. The second reason I like this book is that it is a great resource for family members and caregivers and gives them a valuable insight into what it’s like to experience PD.Read more ›
It is NOT a quick reference guide with easy to find facts. It is the compilation of the stories of many people with Parkinson's that represent the wide variety of way that Parkinson's presents and how it impacts lives.
I found this book so helpful, so encouraging. It's the first positive book I've read since my diagnosis.
In fact, when I showed it my Neurologist, a Parkinson's specialist, she thought it was so inviting when I brought it in at an appointment, she asked if she could have it!!
Thrilled my physician was so interested, I immediately ordered another one.
I genuinely think this is a book worth giving to ALL OUR COLLECTIVE NEUROLOGISTS!
If they're not receptive, I would suggest finding a new PD Specialist.
Any neurologist unwilling to learn something new and encouraging is NOT for you.
Unless you're ready to give up.....an unacceptable choice.
I highly suggest everyone buy 2, one for yourself and one for doctor.
Most Recent Customer Reviews
If you have Parkinson's or live with someone who does, this book is full of information and inspiration.Published 2 months ago by Charles Schwager
Very informative recommend it to anyone just being diagnosed w/ ParkinsonsPublished 10 months ago by carolyn schanz
Highly recommended for anyone with Parkinson's and for all those who care for them. This is what it is really like to have this disease.Published 12 months ago by Amazon Customer
Hard to read due to the background images on most pages. I am returning item.Published 17 months ago by SS
For a Parkinson patient of family, it is the most informational book I have ever read on Parkinson'sPublished 17 months ago by John Swanson